Dr. Serin Seckin

The appointment went great! For the first time, I felt heard. He knew what he was doing, he recognized endo through all my symptoms right away. He also performed the ultrasound himself and confirmed what organs (from what can be seen in an ultrasound) have the tissue. A month prior to that, I had the same intravaginal ultrasound at an ER because of pelvic pain and they couldn’t find anything. Now I’m in the process of scheduling my surgery. I could have done it that same week because his team is great and on top of everything. I had to delay it for personal reasons.

Oh man, I’m so sorry to hear that you’re only 17 and you’re having to navigate this. Yet, I’m also happy that your parents are hearing you out and trying to find ways to support you, because my issues started when I was 15 yo and my mom just said that “all women in our family have bad periods” and that was it. Things have been getting worse, I’m turning 30 this year, and I’m finally getting help that I was able to find on my own (laparoscopic surgery). I’d strongly suggest you showing your parents these messages and other useful material, so you all can be on the same page. Sadly, most family doctors and regular gynos don’t know much about effective endometriosis treatment. There are specific hormonal treatments (aside from the birth control pills) and there’s the surgery that is used to both diagnose and treat endometriosis. This is the doctor that will perform my surgery, and his website is full of information: https://drseckin.com/ (located in NYC). This other doctor’s website al

Hand-method deep excision surgery vs. Robotic excision surgery. Which one do you prefer? You can include in the comments why do you prefer one or the other, what you know to be best, or even your experience with one or the other (or both!). This is to help me decide whether to continue with the excision specialist I had in mind (Dr. Seckin in NYC), or to go with a local specialist in Florida, who uses the DaVinci robotic method. Mainly, for financial reasons. For context, Dr. Seckin suspects I have endo at least around my ovaries, outside my uterus, and on my bowels - I also think the rectum/Pouch of Douglas area, my bladder, and some nerves are affected (because of upper back pain). No endometriomas. Thank you 🙏🏼

Wow, that’s amazing, thank you for sharing! How are you feeling overall about the surgery? And big question- How did you handle the financial portion? That’s the part that has me (literally) loosing sleep right now. My surgery is scheduled for Nov 17th. I have met with Dr. Seckin twice, actually. I was very lucky that the first time I went there, he was covering for Dr. Goldstein, and the second time, I was supposed to meet with Dr. Chu only, buy he walked in later, and joined my appointment. It was my interactions with him and his expertise in recognizing my symptoms right away, as well as finding my painful spots through the ultrasound, that gave me the confidence that he could help me. Anyways, we can talk on DM! I’m really curious to hear your experience with the financial/insurance aspect.

Well, NYC is probably one of the few places in the US and in the world that has the most amount of doctors, including excision surgeons. So, I respect and appreciate the info on Nancy’s Nook, but it’s not gospel. It is literally her own personal standard- based on patients reviewing and describing their past experiences with surgeons. Still, better than not having any list. I’m getting surgery with a “non-Nook surgeon” in NYC, if you wanna call it that, Dr. Seckin. I will say, his office staff is a pain when it comes to billing and insurance. Other excision surgeons don’t even take insurance, so to each, their own. I have a feeling that the surgeons that work with the robot, do it to save time, and to have a better chance of being able to get paid by insurance. Imagine excising for six hours by hand, and not getting reimbursed at all vs. excising for 2 hours with the robot, and getting _some_ money (therefore, getting more patients than only the self-paid ones). But again, that’s j

So sorry to hear you’re going through this. I had a large cyst on my left ovary and it ended up being an endometrioma (a cyst created due to endometriosis tissue infiltrating the ovary). I had a horrible episode of intense pain back in April 2022, it lasted about 3 days. I felt nauseous, I could barely walk and no pain killer worked. I ended up going to the ER, they did a vaginal ultrasound and couldn’t identify anything 🙄🙄 They gave me morphine, which calmed the pain for about 2 hrs, and sent me home. I was also very scared about an ovarian torsion or cyst ruptured and the potential consequences. That’s how I finally ended up googling “endometriosis excision surgeon” and found Dr. Seckin in NYC. We went to my first appointment with him in May, and scheduled my surgery for November 2022. Both before and after the surgery, Dr. Seckin said that more than likely the cyst had partially ruptured back in April and leaked some of its content into my pelvic cavity, which created more endo le

