2 days in ICUCOVID post-op (second surgery)UTI post-opbladder pain/burning urinationbladder repair requiredblood pressure dropped to zerocatheter for one weekcoerced patient into promising GoFundMe money before surgerycramps turned into contractionsemergency sigmoid bowel resection during first laparoscopy
Self-reported by patients. Complication rates vary by case complexity.
Posts from users who described first-person experiences with this doctor.
Each "View on Reddit" link goes to the original public post for verification.
“Patient had initial consult in May 2022 and surgery November 2022. Surgery lasted 6 hours; 36 lesions excised across multiple organs including endometrioma removal and left ovary reconstruction. Uterus was adhered to rectum and fallopian tubes. Dr. Seckin provided full post-op debrief with surgery pictures and video. Pain returned approximately 2+ years post-surgery. Patient describes the surgery positively but notes ongoing financial burden and recurrence. Dr. Seckin and his team did an outstan”
r/r/EndoMay 11, 2022+1 pts
Thank you so much, I will! Right now I’m at Dr. Seckin’s waiting room in NYC for my initial appointment and I’m going over all the notes/tips I’ve gotten until now.
Thank you so much for sharing 🙏🏽 Right now I’m at Dr. Seckin’s waiting room in NYC for my initial appointment and I will definitely talk to them about this. Thank you
Thank you for sharing. No, I haven’t gotten any imaging done on my liver yet, but I will keep this in mind. Right now at Dr. Seckin’s waiting room in NYC for my initial appointment and I’m going over all my notes and tips to make sure I tell them everything. I hope you get the right answers as well!
Wow, thank you so much for sharing! This is so helpful. I am at Dr. Seckin’s waiting room right now (initial appointment) and I remembered to come back to your post for this info. My husband and I flew in from Florida, so I’m so glad to hear you thought it was worth it… We ended up taking advantage of a cancellation, to get today’s spot.
And I will definitely look into Samaritan Ministries (I had before, but I ended up deciding to go with the PPO health insurance from my employer. I hope I can still switch).
When endo brings you to NYC (I’m currently at Dr. Seckin’s waiting room for my initial appointment)
When endo brings you to NYC (I’m currently at Dr. Seckin’s waiting room for my initial appointment)
Thank you 🙏🏼 My grandma had a hysterectomy in her 40s, we don’t know why, and my mom suffered many issues with her period, pain, uncontrollable bleeding, and uterine myomas, until she also got a hysterectomy in her 40s. This year I bought her Dr. Seckin’s book (_The Doctor Will See You Now_) and after reading it, she called me sobbing, saying she more than likely had endometriosis but never knew it.
Now it’s our job to stop this in our generation!
Hand-method deep excision surgery vs. Robotic excision surgery. Which one do you prefer?
Hand-method deep excision surgery vs. Robotic excision surgery. Which one do you prefer?
You can include in the comments why do you prefer one or the other, what you know to be best, or even your experience with one or the other (or both!). This is to help me decide whether to continue with the excision specialist I had in mind (Dr. Seckin in NYC), or to go with a local specialist in Florida, who uses the DaVinci robotic method. Mainly, for financial reasons.
For context, Dr. Seckin suspects I have endo at least around my ovaries, outside my uterus, and on my bowels - I also think the rectum/Pouch of Douglas area, my bladder, and some nerves are affected (because of upper back pain). No endometriomas. Thank you 🙏🏼
I was finally diagnosed by an endometriosis specialist, author and researcher who is a male, Dr. Tamer Seckin. Before him, I saw two other male doctors, and three female doctors who were all clueless. Not all men are the same.
Oh goodness, I am scheduled for 11/17 with Seckin as well, and I have so many questions 😆 good luck!
I’d ask if they are using robotic or haptics (I probably should have asked before booking the surgery, right?)… I’d also ask what is their plan if they find endometriomas (they suspect them in me), I would ask them if they are going to check nerves, muscle tissue, liver, diaphragm, etc… Meaning, other organs that are not the typical affected areas.
Hi! Quick question, how did your surgery go? I’m scheduled with Seckin for 11/17. Also, did you insurance ended up reimbursing you anything after the fact, or did you just pay the $20k? Thank you!
Wow, that’s amazing, thank you for sharing! How are you feeling overall about the surgery? And big question- How did you handle the financial portion? That’s the part that has me (literally) loosing sleep right now.
My surgery is scheduled for Nov 17th. I have met with Dr. Seckin twice, actually. I was very lucky that the first time I went there, he was covering for Dr. Goldstein, and the second time, I was supposed to meet with Dr. Chu only, buy he walked in later, and joined my appointment. It was my interactions with him and his expertise in recognizing my symptoms right away, as well as finding my painful spots through the ultrasound, that gave me the confidence that he could help me.
Anyways, we can talk on DM! I’m really curious to hear your experience with the financial/insurance aspect.
Well, NYC is probably one of the few places in the US and in the world that has the most amount of doctors, including excision surgeons. So, I respect and appreciate the info on Nancy’s Nook, but it’s not gospel. It is literally her own personal standard- based on patients reviewing and describing their past experiences with surgeons.
Still, better than not having any list.
I’m getting surgery with a “non-Nook surgeon” in NYC, if you wanna call it that, Dr. Seckin. I will say, his office staff is a pain when it comes to billing and insurance. Other excision surgeons don’t even take insurance, so to each, their own.
I have a feeling that the surgeons that work with the robot, do it to save time, and to have a better chance of being able to get paid by insurance. Imagine excising for six hours by hand, and not getting reimbursed at all vs. excising for 2 hours with the robot, and getting _some_ money (therefore, getting more patients than only the self-paid ones). But again, that’s just a theory of mine.
Edit: I also saw the Instagram account that you mentioned, and I checked the doctor’s website. Dr. Kanayama, I think.
I could not find one that was a high volume excision specialist within my entire state (Florida, United States). I ended up googling “who is the best excision surgeon” and Dr. Tamer Seckin in NYC came up, along with Dr. Camram Nezhat in California. Crazy, but true story.
So sorry to hear you’re going through this. I had a large cyst on my left ovary and it ended up being an endometrioma (a cyst created due to endometriosis tissue infiltrating the ovary). I had a horrible episode of intense pain back in April 2022, it lasted about 3 days. I felt nauseous, I could barely walk and no pain killer worked. I ended up going to the ER, they did a vaginal ultrasound and couldn’t identify anything 🙄🙄 They gave me morphine, which calmed the pain for about 2 hrs, and sent me home. I was also very scared about an ovarian torsion or cyst ruptured and the potential consequences. That’s how I finally ended up googling “endometriosis excision surgeon” and found Dr. Seckin in NYC.
We went to my first appointment with him in May, and scheduled my surgery for November 2022. Both before and after the surgery, Dr. Seckin said that more than likely the cyst had partially ruptured back in April and leaked some of its content into my pelvic cavity, which created more endo lesions (the showed me the pictures and the video from the surgery).
During the surgery, he drained the cyst, removed the cyst body or capsule, and reconstructed my left ovary. They also performed excision surgery in several other organs that were adhered or fused because of endometriosis. When it comes to those types of cysts (endometriomas) it’s very important that the surgery method is excision. Ablation will partially burn the surface endo tissue, most surgeons don’t even touch the ovaries at all if they only do ablation, and the ones that do, end up also affecting the ovarian reserve in many occasions because in a way, what they’re doing is burning the tissue. And the root of the disease stays there.
I spent from April to November with that cyst inside, the pain went away, I had multiple periods (no more birth control pills bullshit), I worked, worked out, moved homes twice (one was out of state) and took a couple of flights to NYC because of the appointments and surgery. I ended up being fine up until the surgery date, we just didn’t want it to continue growing and potentially spilling more endo content inside. I think if yours warranted emergency surgery, they would have told you in that moment - but it’s still worth asking.
The surgery was very straightforward, laparoscopy surgery like others said. If you have questions, feel free to comment here!
Yes, that coloration looks like endometriosis.
I wasn’t looking to conceive just yet, the reason for my surgery was primarily quality of life *and* fertility preservation as an added benefit. The chronic pain, digestive and urinary issues due to endometriosis were so severe that I couldn’t have a normal life. My husband and I decided that my health was #1 priority over any future plans of becoming parents, and when we were looking at all the treatments/interventions, we learned that excision surgery would actually help with both things.
Sadly, I’ve seen that the way most OBGYNs look at endo is “does it prevent you from conceiving or not?” and that’s it. So probably, that’s why your doctor was recommending the HSG test rather than referring you out. Also, fertility testing and treatments are a very lucrative industry within women’s health, and insurance does cover those things. Excision surgery is not necessarily always covered, and it requires much more expertise and training.
Anyways, my surgeon was Dr. Tamer Seckin, you can Google him just so you can read his website and learn more about what endo looks like and the outlook of the disease. They have actual pictures of surgeries in the website, for educational purposes.
Hey, just chiming in because I have personal experience. That doctor is the co-founder of the Endometriosis Foundation of America and a pioneer in his field, he has developed techniques to better identify endometriosis tissue (AcquaBlue technique), he has written books to create awareness, to educate patients and family members on the disease and to explain the importance of doing excision surgery… And he doesn’t tell his patients that surgery “cures endometriosis”. I know that because I got my surgery done with him a year ago in NYC and mine was deep, infiltrating, including bowel endometriosis, an endometrioma, my ureters were affected, my bladder, and my uterosacral muscles, as well. My uterus was adhered to my rectum and to my fallopian tubes. Dr. Seckin and his team did an outstanding surgery and then he gave me a post-operative appointment with full explanation of all the findings, he went through every surgery picture with me, clarified all my questions, and they even sent me the surgery video. They even had a colorectal surgeon on call for my surgery, due to the complexity of the case. But he never said that surgery cures or conquers endometriosis and his books don’t say that either.
It is very possible that that is just Bindi’s perception or even her husband’s perception, because I know that in the beginning my husband, his family, my family and my friends were all hoping that all of this would be over for me after having the surgery. It’s hard for most people to wrap their heads around everything we go through in terms of treatment, while fully knowing that there’s no cure. We’re badass women.
Sure thing. Dr. Tamer Seckin, co-founder of the Endometriosis Foundation of America. Nobody referred me to him, I literally went on Google and out of desperation I search “best endometriosis specialist in the US”. Him, and another doctor in California came up. I saw his website, all the information related to endo… And it made sense to me. I also bought and read his book “The Doctor Will See You Now”, and it made even more sense.
Everything pointed out that I had an endometrioma on my left side, but the ER doctors along with all the other 7 gynos I had seen, brushed it off. They said it was a functional cyst that would go away with the cycle (I kept hearing that for a year, and it wasn’t going away). Dr. Seckin and Dr. Chu (who works with him) were the first ones to confirm that it was indeed an endometrioma. They excised it and reconstructed my left side ovary. They also found and excised endo from many other organs, including intestines, rectum, pelvic ligaments, bladder, etc. My surgery lasted 6 hours and I’m so glad that I ended up seeing a specialist, rather than going with any of the other gynos I saw before, or the ones my insurance suggested.
Other specialists you can do research on are: Dr. Ken Sinervo, Dr. José Eugenio-Colón, Dr. Jeff Arrington, Dr. Kanayama, Dr. Camram Nezhat, Dr. Andrea Vidali, Dr. Gaby Moawad, Dr. Ramiro Cabrera MD (in Mexico), Dr. Jesus Castellano Moros (in Venezuela)… Make sure to search on Instagram as well, so you can see the videos and how the explain their findings in surgery.
There’s a group called Nancy’s Endometriosis Nook that has a list of “vetted” surgeons. Meh. There’s a lot of controversy about that list, so I wouldn’t base my doctor choice solely on it. But you can still use it as part of your research.
Good luck!
Google Dr. Tamer Seckin, his website has a lot of information on the surgery process (he was my surgeon).
He also wrote a couple of books that are very helpful to fully understand endometriosis and to know what to look for when it comes to surgery. The one I read is called “The Doctor Will See You Now”.
Hey there. I had my surgery in 2022 with Dr. Seckin, excision. I’d like to chat with you about your experience if possible, is it okay to DM you? I was on the same boat as you and refused all hormonal bc post surgery, but now I’m having pain again, I did have an endometrioma before… And now my local gyno specialist is suggesting either the Kyleena IUD or a combined pill. I’m still struggling to make a choice. What are your updates, and did you end up going for any hormonal birth control? Thank you
This one hits incredibly hard for me… Thank you for posting. I also had surgery a little over 2 years ago, at the Lenox Hill hospital, with Dr. Seckin and Dr. Chu… And 36 lesions were found, a lot of organs reconstructed. And now the endo is back with a vengeance. We are still paying for my surgery. My eyes are watery.
There are excision surgeons in Australia. She may have chosen to go with one of the top USA surgeons, since the US leads the charge on research for this disease. Dr. Tamer Seckin is the co-founder of the Endometriosis Foundation of America. He has written books about endo, and has even developed a patented method to identify endo tissue during surgery (the aqua blue method).
I chose him out of desperation one night after going to the ER for intense pain, being put on morphine and sent back home, because “there was nothing wrong with me”. I went on Google and literally put “best endometriosis surgeon in the US” and his name came up. I don’t have nearly as much money or resources as the Irvin family does, but things get scary with this disease.
I do still have my uterus, at least for now.
I’m very sorry to hear you’re going through this… And I’m very puzzled as to why they would make you wait for two years, that’s cruel. Are you fully committed to continuing with that surgeon, or are you open to changing? Are they covered by your insurance?
Just for reference, my surgery was done by Dr. Seckin, the co-founder of the Endometriosis Foundation of America. It sounds like your case is very complex, and that you deserve someone who’s very experienced. When a surgeon already says they don’t feel fully confident in treating you, instead of just winging it and going in… I respect that.
Hi! So my experience in Florida was very, very shitty and that’s why I ended up googling specialists and seeing that one in NYC. Before that, I had seen 8 gynos in the South Florida area (between Fort Lauderdale and Boca Raton) who called themselves specialist, but were not.
So the MRI I got done was ordered by the NYC specialist, Dr. Seckin. They told me to choose a local imaging place (I’m pretty sure it was a franchise type of place, the ones that have multiple locations), and get the images on a CD. And that’s how we got it done.
Before that MRI, I had a bunch of abdominal and vaginal ultrasounds with those “specialists”, that said nothing was found. One of my ovaries was also tethered to the back of my uterus, and my rectum was adhered to my uterus, I also had a bursting endometrioma, but they didn’t see any of it… So, yes, I really encourage you to look for an excision specialist.
Now I see Dr. Frazzini Padilla at Cleveland Clinic for my maintenance/management, since my surgery was almost 3 years ago… And she is WONDERFUL, I cannot say enough good things about her. She is an excision specialist (in case you are in the Southeast area).