Hey, just chiming in because I have personal experience. That doctor is the co-founder of the Endometriosis Foundation of America and a pioneer in his field, he has developed techniques to better identify endometriosis tissue (AcquaBlue technique), he has written books to create awareness, to educate patients and family members on the disease and to explain the importance of doing excision surgery… And he doesn’t tell his patients that surgery “cures endometriosis”. I know that because I got my surgery done with him a year ago in NYC and mine was deep, infiltrating, including bowel endometriosis, an endometrioma, my ureters were affected, my bladder, and my uterosacral muscles, as well. My uterus was adhered to my rectum and to my fallopian tubes. Dr. Seckin and his team did an outstanding surgery and then he gave me a post-operative appointment with full explanation of all the findings, he went through every surgery picture with me, clarified all my questions, and they even sent me th

Sure thing. Dr. Tamer Seckin, co-founder of the Endometriosis Foundation of America. Nobody referred me to him, I literally went on Google and out of desperation I search “best endometriosis specialist in the US”. Him, and another doctor in California came up. I saw his website, all the information related to endo… And it made sense to me. I also bought and read his book “The Doctor Will See You Now”, and it made even more sense. Everything pointed out that I had an endometrioma on my left side, but the ER doctors along with all the other 7 gynos I had seen, brushed it off. They said it was a functional cyst that would go away with the cycle (I kept hearing that for a year, and it wasn’t going away). Dr. Seckin and Dr. Chu (who works with him) were the first ones to confirm that it was indeed an endometrioma. They excised it and reconstructed my left side ovary. They also found and excised endo from many other organs, including intestines, rectum, pelvic ligaments, bladder, etc. My s

Google Dr. Tamer Seckin, his website has a lot of information on the surgery process (he was my surgeon). He also wrote a couple of books that are very helpful to fully understand endometriosis and to know what to look for when it comes to surgery. The one I read is called “The Doctor Will See You Now”.

Hey there. I had my surgery in 2022 with Dr. Seckin, excision. I’d like to chat with you about your experience if possible, is it okay to DM you? I was on the same boat as you and refused all hormonal bc post surgery, but now I’m having pain again, I did have an endometrioma before… And now my local gyno specialist is suggesting either the Kyleena IUD or a combined pill. I’m still struggling to make a choice. What are your updates, and did you end up going for any hormonal birth control? Thank you

This one hits incredibly hard for me… Thank you for posting. I also had surgery a little over 2 years ago, at the Lenox Hill hospital, with Dr. Seckin and Dr. Chu… And 36 lesions were found, a lot of organs reconstructed. And now the endo is back with a vengeance. We are still paying for my surgery. My eyes are watery.

There are excision surgeons in Australia. She may have chosen to go with one of the top USA surgeons, since the US leads the charge on research for this disease. Dr. Tamer Seckin is the co-founder of the Endometriosis Foundation of America. He has written books about endo, and has even developed a patented method to identify endo tissue during surgery (the aqua blue method). I chose him out of desperation one night after going to the ER for intense pain, being put on morphine and sent back home, because “there was nothing wrong with me”. I went on Google and literally put “best endometriosis surgeon in the US” and his name came up. I don’t have nearly as much money or resources as the Irvin family does, but things get scary with this disease.

I do still have my uterus, at least for now. I’m very sorry to hear you’re going through this… And I’m very puzzled as to why they would make you wait for two years, that’s cruel. Are you fully committed to continuing with that surgeon, or are you open to changing? Are they covered by your insurance? Just for reference, my surgery was done by Dr. Seckin, the co-founder of the Endometriosis Foundation of America. It sounds like your case is very complex, and that you deserve someone who’s very experienced. When a surgeon already says they don’t feel fully confident in treating you, instead of just winging it and going in… I respect that.