Oh crap, the contrast thing is a bummer… If you have the means, I would strongly suggest you seek a specialist. Where in FL are you located? (you can DM me if you prefer to keep it private, and we can brainstorm). You also mentioned Atlanta… Have you seen Dr. Sinervo or Dr. Eugenio-Colón?
There’s also some other good ones in NYC besides Dr. Seckin, we can chat about it
Patient 17Had SurgeryMixed13 postsRecurrencelaparoscopic surgery (first, with Seckin, fall 2021)laparoscopic surgery (second, with Seckin and Chu, March ~2023)consultation with Seckin ($850)
“First surgery had quick recovery with complete pain relief for ~6 months, then pain returned and escalated to chronic daily pain over 2 years. Second surgery with Seckin and Chu (spring 2023) resolved endo pain. Adenomyosis remained and led to recommendation for hysterectomy. Patient values Seckin's expertise but notes recurrence and high cost. I would say Seckins was worth it... I have also had numerous close friends of mine have laparoscopic surgery for endo and they had to have multiple surge”
r/r/EndoNov 1, 2021+1 pts
I just had my surgery done with dr. Seckins & dr. Goldstein. They are both lovely and are excellent surgeons. I am 3 weeks post op and I forget I even had the surgery. So the healing is quick! It definitely is not cheap, the cost of Seckins was 20 grand. Also keep in mind that does not include the hospital bill and the anesthesia bill. However, i thought the cost was worth it as I did not want to be cut open repeatedly like so many of my friends because most surgeons still do not understand the disease.
I am 3 weeks post op from my laparoscopic surgery with dr. Seckin. The cost for me was $20,000. However that only covers the cost of seckin. The hospital (Lenox hill) was another $8,500 then the anesthesia bill was $6,000 on top of that. You will have a consultation with him prior to scheduling surgery which costs $850. The 20 grand you pay covers his surgical expertise and 2 post op follows ups to see how you are doing. Any vista beyond that you will pay for. They recommend I come back yearly to keep an eye on things but I will just use my doctor at home as she is wonderful and significantly more affordable.
I am feeling great, back to normal and have no pain whatsoever. For me I would say Seckins was worth it, we live in PA and it was only a 3 hour drive to his office. I have also had numerous close friends of mine have laparoscopic surgery for endo and they had to have multiple surgeries as the local drs were not prepared nor did they have thorough understanding of the disease. I have Health share through samaritan ministries and they reimbursed me for the entire cost of Seckins, the hospital bill and the anesthesia bill.
The only local(ish) surgeon my dr recommended had over a year wait until his next opening and my pain was rapidly increasing so I did not want to wait that long.
Lenox hill is the worst hospital I have encountered. The nurses were rude and made snarky comments about dr. Seckins patients (which was me ! Lying in front of them in the post op room) and they were zero help at all. Thankfully I had one nice nurse but all the others were so unprofessional. Pre op was also odd for me, I was the first patient there at 6am and the last one to have blood taken and be prepped for the OR. Seckins came in to check on me and say hi before surgery only to find that no one had even started the process so he yelled at everyone in the room as I was supposed to be in the OR in 5 minutes.
I am officially torn on Seckins. I am 29 and had my surgery when I was 28 after struggling to conceive after my son ( secondary infertility). For years the only symptom of Endo was very heavy bleeding during my period and bleeding after intercourse. Then two years ago I started having moderate pain which progressively got worse to the point I couldn't walk at times. Saw Seckins 8/2021 and during the ultrasound they found a large chocolate cyst (ovarian endometrioma) on my left ovary and it was an easy diagnosis for Endo. I had surgery 6 weeks later and recovered relatively quickly, however 6 months later my pain started ticking back up. Now I am at the point where I have nearly daily pain and having pain with bowel moments. I met with Goldstein for a follow up last month and she said it is possible I would need surgery again as my chocolate cyst had ruptured and could of lead to new Endo growing. So I will be going back for surgery this spring but have decided to try Naomi Whittaker In PA as she Is a Napro surgeon and I have had a few friends who have surgery with her and been very pleased with the results. If a specific surgeon is going to sink you financially I would advise against it, I think Seckins, Goldstein and Chu are all great at their jobs but for some reason my body is still struggling.
I freaking hate endo. I had my first lap with Seckins in the fall of 2021 and I had deep endo, a ruptured chocolate cyst, so it was severe and widespread. My pain never fully went away and less than a year later I had bladder pain. It wasn’t every day at the time but it has continuously gotten worse.I am now 2 years out and I am in chronic pain daily with bladder and bowel movements and well as a stabbing feeling. I was told last year that endo can grow back quickly if you had a severe stage, it just a matter of deciding if you can tolerate the pain or if you need to go back for another lap.
I just met with Seckins and he recommends surgery in the coming month, I have debilitating bladder and bowel symptoms. Imaging did not show anything but he said my symptoms and how tender I was during the internal ultrasound confirmed it was endo. I had a ruptured endometrioma and deep endo as well as endo on my diaphragm ( last surgery) so I was a more severe case unfortunately. He recommended a hysterectomy during our last visit as he said with serious cases women may need surgery every 1-2 years. I will be booking surgery on Monday and will not do a hysterectomy as I am only 30 and not ready to go through early menopause.
My pain 2-3 years ago was sporadic and I would have never guessed I had endo, my friend who had seen Seckins and had surgery with him recommend him as I had random pain and was struggling with secondary infertility. On my ultrasound it showed a large chocolate cyst and thick endometrial lining. Seckins was able to confirm endo off of the cyst.But in the past year my bladder and bowel pain has kicked up to debilitating levels. I have a list of my most common symptoms underneath for you. The past 6 months It has been chronic daily pain, where a year ago it was once a month. Endo flare ups are also quite common so sometimes certain months are worse than others.
Frequent urination
Urinary urgency
Pain with full bladder
Difficulty emptying bladder
Stabbing pain in bladder + bowels
Feels like Velcro being ripped off on my pelvis during monthly + ovulation
Inability to walk ( feels frozen)
Throbbing Pelvic pain
Stinging urination
Bleeding throughout month
Back aches
Constipation
Bloating
Nausea
Heavy periods
Clots with period
Haha I did the exact same thing as you, I would minimize or talk myself out of how bad it really was. Surgery truly was not bad at all, I had a c section with my son and that was a much harder recovery than the laparoscopic surgery with Seckins. I was back to my normal self by week 3 with no pain whatsoever. I would definitely recommend talking to a endo specialist if possible, looking back if I had listened to my body sooner and had not downplayed the pain for so long I may not of had a ruptured cyst that spread endo everywhere and had deep infiltrating endo which increases my chances of having reoccurring pain and surgery. I am hopeful surgery will greatly reduce the pain as it did with my first surgery, and hopefully I get longer relief. Seckins is 20k for surgery and that does not include the hospital bill, so it is expensive but we have an amazing health share plan that will cover it all.
I have Adenomyosis as well and my surgeon (Seckins) recommends a hysterectomy because it causes daily pain with urinary symptoms, and pelvic pain. What were some of the drawbacks of a hysterectomy? I am only 30 and I want to be certain a hysterectomy is worth it as you can’t undo it
Hello! Sorry for the late reply.
I had my second surgery with Seckins and Chu in March and I did have deep infiltrating endo on my bladder and cul de sac. For some reason my body likes to keep creating endo at record speed. I was also diagnosed with stage 3 diffuse adenomyosis which is interesting because I tested negative for it 2 years prior during my 1st surgery. So Seckins recommends my next surgery be a hysterectomy and getting my endo cleaned out again.
This is just my personal experience, I have many friends who have been one and done when it comes to surgery. Praying it is this way for you!