Hi! So my experience in Florida was very, very shitty and that’s why I ended up googling specialists and seeing that one in NYC. Before that, I had seen 8 gynos in the South Florida area (between Fort Lauderdale and Boca Raton) who called themselves specialist, but were not. So the MRI I got done was ordered by the NYC specialist, Dr. Seckin. They told me to choose a local imaging place (I’m pretty sure it was a franchise type of place, the ones that have multiple locations), and get the images on a CD. And that’s how we got it done. Before that MRI, I had a bunch of abdominal and vaginal ultrasounds with those “specialists”, that said nothing was found. One of my ovaries was also tethered to the back of my uterus, and my rectum was adhered to my uterus, I also had a bursting endometrioma, but they didn’t see any of it… So, yes, I really encourage you to look for an excision specialist. Now I see Dr. Frazzini Padilla at Cleveland Clinic for my maintenance/management, since my sur

I’m so sorry you’re going through this and I’m even more sorry you couldn’t have the surgery with Dr. Vidali he’s one of the best. Im heartbroken for you. It was like your new life was just within your reach and taken away. I’m having surgery with Dr. Seckin in NYC and there’s no payment plan option either. I’ve had to borrow from my 401k while also using a lawyer to fight my health insurance for refusing to cover the surgery. I will say I’ve had pelvic therapy before, and I promise you it is not at all what it sounds like. It is very gentle. The providers who do this are hyper aware of our pain. Have you ever heard of Mercier therapy as well?

Excision surgery for stage 4 endo tomorrow.. need support Tomorrow is my big day. I’m having surgery with Dr. Tamer Seckin in NYC. He is considered one of the best endo specialists in the world, and I feel very lucky to have found the means to have surgery with him as he is out of network with all insurance companies. Of course, despite his expertise and reassurance, I’m still scared. Terrified actually. I also feel like I’m on the verge of getting sick. My right ear has been popping and my glands in my neck are swollen. I’ve got so many worries and I just want to be on the other side of this.

Hello from the otherrrr siiiiiiiiide!!! Dearest endo sisters: here is my love letter to you all. Today, I underwent a 3.5 hour excision surgery with Dr. Tamer Seckin at Lennox Hill hospital in NYC. As I have noted in a few other posts, I made a hefty withdrawal from my 401k for this surgery. I DO NOT REGRET A SINGLE DIME SPENT. Say what you will about his billing and high consultation rates.. YOU GET WHAT YOU PAY FOR. Imagine the second upon waking from surgery and feeling instantly better. Imagine feeling NO PAIN after you wake up from a MAJOR surgery!!!!! NONE. Imagine, that compared to how you’ve felt day to day that you feel better in a hospital bed then you did curled up in your own bed with your heating pad..(and I note,this is without narcotic pain management!!!!) My experience in the last 12 hours has been nothing less than outstanding. The staff at Lennox hill is comprised of a team of actual angels. There has not been one bitter nurse or attendant.. from the hospital parking to check in, to the team in my OR… ALL ANGELS. Before my surgery, Dr. Seckin came over to me and gave me the biggest hug and said… you need this.. you’re going to do great. 😭 During my surgery, my left ovary and left tube were removed (ovary was destroyed..and I knew it). He also removed my appendix as I was on the verge of appendicitis!!!! Fucking wild. He came out and told my mom and my husband that it was “a mess” in there.. and that he polished me right up. He also repositioned my uterus as it was retroverted and probably causing all my horrendous back pain! I also had a bowel surgeon present as I had a 2cm endo nodule growing into my sigmoid colon. Before surgery he explained he may have to do a resection..but it wasn’t needed! Pain is being treated with non-narcotic pain meds, extra strength Tylenol and Toradol. M I’m sending you this post with so much love my heart hurts. This community has helped me through the scariest and toughest time of my life. You have been a gr

Just wanted to give everyone an update here: I’m almost 24 hours post op. My pain is minimal with just slight soreness that is being managed with extra strength Tylenol and toradol! I’ve managed to have a bowel movement already and THERE WAS NO PAIN regardless of my bowel surgery!!! Perhaps the best part of today is that Dr. Seckin came to the hospital to see me despite saying he wasn’t going to be here today. I was in tears. He is an absolute Angel of a man who REALLY and truly has devoted his entire life to our cause.

I’m not sure if you’re familiar with the endo health crisis, but my insurance and most others don’t consider this type of surgery to be necessary nor do they consider the surgery an emergency, when it was in fact both of those things. They also do not recognize the skill of excision as any different from ablation or coagulation. Dr. Seckin is an out of network provider, therefore my surgery is technically covered by my out-of-network benefits, which are ASTRONOMICAL and actual robbery considering the amount of money I put in for health care. I tried to get a GAP exception, asking insurance to cover him as in-network for this one time…and they’ve declined twice. I’m now working with a lawyer.

Hi! So day 2, I’m just experiencing soreness! And I’m only taking extra strength Tylenol!!! Can you believe it!? I can’t. I truly know that this recovery is SOLEY due to the caliber of Dr. Seckin’s technique during surgery. The amount of excision performed with dr. Seckin in comparison to my last surgery for kissing ovaries and endometriomas was extensice, however the first surgery had me on 3 weeks worth of narcotic pain management! There is no comparison to any other specialist in my opinion. Dr. Seckin BREATHES this disease. While this has been a financial set back, it will enable me to make strides in my life that I haven’t been able to take. I believe paying for the most excellent care is worth it. We all deserve this.

Of course! Dr. Seckin in NYC. You’ll read plenty on here about his very high surgical rates, but as I said in an older post, you get what you pay for if you want the best of the best, and that is what he is. I realize many people don’t have the funds to do this. I borrowed from my 401k. It was the greatest gift I’ve ever given to myself. I would pay it all over again.

Wooof! You’ve been through ALOT!!!! If you’re interested in seeing a specialist (out of network with all insurances) Dr. Tamer Seckin is the best of the best. I just had a 4.5 hour excision surgery, most of my endo was bowel and he looked me right in the face and said it was COMPLETELY GONE. I believe him. Another option is his colleague, Dr. Goldstein who just started her own practice. I never met her but I’ve heard nothing but wonderful things about her, especially her bedside manner.

I just had my surgery done with dr. Seckins & dr. Goldstein. They are both lovely and are excellent surgeons. I am 3 weeks post op and I forget I even had the surgery. So the healing is quick! It definitely is not cheap, the cost of Seckins was 20 grand. Also keep in mind that does not include the hospital bill and the anesthesia bill. However, i thought the cost was worth it as I did not want to be cut open repeatedly like so many of my friends because most surgeons still do not understand the disease.

I am 3 weeks post op from my laparoscopic surgery with dr. Seckin. The cost for me was $20,000. However that only covers the cost of seckin. The hospital (Lenox hill) was another $8,500 then the anesthesia bill was $6,000 on top of that. You will have a consultation with him prior to scheduling surgery which costs $850. The 20 grand you pay covers his surgical expertise and 2 post op follows ups to see how you are doing. Any vista beyond that you will pay for. They recommend I come back yearly to keep an eye on things but I will just use my doctor at home as she is wonderful and significantly more affordable.

I am feeling great, back to normal and have no pain whatsoever. For me I would say Seckins was worth it, we live in PA and it was only a 3 hour drive to his office. I have also had numerous close friends of mine have laparoscopic surgery for endo and they had to have multiple surgeries as the local drs were not prepared nor did they have thorough understanding of the disease. I have Health share through samaritan ministries and they reimbursed me for the entire cost of Seckins, the hospital bill and the anesthesia bill. The only local(ish) surgeon my dr recommended had over a year wait until his next opening and my pain was rapidly increasing so I did not want to wait that long.

Lenox hill is the worst hospital I have encountered. The nurses were rude and made snarky comments about dr. Seckins patients (which was me ! Lying in front of them in the post op room) and they were zero help at all. Thankfully I had one nice nurse but all the others were so unprofessional. Pre op was also odd for me, I was the first patient there at 6am and the last one to have blood taken and be prepped for the OR. Seckins came in to check on me and say hi before surgery only to find that no one had even started the process so he yelled at everyone in the room as I was supposed to be in the OR in 5 minutes.

Sorry just saw this question now. The first few days after surgery I was very very sore, I spent most of my days laying down or propped up at and angle on the bed/couch. I think it is doable to fly back home the day after surgery but I would definitely bring a pillow to cushion your tummy as bumps in the road were quite uncomfortable. Also dress in very loose clothing like a loose sundress and sweater/cardigan that is easy to get on and off. And just for transparency I am going back for surgery this spring as pain has kicked up quite a bit but it is unclear if Interstitial Cystitis is causing the pain or Endo in my bowel.