Hey there, so I ended up doing
surgery with Seckins again. But I have multiple friends who have gone with dr. Whittaker and loved her. My insurance changed so my next surgery (hysterectomy unfortunately due to severe Adeno) will be with Whitaker
I had surgery for endo with Dr. Seckins three years ago and they found I had stage 4 DIE endo with a ruptured endometrioma. Fast forward one year and the pain returned but in the bladder/bowels. I had another surgery with him last year and since then the pain is non existent, at least when it comes to endo. I was diagnosed with diffuse Adenomyosis as well and had been bleeding everyday since August. I took medication for it but it only seemed to aggravate the pain and bleeding. Since stopping everything in November my body has been pain free in years! So take heart! there is hope
Patient 16Had SurgeryMixed13 postsComplicationpelvic MRI with contrastchest CT with contrastchest X-ray
“Patient had multiple pre-op imaging and workup. Surgery was scheduled and attempted but aborted due to a life-threatening allergic reaction to a medication used during the procedure. Patient spent $30,000 and had to plan a second attempt. Despite the traumatic experience, patient continues to recommend Seckin and excision specialists generally. I spent $30,000 for Dr. seckin in NY and I have to go back and try again. I feel traumatized. My surgery didn't even start before my blood pressure dropp”
Reported complications: severe allergic reaction to anesthesia medication, blood pressure dropped to zero, 2 days in ICU, surgery aborted before incision
r/r/EndoApr 5, 2024+5 pts
Dr. Seckin endo center! And I’ve had MRI, blood work, TV, Pelvic MRI, chest xray, chest CT all came back normal
I am currently seeing Dr Seckin in NYC. I know that the cost can be out of reach for some and I acknowledge my privilege with that piece. If you have the means and resources, I recommend seeing a endo specialist in deep infiltrating endo that does excision surgery. Not a regular OBGYN. If you can. I completely understand if it is not accessible.
I am currently seeing dr. Seckin in New York who did bindi Irwin’s surgery. They read my pelvic MRI with contrast, and chest CT with contrast and saw what no other idiot OBGYN could. My surgery is in 5 days, suspected endo stage 2-3. Please see an excision specialist if you want surgery. Do not go to your regular OB that “SAYS” they specialize in endo because they know literally nothing and will gaslight you. Ablation causes further scarring. Don’t go to them go to a serious person. Too many woman get the wrong surgery and have to do it for years over and over.
I don’t have anxiety about going into the surgery itself because I’ve been under before for a nose job and it was the deepest sleep you’ll ever get haha. I’m more nervous about if it will grow back or not and how my pain will be after I’m done. I’m stage 2-3 right now and I’m basically immobile due to sciatica and I’m in a wheelchair from the pain. I’m seeing Dr Seckin in NYC I flew in across the country, I’m not really anxious as much as I am curious and I have just been telling myself to “lock in” and be the cheerleader I need that only I can be for myself. You can do this because being in pain is way harder than doing the surgery.
I almost died during my lap
I almost died during my lap
Hey everyone,
It’s been two weeks since I almost died during my lap surgery. I was allergic to a medication used during it that I had never taken before. They told me it happens to every 1 in 500,000 people. I spent two days in the ICU and they didn’t even make a cut in me. I feel devastated. I’m grateful I’m alive but I feel sick over how frustrating this was. I spent $30,000 for Dr. seckin in NY and I have to go back and try again. I feel traumatized. My surgery didn’t even start before my blood pressure dropped to zero and I needed 10 doctors to save my life. Fuck this.
Patient 15Had SurgeryPositive13 postsablation (prior, 2018 — left most endo, traumatic experience)excision surgery with Dr. Seckin (3.5-4.5 hour, bowel surgery, left ovary and tube removed, appendix removed, uterus repositioned)
“Patient woke from surgery with no pain (without narcotics), describing instant improvement. Left ovary and tube removed, appendix removed, uterus repositioned. Bowel nodule (2cm on sigmoid colon) removed without resection. By day 2 post-op, only soreness managed with Tylenol. Doctor described the surgical field as 'a mess' but stated it was completely cleared. Patient credits the minimal recovery pain entirely to Seckin's technique, contrasting sharply with her traumatic 2018 ablation experience”
r/r/endometriosisJan 25, 2023+2 pts
This is so comforting.
My last surgery was an absolute nightmare.
I woke up not being able to breathe from how much gas they left in my body, and they refused to give me oxygen. They just kept saying “just take small sips of air”… how’s that for trauma!
I am having surgery with Dr. Seckin in NYC.. I just met with him last week and was absolutely BLOWN away by his expertise and passion for treating this BEAST of a disease.
I’m just super nervous because I know anything involving the rectum, colon and intestines is a higher risk surgery so if course my mind is spiraling.
Recovery from the last surgery wa so retry rough. I had two 10mm emdometriomas removed from each ovary and some ablation done but overall he left most of the endo, which has now gotten so much worse.
I’m so sorry you’re going through this and I’m even more sorry you couldn’t have the surgery with Dr. Vidali he’s one of the best. Im heartbroken for you. It was like your new life was just within your reach and taken away. I’m having surgery with Dr. Seckin in NYC and there’s no payment plan option either. I’ve had to borrow from my 401k while also using a lawyer to fight my health insurance for refusing to cover the surgery.
I will say I’ve had pelvic therapy before, and I promise you it is not at all what it sounds like. It is very gentle. The providers who do this are hyper aware of our pain. Have you ever heard of Mercier therapy as well?
A week away from excision. Mixed emotions.. anxiety disorder is an issue!
A week away from excision. Mixed emotions.. anxiety disorder is an issue!
I’ve read countless posts on here with the same title…Now here is mine. 🤣I have excision surgery with Dr. Seckin and his team in NYC next Friday. I have kissing ovaries, endometriomas, bowel involvement, a left hematosalpyx and god knows what else. I’m a mess.
I have been through quite the struggle mentally and physically in the past 6months.
I also took up what has seemed like a second full time job fighting with my disgusting health care system that won’t cover him as in-network. Most excision surgeons are out of network because they are essentially paid penny’s to the dollar for their high expertise. It’s like paying a NASA scientist a car mechanic salary.
I’m still appealing the case with a lawyer, and intend to keep fighting until I am reimbursed.
I have so many emotions and so many fears and worries and just want to be on the other side of this. I’ve been working really hard with my therapist to imagine positive outcomes. My greatest fear is the general anesthesia which I’ve been under before but just find so terrifying and bizarre.
Any support and advise would be greatly appreciated. I’m making a notebook of all my favorite posts and conversations from this sub as a reminder that I’m not alone. Thank god for all of you and this collective of brave women. Only we know how brave we are. Others can say it, but they will never experience this terror.
Excision surgery for stage 4 endo tomorrow.. need support
Excision surgery for stage 4 endo tomorrow.. need support
Tomorrow is my big day.
I’m having surgery with Dr. Tamer Seckin in NYC. He is considered one of the best endo specialists in the world, and I feel very lucky to have found the means to have surgery with him as he is out of network with all insurance companies.
Of course, despite his expertise and reassurance, I’m still scared. Terrified actually. I also feel like I’m on the verge of getting sick. My right ear has been popping and my glands in my neck are swollen.
I’ve got so many worries and I just want to be on the other side of this.
Hello from the otherrrr siiiiiiiiide!!!
Hello from the otherrrr siiiiiiiiide!!!
Dearest endo sisters: here is my love letter to you all.
Today, I underwent a 3.5 hour excision surgery with Dr. Tamer Seckin at Lennox Hill hospital in NYC. As I have noted in a few other posts, I made a hefty withdrawal from my 401k for this surgery. I DO NOT REGRET A SINGLE DIME SPENT. Say what you will about his billing and high consultation rates.. YOU GET WHAT YOU PAY FOR.
Imagine the second upon waking from surgery and feeling instantly better. Imagine feeling NO PAIN after you wake up from a MAJOR surgery!!!!! NONE. Imagine, that compared to how you’ve felt day to day that you feel better in a hospital bed then you did curled up in your own bed with your heating pad..(and I note,this is without narcotic pain management!!!!)
My experience in the last 12 hours has been nothing less than outstanding. The staff at Lennox hill is comprised of a team of actual angels. There has not been one bitter nurse or attendant.. from the hospital parking to check in, to the team in my OR… ALL ANGELS.
Before my surgery, Dr. Seckin came over to me and gave me the biggest hug and said… you need this.. you’re going to do great. 😭
During my surgery, my left ovary and left tube were removed (ovary was destroyed..and I knew it). He also removed my appendix as I was on the verge of appendicitis!!!! Fucking wild. He came out and told my mom and my husband that it was “a mess” in there.. and that he polished me right up. He also repositioned my uterus as it was retroverted and probably causing all my horrendous back pain! I also had a bowel surgeon present as I had a 2cm endo nodule growing into my sigmoid colon. Before surgery he explained he may have to do a resection..but it wasn’t needed!
Pain is being treated with non-narcotic pain meds, extra strength Tylenol and Toradol.
M
I’m sending you this post with so much love my heart hurts. This community has helped me through the scariest and toughest time of my life. You have been a group of Perfect strangers who have lifted me up when no one else in my life could.
I want to stress that my first lap (2018) was THE WORST experience of my entire life.
It was with a so-called “endo specialist” who was also an RE. From beginning to end, the experience traumatized me.
I AM BEGGING YOU.. DO NOT COMPROMISE YOUR LIFE WITH SOMEONE WHO IS NOT AN EXPERT.
I learned the hard way, and it is now my life’s mission to aid and educate anyone I can on the importance of self-advocacy and research to find the right specialist.
All my love to every single one of you fighting the good fight. I share in your heartaches and I thought of all of you before my surgery. It made me feel invincible imagining a team of warriors going in to the trenches with me.
Remember, it is through our suffering that we will help others after us.. and that is a gift.
My hope is for you to see one soon. You have to fight and you have to be willing to make some really big sacrifices for yourself. I see a lot of people on here complaining about the cost of things like this. Yes is really and truly is awful but so is not being able to live your life. I’ve worked very hard at my career and was able to access money from my 401k.
The lack of endo coverage is just another extreme devastation to all of us as women. I pay thousands into my health coverage for absolutely nothing.
Can’t wait for them to get my out of network bill from Dr. Seckin.. and I hope he sues them.
Everyone on here deserves some good news for a change and I’m glad I could be the one to give it.
I realize how lucky I am and I wish the same for everyone else.
Just wanted to give everyone an update here:
I’m almost 24 hours post op.
My pain is minimal with just slight soreness that is being managed with extra strength Tylenol and toradol!
I’ve managed to have a bowel movement already and THERE WAS NO PAIN regardless of my bowel surgery!!!
Perhaps the best part of today is that Dr. Seckin came to the hospital to see me despite saying he wasn’t going to be here today. I was in tears.
He is an absolute Angel of a man who REALLY and truly has devoted his entire life to our cause.
I’m not sure if you’re familiar with the endo health crisis, but my insurance and most others don’t consider this type of surgery to be necessary nor do they consider the surgery an emergency, when it was in fact both of those things. They also do not recognize the skill of excision as any different from ablation or coagulation.
Dr. Seckin is an out of network provider, therefore my surgery is technically covered by my out-of-network benefits, which are ASTRONOMICAL and actual robbery considering the amount of money I put in for health care.
I tried to get a GAP exception, asking insurance to cover him as in-network for this one time…and they’ve declined twice. I’m now working with a lawyer.
Hi!
So day 2, I’m just experiencing soreness! And I’m only taking extra strength Tylenol!!! Can you believe it!? I can’t.
I truly know that this recovery is SOLEY due to the caliber of Dr. Seckin’s technique during surgery.
The amount of excision performed with dr. Seckin in comparison to my last surgery for kissing ovaries and endometriomas was extensice, however the first surgery had me on 3 weeks worth of narcotic pain management!
There is no comparison to any other specialist in my opinion. Dr. Seckin BREATHES this disease.
While this has been a financial set back, it will enable me to make strides in my life that I haven’t been able to take. I believe paying for the most excellent care is worth it.
We all deserve this.
Just had surgery with Dr. Seckin.
I’ll keep it short : you get what you pay for. He’s out of network for a reason.
I’ve never met a more compassionate , loving doctor. He changed my life.
I took out a withdrawal from my 401k for the surgery and I don’t regret it at all.
Of course! Dr. Seckin in NYC.
You’ll read plenty on here about his very high surgical rates, but as I said in an older post, you get what you pay for if you want the best of the best, and that is what he is. I realize many people don’t have the funds to do this. I borrowed from my 401k. It was the greatest gift I’ve ever given to myself. I would pay it all over again.
Wooof!
You’ve been through ALOT!!!!
If you’re interested in seeing a specialist (out of network with all insurances) Dr. Tamer Seckin is the best of the best. I just had a 4.5 hour excision surgery, most of my endo was bowel and he looked me right in the face and said it was COMPLETELY GONE. I believe him.
Another option is his colleague, Dr. Goldstein who just started her own practice. I never met her but I’ve heard nothing but wonderful things about her, especially her bedside manner.
Dr. Seckin works with a colorectal surgeon. The plan was for him to always be in the OR with him. I’m not sure how to answer the second question as I don’t know if my uterus has moved? If you’re asking if it was repositioned during survey than yes. It was.
Patient 18Had SurgeryPositive11 postsfirst laparoscopy (ablation, 2018, botched)second laparoscopy (excision, with Dr. Seckin and Dr. Chu)c-section (first pregnancy)
“Patient had excision surgery with Dr. Seckin and Dr. Chu and reports feeling relief almost immediately upon waking. Stage 4 endo found everywhere despite all prior tests being normal. They removed endo from bladder, bowel, rectum, intestines, spine, sciatic nerve, appendix, and fallopian tube. They video the entire surgery, use appropriate post-op medications (no oxycodone), and do not push unnecessary post-surgical drugs. Patient describes surgery as life-changing and contrasts it sharply with ”
r/r/endometriosisJul 29, 2023+1 pts
I would recommend surgery, with the right surgeon. The first surgeon I went to messed me up so much worse by not removing the endo properly and putting an IUD in at surgery I was basically disabled for 10 months. Then I did manage to get pregnant, delivery via c section, go downhill again and had a second surgery with a new surgeon (dr. Seckin and dr. Chu in NYC) and the ENTIRE process was so much better and I woke up from the surgery already feeling relief. They remove endo the right way, video the entire surgery for proof after, give you the right drugs to recover (no oxy!) and I was able to put pants on within a week of surgery. My first surgery I couldn’t keep pants on or zippered for 3 months. It was torture
Forget fertility - the endo will get worse along with quality of life and increased cancer risk (my mom had ovarian cancer which is now linked to endo) so removing it properly and then going on a progesterone only pill (I’m in slynd) helps keep it at bay. Or having your tubes or uterus removed then you don’t need the meds (which is my next step).