I am officially torn on Seckins. I am 29 and had my surgery when I was 28 after struggling to conceive after my son ( secondary infertility). For years the only symptom of Endo was very heavy bleeding during my period and bleeding after intercourse. Then two years ago I started having moderate pain which progressively got worse to the point I couldn't walk at times. Saw Seckins 8/2021 and during the ultrasound they found a large chocolate cyst (ovarian endometrioma) on my left ovary and it was an easy diagnosis for Endo. I had surgery 6 weeks later and recovered relatively quickly, however 6 months later my pain started ticking back up. Now I am at the point where I have nearly daily pain and having pain with bowel moments. I met with Goldstein for a follow up last month and she said it is possible I would need surgery again as my chocolate cyst had ruptured and could of lead to new Endo growing. So I will be going back for surgery this spring but have decided to try Naomi Whittaker In

I just met with Seckins and he recommends surgery in the coming month, I have debilitating bladder and bowel symptoms. Imaging did not show anything but he said my symptoms and how tender I was during the internal ultrasound confirmed it was endo. I had a ruptured endometrioma and deep endo as well as endo on my diaphragm ( last surgery) so I was a more severe case unfortunately. He recommended a hysterectomy during our last visit as he said with serious cases women may need surgery every 1-2 years. I will be booking surgery on Monday and will not do a hysterectomy as I am only 30 and not ready to go through early menopause.

My pain 2-3 years ago was sporadic and I would have never guessed I had endo, my friend who had seen Seckins and had surgery with him recommend him as I had random pain and was struggling with secondary infertility. On my ultrasound it showed a large chocolate cyst and thick endometrial lining. Seckins was able to confirm endo off of the cyst.But in the past year my bladder and bowel pain has kicked up to debilitating levels. I have a list of my most common symptoms underneath for you. The past 6 months It has been chronic daily pain, where a year ago it was once a month. Endo flare ups are also quite common so sometimes certain months are worse than others. Frequent urination Urinary urgency Pain with full bladder Difficulty emptying bladder Stabbing pain in bladder + bowels Feels like Velcro being ripped off on my pelvis during monthly + ovulation Inability to walk ( feels frozen) Throbbing Pelvic pain Stinging urination Bleeding throughout month Back ach

Haha I did the exact same thing as you, I would minimize or talk myself out of how bad it really was. Surgery truly was not bad at all, I had a c section with my son and that was a much harder recovery than the laparoscopic surgery with Seckins. I was back to my normal self by week 3 with no pain whatsoever. I would definitely recommend talking to a endo specialist if possible, looking back if I had listened to my body sooner and had not downplayed the pain for so long I may not of had a ruptured cyst that spread endo everywhere and had deep infiltrating endo which increases my chances of having reoccurring pain and surgery. I am hopeful surgery will greatly reduce the pain as it did with my first surgery, and hopefully I get longer relief. Seckins is 20k for surgery and that does not include the hospital bill, so it is expensive but we have an amazing health share plan that will cover it all.

Hello! Sorry for the late reply. I had my second surgery with Seckins and Chu in March and I did have deep infiltrating endo on my bladder and cul de sac. For some reason my body likes to keep creating endo at record speed. I was also diagnosed with stage 3 diffuse adenomyosis which is interesting because I tested negative for it 2 years prior during my 1st surgery. So Seckins recommends my next surgery be a hysterectomy and getting my endo cleaned out again. This is just my personal experience, I have many friends who have been one and done when it comes to surgery. Praying it is this way for you!

I would recommend surgery, with the right surgeon. The first surgeon I went to messed me up so much worse by not removing the endo properly and putting an IUD in at surgery I was basically disabled for 10 months. Then I did manage to get pregnant, delivery via c section, go downhill again and had a second surgery with a new surgeon (dr. Seckin and dr. Chu in NYC) and the ENTIRE process was so much better and I woke up from the surgery already feeling relief. They remove endo the right way, video the entire surgery for proof after, give you the right drugs to recover (no oxy!) and I was able to put pants on within a week of surgery. My first surgery I couldn’t keep pants on or zippered for 3 months. It was torture Forget fertility - the endo will get worse along with quality of life and increased cancer risk (my mom had ovarian cancer which is now linked to endo) so removing it properly and then going on a progesterone only pill (I’m in slynd) helps keep it at bay. Or having your tube

My first lap was ablation with a dr who missed the majority of the endo, said I had stage 1. My second was w a diff dr who did excision, and removed endo from everywhere along with removing a tube and appendix. He videoed the full surgery for proof. Obvi not sure how your first lap went but if you decide to go for another maybe look around to see if there’s a diff surgeon to go to. I recommend Dr. Seckin and Dr. Chu in NYC. They actually don’t jump to put patients on drugs like this post surgery bc they find since they got it all most patients don’t need them

Are you able to get to New York? Dr. Seckin and Dr. Chu changed my life and 2 of my friends lives. They are top of their game, and are the backing for EndoFound.org. They will do surgery and video the entire thing so you can watch it anytime you want / if any pain comes back. Feel free to DM me if you want.

I’ve had every scan on earth, mri, CT scan ultrasounds, sonograms, every blood test, hormone test, lupus, rheumatoid arthritis, celiac, endoscopy, colonoscopy, everything. Every test has come back 100% perfect. I looked like an insane person. I went to Dr. Seckin & Dr. Chu in NYC and they believed me. After talking with a pain psychologist, they fast tracked me for an almost immediate surgery which they found stage 4 endo everywhere. Bladder, bowel, rectum, small and large intestines, spine, sciatic nerve, my left ovary was stuck to my colon, my left fallopian tube was basically dead, and they removed my appendix. The next day after surgery I could legit feel relief in my insides. Three days before my surgery my primary care doctor called me and said, “i see you on my schedule for pre-op, why are you getting surgery? I’ve seen all your tests and everything is normal??” Hang in there OP. Read Dr. Seckin’s book: The Doctor Will See You Now

It’s really hard. I have 2 friends with endo and we note all go to the same specialist group in nyc. When one of us gets tired the others try to motivate. We all have stage 4 but different symptoms and surgical outcomes. Our doctors are dr. Seckin and Dr. Chu. Look up endofound.org. They’re actually having a 2day patient conference to get correct information out there. If you want to watch it virtually I can post a discount code. In going in person today

so I was experiencing extremely painful periods, specific pain on my left side of my pelvic region (i had a 6cm endometrioma) pain outside my period, painful sex, pain during bowel movements, bladder issues, I didn’t experience any chest pain or lung pains at all. I would have never excepted to hear that. It was diagnosed through laparoscopic surgery that I had done on friday through doctor seckin

Well I never knew my stage because my previous surgeon who was also a nook doc said it doesn't matter. He was actually right. But I would say I was somehow in the middle. I'm not sure if it is your first surgery but when you wake up you will feel like sh#!@ Sometimes pain is better than nausea and shivering from anhestesia. I got shivering this time and it was not fun. I was sore when I woke up but it's hard to judge. Dr Seckin was nice to remove my cyst outside on the skin (nothing endo related) and I got 90% soreness with that. I also have a pretty high threshold of pain. After my c-section I only took one tylenol and with this surgery same story. I cannot tolerate NSAIDS so just got one dose of Dilaluid and that was it. At home I had no pain from incisions (only one day pain from stupid skin cyst) Why they want to keep overninght? It depends on severity and what they see: in my case they temporarily suspended ovaries to abdominal wall and I had to lay flat for 6h not even raising

The thing about Seckin is that he says what he thinks. He doesn't sell BS like other doctors, he doesn't have to. He is European and because of that we are all considered rude in this country lol But he is an amazing surgeon and a very kind man. He thought me how to stand up for myself and what's right and wrong.

Hello! I'm a Board Certified Patient Advocate and stage IV endometriosis patient living in NYC. I had succeffully covered the cost of my out of network surgeon for my endo excision ( dr, Seckin) via GAP EXCEPTION not once but twice! Please message me with any questions you may have! [www.thehealthcareredefined.com](http://www.thehealthcareredefined.com)

Please email us for guidance! Your goal is to have a surgery once and not multiple times which happens so often when not performed by true endo excision specialist! I’m a Board Certified Patient Advocate and endo warrior myself who can successfully guide you. I also offer guidance in terms of gap exception to cover the cost of out of network excision with dr. Seckin! I saved $25k by successfully using the gap exception to cover my surgery cost. Now I use this knowledge to help others! Leave me a msg at [www.thehealthcareredefined.com](http://www.thehealthcareredefined.com/)