My first lap was ablation with a dr who missed the majority of the endo, said I had stage 1. My second was w a diff dr who did excision, and removed endo from everywhere along with removing a tube and appendix. He videoed the full surgery for proof. Obvi not sure how your first lap went but if you decide to go for another maybe look around to see if there’s a diff surgeon to go to.
I recommend Dr. Seckin and Dr. Chu in NYC. They actually don’t jump to put patients on drugs like this post surgery bc they find since they got it all most patients don’t need them
“The doctor will see you now” was written by dr. Seckin who did my second surgery in 2021 (first with another Dr. in 2018 was horrible). Dr. Seckin, Dr. Chu and the entire office in NYC are amazing. The book is good, just not a “fun” read since while reading it you’re like… shit
This all happened to me. It’s INSANE. I’m sorry this is your experience also. If you are able to get to NYC and see Dr. Seckin/Dr. Chu they will believe you. You will feel more seen then you ever have before. Call the office and talk to them and explain your situation.
Yes 100000% be certain it’s excision only and no ablation. I know it’s exhausting to feel like you have to figure out another thing but I made the mistake to just go along with the first doctor I met with who does ablation, and I came out worse then I went in. Messed me up pretty bad and took forever to recover. Couldn’t wear tight pants for months. 0 relief felt. Actually felt even crazier and confused. Then 3 years later I got a second surgery- excision only- done by Dr. Seckin and Dr. Chu, and legit felt relief almost immediately. Such a better process —- recovery post surgery with actual medication that works for inflammation and not just oxycodone. A lot of what they removed was also scar tissue and crazy adhesions from the previous ablation. Hang in there!
Yes that sounds positive so far. Dr. Seckin wrote a book “the doctor will see you now” reading that was helpful. Also his website gives you questions to review with your current doctor.
Are you able to get to New York? Dr. Seckin and Dr. Chu changed my life and 2 of my friends lives. They are top of their game, and are the backing for EndoFound.org. They will do surgery and video the entire thing so you can watch it anytime you want / if any pain comes back. Feel free to DM me if you want.
I’ve had every scan on earth, mri, CT scan ultrasounds, sonograms, every blood test, hormone test, lupus, rheumatoid arthritis, celiac, endoscopy, colonoscopy, everything. Every test has come back 100% perfect. I looked like an insane person. I went to Dr. Seckin & Dr. Chu in NYC and they believed me. After talking with a pain psychologist, they fast tracked me for an almost immediate surgery which they found stage 4 endo everywhere. Bladder, bowel, rectum, small and large intestines, spine, sciatic nerve, my left ovary was stuck to my colon, my left fallopian tube was basically dead, and they removed my appendix. The next day after surgery I could legit feel relief in my insides.
Three days before my surgery my primary care doctor called me and said, “i see you on my schedule for pre-op, why are you getting surgery? I’ve seen all your tests and everything is normal??”
Hang in there OP. Read Dr. Seckin’s book: The Doctor Will See You Now
It’s really hard. I have 2 friends with endo and we note all go to the same specialist group in nyc. When one of us gets tired the others try to motivate. We all have stage 4 but different symptoms and surgical outcomes. Our doctors are dr. Seckin and Dr. Chu. Look up endofound.org. They’re actually having a 2day patient conference to get correct information out there. If you want to watch it virtually I can post a discount code. In going in person today
Both my pregnancy’s have been so much better then the day to day of endo issues. I have stage 4 deep infiltrating endometriosis and have had 2 surgeries since 2018. First trimester was rough with being exhausted all the time but now in my second trimester I’m doing great. It is really eye opening to see how much the hormonal fluctuations affect my sleep, pain, brain, eating, hunger, digestion and anxiety. And being able to wear pants. I will say after my first born (c section) I went downhill really fast at 6 months post partum and was in a lot of pain. I had surgery that helped me feel much better and I got pregnant again 5 years later. A lot of it was scar tissue post c section but also new endo growth. So I hope that I don’t have the same outcome after this delivery.
When not pregnant I am on SLYND birth control 24/7 365 but still so many fluctuations. Highly recommend SLYND though.
Going to the right doctor makes a big difference. I know a girl who has had 11 endometriosis surgeries ending with a hysterectomy- fertility drs doing ablation surgery, not an endometriosis specialist doing excision. Dr. Chu and Dr. Seckin in nyc changed my life after my second surgery.
Come to NYC and see Dr. Seckin and Dr. Chu. They will help you. Myself and 2 friends have had surgery with them after having botched treatment from another Dr. I had trouble walking certain days and hd endo on my spine and sciatic nerve DM me if you want to talk
“Patient met Dr Seckin at pre-op appointment. Surgery performed (patient says 'surgery is Friday' in one post, and post-surgery describes great experience). Seckin offers traditional or robotic laparoscopy, prefers traditional. Patient describes him as meticulous with great bedside manner, a little eccentric but very kind. Reports he performs some discounted/free surgeries for those who cannot afford care. Dr Tamer Seckin was my doctor and he told me that he does a few surgeries a year for free f”
r/r/endometriosisAug 19, 2022+1 pts
Hi!! It is so good to see your comment about Dr Seckin and Samaritan Ministries! I am contemplating whether to go ahead with surgery even though it might obliterate my husband and I’s finances. I can’t function anymore with my endometriosis and we want kids in the next few years but I am not able to conceive with the current state of my endo.
We are Christians and looked into Samaritans Ministry but are a bit confused on how it works. Do you pay a membership that contributes to others’ medical bills in order to receive money towards your own?
We live in New York and I had a great consultation with Dr Goldstein but we’re nervous to decide on surgery if it means we have no savings left.
Would love to hear a little more about how Samaritans Ministry helped you in your situation! Thanks for all the info you shared so far - it is so helpful!
Any Dr. Seckin patients?
Any Dr. Seckin patients?
Having a hard time deciding whether or not to move forward with surgery with Dr Seckin and Dr Goldstein. I had an amazing appointment with Dr Goldstein but I’m worried about the cost.
I am in my mid twenties and would be using a large chunk of my emergency fund and savings to fund this surgery. My appendix is being impacted by the endo now too and I can’t imagine putting off surgery much longer.
Can anyone who has met with Seckin’s office or had surgery by them give advice or insight? Thanks in advance!
Thank you so much for this! It is so good to hear you had a great experience with them! I heard a surgery cost range from another Seckin patient on Reddit between $20,000 and $25,000.
Was the 10k surgeon fee after insurance or before? Do you think it cost less than 20k because you are young and were likely to have less complications?
Thanks for your help - I am so anxious about all this but really feel confident about Dr Goldstein and want to have surgery with her! It helps to hear all this!
Hey there! Would love to hear whatever you know/heard about Seckin that makes you say this. I want to be sure I have a full picture before making a decision.
No that makes total sense! That’s a good idea! It absolutely does help to hear your thoughts on this! It’s so good to not feel totally alone or crazy.
I feel like a total idiot because I didn’t understand how everything would work out of pocket with my deductible and thought I just can’t be charged for anything above the deductible amount. 🤦🏼♀️
So I realized that’s not the case AFTER I already met with Dr Goldstein from Seckins office. But I really like her and trust her so I feel like I want to see what she thinks once she reviews my MRI and lab results. So I’ve already paid the hefty consultation fee but haven’t paid for anything else yet.
My MRI just came back normal (according to the radiologist) but Dr Goldstein hasn’t seen it yet. I was really hoping the MRI would show something wrong so I’d feel more justified in going down this path. I guess we’ll see what she says!
I feel like I’m on a runaway train a little bit because I got the ball rolling towards a lap with Seckin before realizing just how expensive it was going to be. But I’ll feel really relieved and probably a lot better about my decision if they do find endo in my lap!
Always happy to talk through what my experiences are with Seckins office going forward and once I get a cost estimate for the surgery I’ll let you know!!! Let me know how Dr Vidali is!!
So glad you have an amazing doctor! Who is your specialist? I am seeing Dr Goldstein (from Seckin Endometriosis Center) for my surgery next month and wondered if by some coincidence i have the same surgeon as you! She’s incredible!
I’m nervous about the same thing but just remind yourself that 1 in 10 women do have endometriosis (if not more!) and so it’s very common! And regardless of the outcome, you’ll be equipped with so much more information about your body. I’m sure you’re not making anything up though 💖 You wouldn’t have come this far if it didn’t affect your life! Trust your gut!
There’s no way to know for sure whether you have it or not without a laparoscopy so it’s a good health investment even if you don’t have endo. But it sounds like you do!
Best of luck this week! It’ll all go smoothly and you’ll feel so so proud of yourself for pushing through and advocating for your health. Sending lots of love!
Lap in just over a week; what questions would you ask during pre op?
Lap in just over a week; what questions would you ask during pre op?
I am feeling pretty nervous and worried I won’t be prepared well enough for the laparoscopy & recovery. So I am hoping to crowd source some insight on what’s especially important to go over during the pre op appointment!
I’d love to know what questions to ask, what I should expect the day of surgery and in recovery, and anything you wish you had talked with your surgeon about prior to the lap.
Just in case it’s helpful context, I’m having excision surgery with the Seckin Endometriosis Center.
Thanks so much everyone! I appreciate all of your help 💖
Hi!!! I just came out of my pre op appointment and met with Dr Seckin this time (usually I’ve seen Dr Goldstein)!
He lets you choose if you want robotic or traditional laparoscopy surgery but he seems to prefer traditional because the scars are smaller and he likes to be able to be right beside the patient so in case anything goes wrong he’s right there versus having to scrub in after watching the robot on a screen.
That’s what I understood at least! :)
Both he and Dr Goldstein are very very nice! I haven’t met the other doctor at their practice but I’m sure she’s great too.
I think he will check whatever you ask him to! Did you meet with them already? Is your surgery Nov 17 or your first consultation?
Happy to talk through all of your questions too! I’ve had a great experience so far.
My surgery is Friday!
Dr Tamer Seckin was my doctor and he told me that he does a few surgeries a year for free for women who cannot afford it.
I’m sure if you call and get the front desk or billing people they might turn you down or not give you any information about unpaid surgeries/care but I believe it’s up to Dr Seckin’s discretion. I think you should write him a letter and mail it to the office addressed to him specifically. I’m sure he would then consider your case. He truly is the best.
I am also 25 and struggling financially. I did end up paying for the surgery because a family member of mine passed away early last year and the money they left for my family was just enough to cover the surgery. It ended up being the best decision but of course, I was extremely fortunate and privileged to have come into that amount of money just as my endometriosis had become debilitating. I am very grateful that I was given the opportunity and resources to see Dr Seckin and I know it is so rare that what I needed fell into my lap. I am so sorry you’re going through this. The medical system is so unfair in this country and women’s health concerns are severely undervalued and neglected. I am so so sorry that you’re having to deal with endometriosis and not know when you’ll be able to get any relief. It is such an isolating and horrible disease. You deserve care and treatment.
Dr Seckin told me he would never send away someone who needed surgery from him (he is arguably the best in the field) because of resources. I highly recommend you reach out to him directly.
Let me know if you have any questions!
I am so sorry you went through this! I had a really great experience with Dr Seckin and his team and he had mentioned to me before that he has performed discounted or free surgeries just to fix horrible situations like the one you described. If I were you, I’d reach out to him and tell him about your experience with these two doctors. He may offer to waive his consult fee and see you and figure out a solution. He does have an ego and is a little eccentric but he is very kind, great bedside manner and truly so meticulous. I’d highly recommend having him take a look because he can help fix botched laparoscopies.
Patient 21Had SurgeryPositive8 postsexcision surgery (twice)c-section (prior)ovary suspension to abdominal wall (temporary, during surgery)
“Had surgery twice with Dr. Seckin, both times covered via gap exception saving ~$25k. First surgery involved ovary suspension to abdominal wall. Post-op pain was minimal (only one dose of Dilaudid in hospital, Tylenol at home). Skin cyst removal caused more soreness than endo surgery itself. Nurses described as super nice. Patient advocates strongly for Dr. Seckin and his surgical skill. Now doing 'amazing'. The thing about Seckin is that he says what he thinks. He doesn't sell BS like other doc”
r/r/endometriosisOct 22, 2022+1 pts
How far dr Seckin is booking now? How many weeks from initial consult to surgery?
Dr Seckin surgery
Dr Seckin surgery
Please share your experience on everything: interaction with the office, the doctor, your hospital stay, finally how you feel now.
Well I never knew my stage because my previous surgeon who was also a nook doc said it doesn't matter. He was actually right. But I would say I was somehow in the middle.
I'm not sure if it is your first surgery but when you wake up you will feel like sh#!@ Sometimes pain is better than nausea and shivering from anhestesia. I got shivering this time and it was not fun. I was sore when I woke up but it's hard to judge. Dr Seckin was nice to remove my cyst outside on the skin (nothing endo related) and I got 90% soreness with that. I also have a pretty high threshold of pain. After my c-section I only took one tylenol and with this surgery same story. I cannot tolerate NSAIDS so just got one dose of Dilaluid and that was it. At home I had no pain from incisions (only one day pain from stupid skin cyst)
Why they want to keep overninght? It depends on severity and what they see: in my case they temporarily suspended ovaries to abdominal wall and I had to lay flat for 6h not even raising my head. Please bring very long charger lol I live relatively close and wanted to go home so at 6 pm they cut the ovaries stitches (really felt better after) and removed catherer. But they won't let you out until you pee so that took another 3 hrs. I was home around 11 pm I would say....
Nurses were super nice and helpful and overall was good but going home same day means very long day and sometimes is easier to stay there.
The thing about Seckin is that he says what he thinks. He doesn't sell BS like other doctors, he doesn't have to. He is European and because of that we are all considered rude in this country lol But he is an amazing surgeon and a very kind man. He thought me how to stand up for myself and what's right and wrong.
Hello! I'm a Board Certified Patient Advocate and stage IV endometriosis patient living in NYC. I had succeffully covered the cost of my out of network surgeon for my endo excision ( dr, Seckin) via GAP EXCEPTION not once but twice! Please message me with any questions you may have! [www.thehealthcareredefined.com](http://www.thehealthcareredefined.com)
Have you considered any out of network specialists? I'm a a Patient Advocate who had 2 endo excicions with dr. Seckin. Both were covered via gap exception! I'm doing amazing now!
Please email us for guidance! Your goal is to have a surgery once and not multiple times which happens so often when not performed by true endo excision specialist! I’m a Board Certified Patient Advocate and endo warrior myself who can successfully guide you. I also offer guidance in terms of gap exception to cover the cost of out of network excision with dr. Seckin! I saved $25k by successfully using the gap exception to cover my surgery cost. Now I use this knowledge to help others! Leave me a msg at [www.thehealthcareredefined.com](http://www.thehealthcareredefined.com/)
“First excision (Sept 2021): woke feeling like a new person, zero pain post-op. Endo grew back within ~15 months, worse than before. Second surgery radical hysterectomy (Jan 2023): woke feeling dramatically better, high energy, pain-free. Out-of-network/private practice. Office staff described as 'a little chaotic.' Patient went home same day of hysterectomy surgery. I woke up feeling like a new person! I had zero pain besides gas stuff. I woke up a different woman. I'm amazed at how much energy ”
Reported complications: endo recurrence after first excision, COVID post-op (second surgery)
r/r/EndoOct 21, 2021+1 pts
I definitely don’t! I’m in New York City, and I saw Dr Seckin. He is out of pocket, which is the only downside. But so freaking worth it.