Looking for insight on Dr. Seckin vs Dr. Sinervo I had my zoom consultation today with Dr. Seckin’s office and while the reviews online seem positive, I feel a bit uneasy with the costs associated. When I made my appointment the woman told me they would bill insurance on my behalf, and today I was told there was possibly a policy change. Within two months. But the website remains unchanged regarding this information. I do have out-of-network coverage and am fully aware this will be expensive regardless, but this has left me a bit uncomfortable. I was also not able to get any good information on what kind of charges I could anticipate. I live in Georgia and have yet to reach out to Dr. Sinervo’s office but wanted more information on how your process went with either of these two doctors. I am a flight attendant so I’m not worried about traveling costs. I do have late stage endo that has spread throughout my abdominal cavity and into my chest, with it being found on my liver and diaphragm. I had a lap in November. I understand a single surgery from a specialist may not be realistic, but I want to choose the best one for my current situation. Would you recommend Dr. Sinervo or Dr. Seckin? How was your experience with your Dr? Any insight and positive advice is welcomed- I have been crying all day and am really hoping there’s a light at the end of this shitty tunnel 🥲

Looking for insight on Dr. Seckin vs Dr. Sinervo Posted to r/Endometriosis as well, but desperate for information I had my zoom consultation today with Dr. Seckin’s office and while the reviews online seem positive, I feel a bit uneasy with the costs associated. When I made my appointment the woman told me they would bill insurance on my behalf, and today I was told there was possibly a policy change. Within two months. But the website remains unchanged regarding this information. I do have out-of-network coverage and am fully aware this will be expensive regardless, but this has left me a bit uncomfortable. I was also not able to get any good information on what kind of charges I could anticipate. I live in Georgia and have yet to reach out to Dr. Sinervo’s office but wanted more information on how your process went with either of these two doctors. I am a flight attendant so I’m not worried about traveling costs. I do have late stage endo that has spread throughout my abdominal cavity and into my chest, with it being found on my liver and diaphragm. I had a lap in November. I understand a single surgery from a specialist may not be realistic, but I want to choose the best one for my current situation. Would you recommend Dr. Sinervo or Dr. Seckin? How was your experience with your Dr? Any insight and positive advice is welcomed- I have been crying all day and am really hoping there’s a light at the end of this shitty tunnel 🥲

I had my virtual consultation with them and booked solely because they told me they would file through insurance for everything after that consultation. Then during the consultation, I was told that was not the case and that there “may have been a policy change.” It had been a month between booking the appointment and the appointment, and the website information remained the same. After this I decided against moving forward with them as I felt they were not honest and would prefer not to chance being left tens of thousands of dollars in debt. They even told me that multiple patients started go fund mes so I could always try that. Just left a really bad taste in my mouth.

Hello! I am so sorry to hear about your friend’s current pain. This disease is really hell in earth and I truly hope she can find someone to help her. I reached out to Dr. Seckin and had a consultation. They charged me $800 for a zoom call under the guise that it would be the only charge outside of insurance, and afterward everything would be filed through insurance. This however was not true as they claimed there “may have been a policy change.” They encouraged me to start a go-fund-me and anticipated upwards of $70,000 so I did not move forward with them. Overall I had a very bad taste in my mouth from the way they conducted everything and would not recommend them unless you have that money to spend. I was referred to and did see Dr. King at the Cleveland clinic. They did an MRI with contrast and said they found no evidence of endometriosis. She wanted me to do pelvic floor therapy, and when I pushed for excision she didn’t seem too interested. They pushed my follow-up appointmen

I found an excision specialist in Sarasota that worked through insurance. Dr. Seckin’s office lied to me even with a paper trail. They also encouraged me to start a gofundme for at minimum $70,000. I’m glad you got answers and had a good experience with him- however personally I would never go back to him.

Well I actually see Dr. Seckin in NYC so I could get excision but am just waiting for the right time. I'm the only goalie on the women's ice hockey at my school and am a TA and research assistant so I can't afford to miss any time off right now. Luckily my endo has gotten way better since I'm off hormonal birth control but my periods are such a literal and figurative mess.