Dr Tamar Seckin. He is an amazing surgeon. The whole experience in the hospital was wonderful (his office staff is a little chaotic though).
He is private practice though…
I just had my second surgery (excision and radical hysterectomy) with Dr Seckin on Thursday.
I know he’s private practice and I’m very fortunate to see him. But he has my vote. 1000%
My intuition made me. :)
Long story short, I had an endometrioma rupture July of 2021 (owwwww). I wound up staying over night in Lenox Hill (I live in Manhattan) because docs were worried I would need surgery. I panicked because I didn’t want surgery then and there. I wanted to find a good endo specialist. I actually had previously sworn off any more laps unless it was a hysterectomy. But the docs there gave me two names. One went with insurance, one without. Of course, I chose the one that went with insurance. Or so I thought. 😂 I bought his book “The doctor will see you now” and it gave me goosebumps. I could see his personality and compassion through his writing.
I met him and we scheduled surgery, as soon as I could get in (9/21). I woke up feeling like a new person! I had zero pain besides gas stuff.
I didn’t go on birth control but I did start using herbs and acupuncture to fry and heal myself. And as much as those two modalities helped me, they were no match for my endo. I knew in July (probably April too…) that it had started growing back. I called and asked if I could get in with an appt and if I could get an MRI beforehand. I knew. I thought about surgery then, but something told me to wait.
In late November/early December, about 4 days before I was to see him for a follow up, I started getting excruciating back pain. Saw him, another MRI (this time with a blockage in my f tube). Went home for Christmas. Landed in the ER Christmas Eve with unbearable pain (I was ovulating). Came back to the city and saw him on 1/3. My MRI showed my endo grew back worse than what it was before last surgery. With my mom’s history of ovarian cancer, he gave me his recommendation: hysterectomy. He wanted to clean me out. Take everything - they were hoping to leave my cervix but they snatched that out too.
I’m childless but I knew that I could never be a good mother for any bio kids I were to have. I was so miserable every day. His recommendation knocked the breath out of me, but I said okay.
A few people asked me if I wanted a second opinion. Dr Seckin is the second opinion. And third, fourth, fifth, etc. He is truly remarkable at what he does.
I have complete faith in him. He knows what he is doing. I had my radical hysterectomy on 1/19/23. I woke up a different woman. I’m amazed at how much energy I have and how much pain I’m NOT in.
Post op - I went home the day of surgery. Surgery was at 7:30. I was home by 5:30pm. I was walking around very well that weekend. Both surgeries actually. But I’ve had a few issues since then - hi catching Covid for the first time, looking at you. 👀 That kinda knocked me on my feet for a bit… I still haven’t had my official post op appointment. Lol But I have been in contact with his office, and I do feel so so much better.
I just adore Dr Seckin, Dr Goldstein, and Dr Chu. The latter two joined him in his practice at different times.
I know I practically wrote a novel, but wanted to be thorough. Do you have any specific questions that I didn’t answer?
Yes, the excision surgery was with Seckin, but it was not my first.
It was my first excision, third lap overall.
No one knew what would happen with excision - at least for me. Two previous ablations apparently did nothing to help. But, I’m not surprised that my endo grew back quick. My mom, even less so. It may have gone differently if I gone on bc right after that excision. But, I spent about 15+ years on bc trying to fight it. I wanted a more natural approach this time around.
I can’t tell you what will happen to you. Though I wish I could look into a crystal ball. I do know, Seckin would take great care of you if you chose him/his team. Will this be your first excision? Your first endo surgery? Have you met with him?
“Seckin found endometriosis on diaphragm and pericardium. Used blue dye intraoperatively to visualize lesions. Did not remove pericardial endo during first surgery (no specialist present); second surgery planned. Patient recommends him. i recommend doctor seckin in NY, he found it on my diaphragm & pericardium. Doctor Seckin uses blue dye to see the endometriosis!”
r/r/endometriosisSep 10, 2024+1 pts
so I was experiencing extremely painful periods, specific pain on my left side of my pelvic region (i had a 6cm endometrioma) pain outside my period, painful sex, pain during bowel movements, bladder issues, I didn’t experience any chest pain or lung pains at all. I would have never excepted to hear that. It was diagnosed through laparoscopic surgery that I had done on friday through doctor seckin
my endometrioma was discovered through an ultrasound in april. my original doctor thought it was a normal cyst. fast forward to june i had another unltrasound where he told me it was an endometrioma. when i learned what endometriosis was, i looked around for specialists and found DR Seckin and his team. they ordered an MRI but the only thing that showed was the cyst. I honestly have no idea how they will monitor the lesion on my heart. I have a follow up with them the first week of december. I actually had an ultrasound of my heart done last year, due to having rheumatic fever when I was a child. The ultrasound showed nothing, but who knows if i did or didn’t have that lesion then.
i actually see doctor seckin! he is the one who found it on my diaphragm and pericardium. He did not remove it off of my pericardium due to not having a specialist in the room or something but will next surgery. its so hard finding research about both of these topics
Patient 25Had SurgeryPositive5 postsexcision surgery
“Life changed significantly for the better. No flare ups or problems since surgery (as of posting). High success rate noted for endo not returning. Dr. Seckin and his team honestly gave me my life back My life has changed significantly for the better. I take continuous BC and have had no flare ups or problems since then”
r/r/EndoNov 30, 2021+1 pts
I just had my excision surgery with Dr. Seckin about four weeks ago and I highly highly recommend him! Dr. Seckin is an expert in his field and the leading specialist in endometriosis surgery. My case was extremely complex and advanced for my age (I'm 22) with multiple organs involved and the beginnings of frozen pelvis, but he was able to go in and clean me out. Dr. Goldstein is so kind and caring and she assisted with my surgery. Dr. Chu is another one of the associates there who is also an expert in the field. Dr. Seckin and his team honestly gave me my life back, and his patients have an incredibly high success rate in endometriosis not returning. I really strongly recommend him and his team. I also suggest reading his book The Doctor Will See You Now; it is so validating and gave me a much better understanding of endo. If you have any questions, please feel free to message me! :) I struggle with anxiety too so I can definitely relate in a way. I hope this helps a bit!
I went to Dr. Seckin in October of 2021. I had a large endometrioma and endo everywhere. I was at the beginning stages of frozen pelvis, so it was really bad! I highly recommend him. My life has changed significantly for the better. I take continuous BC and have had no flare ups or problems since then
I love Dr. Goldstein. She’s really nice and gentle and a great person overall! My experience was all good. Recovery was a lot more difficult than I was expecting and that was because my case was so severe. I was in a good amount of pain for a few days after but nowhere near the endo pain. The only kind of bad experience I had was my overnight stay at Lennox hill hospital. I think they were understaffed. I didn’t feel well taken care of by the hospital staff. When I was discharged, I could hardly walk and they didn’t provide me with a wheelchair or anything, so I had to walk like 1/4 of a mile to get out of the stupid hospital and it was miserable. But every experience with Seckin and his office was positive