I'm seeing Dr. Seckin right now and am planning on doing my deep excision this summer scheduling permitting. His office is really nice and right near Central Park, scheduling was a breeze, and he actually and sat talked to me like I was a human instead of just a body with endo. I personally had no trouble and didn't have to wait terribly long (2 weeks) for an appointment and just took the train over from NJ. I can give an update after my excision but so far I am very pleased. Also, he will probably advise against Lupron (I brought it up and he told me it wasn't the greatest in my situation) but obviously it's a case by case thing. I know others have had issues in the past but I haven't run into any of those yet. And to clarify, I have Stage 1 endo, so I don't have a lot of it but sometimes it makes my life a living hell.

I mean I did get charged a pretty big fee for my initial visit (I know my insurance covered most of it but the price was kinda steep) BUT I think it's really worth it especially if you know you need an excision surgery. I also bought my mom who's a nurse with me so maybe that had some influence but I guess after being treated like a body with a disease as opposed to a real person I liked seeing him. I would call and at least see how the consult goes, nothing is set in stone.

The pill and ring made my crazy and the IUD can't sit right so my doctor recommended the Depo shot. What should I know before taking the shot? **tl;dr: Doctor recommended Depo after IUD got displaced. What should I know before deciding to take it?** Hey /r/Endo I just went to my general GYN after a visit with Dr. Seckin in NYC. I originally thought I would need to schedule the deep excision surgery with him since I do have endo and my symptoms were getting worse despite them getting briefly better after having an IUD inserted 8 months prior. What he learned from an MRI as well as ultrasound is that my uterus is sort of heart-shaped and thus not copacetic for an IUD. He recommended deep excision surgery and IUD replacement. I unfortunately cannot afford surgery at the moment so I opted instead to see my GYN to see what she could do. I also should mention that with the IUD, at least in the beginning before displacement, that it worked absolute wonders. 3 day periods, minimal cramps, and only one day of severe nausea were so much easier to handle than my usual 7-10 days, miss 1-3 days of work, puking the first day or two, and all of the other general shittiness that comes with this disease. Frankly I'm frustrated as all hell because I thought maybe, just maybe, that the IUD would work for me. The lack of estrogen in this birth control was working so well for my endo (unlike the pill and ring) that my GYN recommended the Depo shot. I have seen A LOT about Depo but I'd like the most recent responses from people who have experiences positive, negative, and everywhere inbetween. My GYN also recommended against the implant since I engage in contact and combat sports. Any advice about Depo would be really appreciated. I can stop by the pharmacy tonight and pick it up but I'd much rather be informed before I do.

My intuition made me. :) Long story short, I had an endometrioma rupture July of 2021 (owwwww). I wound up staying over night in Lenox Hill (I live in Manhattan) because docs were worried I would need surgery. I panicked because I didn’t want surgery then and there. I wanted to find a good endo specialist. I actually had previously sworn off any more laps unless it was a hysterectomy. But the docs there gave me two names. One went with insurance, one without. Of course, I chose the one that went with insurance. Or so I thought. 😂 I bought his book “The doctor will see you now” and it gave me goosebumps. I could see his personality and compassion through his writing. I met him and we scheduled surgery, as soon as I could get in (9/21). I woke up feeling like a new person! I had zero pain besides gas stuff. I didn’t go on birth control but I did start using herbs and acupuncture to fry and heal myself. And as much as those two modalities helped me, they were no match for my endo. I

I just had my excision surgery with Dr. Seckin about four weeks ago and I highly highly recommend him! Dr. Seckin is an expert in his field and the leading specialist in endometriosis surgery. My case was extremely complex and advanced for my age (I'm 22) with multiple organs involved and the beginnings of frozen pelvis, but he was able to go in and clean me out. Dr. Goldstein is so kind and caring and she assisted with my surgery. Dr. Chu is another one of the associates there who is also an expert in the field. Dr. Seckin and his team honestly gave me my life back, and his patients have an incredibly high success rate in endometriosis not returning. I really strongly recommend him and his team. I also suggest reading his book The Doctor Will See You Now; it is so validating and gave me a much better understanding of endo. If you have any questions, please feel free to message me! :) I struggle with anxiety too so I can definitely relate in a way. I hope this helps a bit!

I went to Dr. Seckin in October of 2021. I had a large endometrioma and endo everywhere. I was at the beginning stages of frozen pelvis, so it was really bad! I highly recommend him. My life has changed significantly for the better. I take continuous BC and have had no flare ups or problems since then