86%
Surgery 22 patients69%
Consult 1979%
Overall?
Dr. Ted Lee
New York, NY
NYU Langone Health
Data range: May 2018 - Feb 2026
45 patients 250 posts 45 users
22 surgery 19 consult 1 ongoing
28 positive 5 negative 5 neutral
Procedures Mentioned
hysterectomyexcisionexcision surgerypresacral neurectomylaparoscopysurgerynerve blocksalpingectomypelvic floor therapylaparoscopy (x2, pre-Ted Lee)
Treatments Mentioned
orlissaacupuncturecontinuous birth controlClomidnerve blockpelvic floor PTduloxetineLupronOrilissabirth control (30+ kinds)
Reported Outcomes
Complications 3 of 22 surgery patients (14%)
Recurrence 6 of 22 surgery patients (27%)
Reported complications (2)
chronic pain from diaphragmatic endo remaining post-surgeryconstipation post-PSN (temporary)
Self-reported by patients. Complication rates vary by case complexity.
Mentioned In
r/r/Endor/r/adenomyosisr/r/endometriosisr/r/hysterectomy
Patient Experiences
45Posts from users who described first-person experiences with this doctor. Each "View on Reddit" link goes to the original public post for verification.
Patient 6 Consulted Positive 30 posts
“He is beyond informative and extremely skilled. You can tell he's knowledge asf about endometriosis. Surgery has been done! No complications! Life feels UNREAL.”
r/r/endometriosis May 6, 2024
(NYC located) Has anyone seen Dr. Ted Lee from NYU Langone?
(NYC located) Has anyone seen Dr. Ted Lee from NYU Langone?
I just saw he’s on the Nancy’s nook list and he takes my insurance so it peaked my interest. I am supposed to have a pre op consult with Dr. Kathy Huang but I did not like my consult with her nurse practitioner (and it was unnecessary? Like I should’ve just been scheduled an appt with Huang right away). Both of these doctors work at the same location.
r/r/Endo May 6, 2024
Wait are you talking about Dr. Ted Lee (NYU Langone) or a diff doctor?
r/r/endometriosis May 9, 2024 +1 pts
Thank you so much for your comment! I had scheduled an appt with Kathy Huang and honestly after seeing why she was taken off the Nancy’s nook list and the fact that she only does her surgery based on pelvic mri results I am not moving forward with her. However Ted Lee is my latest appt bc his next available is August 1 which sucks :/.
May I ask does he does robotic surgery or no? And also did you have adenomysosis and if so did he do anything for it?
r/r/Endo May 15, 2024 +2 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 15, 2024 +1 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 15, 2024 +1 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 17, 2024 +1 pts
So girl I’m surprised I’m 24 and Dr Lee did not recommend presacral neurectomy. He said something about long term wise it’s not effective and I was huh… that’s weird cus ppl on here said he did it for them. It genuinely was weird. But I was given either mirena iud or take the uterus out but he believes iud is best right now.
But yeah I’m thinking of just getting a hysterectomy
r/r/endometriosis May 24, 2024 +4 pts
I think it’s standard for most hospitals in nyc that there is a 15 min grace, just wanted to put that out there as someone who’s been to Mount Sinai and Elmhurst Hospital and other clinics.
Just to let you know Dr. Ted Lee is busy and booked. My surgery date with him is in November so that’s what you should be expecting. It could possibly be into next year if you are seeing him later this year. My original appt with him was in August but someone canceled last week which I am thankful and grateful for.
You should try Dr. Hye Hur. She works under NYU Langone but another location. I do not know how busy she is. I was trying to see if she has earlier surgery dates but apparently I’d have to see her nurse practitioner first and THEN consult with her THEN see surgery dates. So it’s not worth it for me since I already wasted a lot of my time finding an endo specialist. But she was #2 on my list in terms of endo specialists who take my insurance.
r/r/endometriosis May 24, 2024 +2 pts
Oh sorry I have almost been late to many appts because of either being lost or just not feeling well. And yeah I wanted to see Dr. Liu but that $20k turned me off 😭. I did hear good things about Dr. Eswar.
And wow I didn’t realize that about the surgery. I’m stressed out cus there’s a possibility I might need bowel resection and I’m hoping I won’t but who the hell knows at this point. Were you able to reschedule an appt with Dr. Lee for a sooner date?
r/r/endometriosis Jun 19, 2024 +1 pts
Yes! Went with Dr. Ted Lee. He is beyond informative and extremely skilled. You can tell he’s knowledge asf about endometriosis. I did appreciate his pelvic and rectal exam even though it took me by surprised. And Dr. Chady Atallah (the colorectal surgeon he works with) also was amazing. 100% sure I am in good hands. Surgery is in November. Cystoscopy, excision surgery and hysterectomy. I hope all goes well fr.
r/r/adenomyosis Jul 5, 2024 +3 pts
Forever grateful to Dr. Ted Lee for not objecting to my hysterectomy. Now I just hope insurance covers it. I’m 24. And to me if my uterus is having problems it’s already dead to me. Having it gone would be no issue for me cus the shit already not working and it’s causing me pain
r/r/endometriosis Aug 6, 2024 +2 pts
NYC obgyns to recommend for endometriosis?
NYC obgyns to recommend for endometriosis?
My sister suffers from the same symptoms as I do and I want her to get the right help. So far we have been unsatisfied with the doctors she’s seen. I don’t want to hear about Dr. Vidali or Lora liu because for us that’s out of her budget. We don’t have financial support. So I would love recommendations of doctors who do take insurance so I can look into them.
I would have loved for her to see Dr Ted Lee (my surgeon) but he does not take her insurance.
r/r/endometriosis Sep 7, 2024 +1 pts
So Happy for you!! I’m assuming you didn’t have to get a hysterectomy based on what you said? If there’s anything else you’d like for me to know my dms are open! I do trust Dr Lee I just am mourning for myself all this time until my surgery on October 1
r/r/endometriosis Sep 19, 2024 +2 pts
Hey! Did you end up seeing Ted Lee? I’m not sure if we’ve already spoken it’s possible we have. My surgery is a week and a half away and I’m scsreddd
r/r/endometriosis Sep 21, 2024 +1 pts
Anyone most recently had surgery with Dr. Ted Lee? (From May to present)
Anyone most recently had surgery with Dr. Ted Lee? (From May to present)
Would love to know how you’re currently doing as I will be having my surgery soon!
r/r/endometriosis Oct 1, 2024 +166 pts
Surgery has been done! No complications! Life feels UNREAL.
Surgery has been done! No complications! Life feels UNREAL.
Like wow. I feel amazing guys. There’s so much I want to say but I’m so glad I did it. Although I wanted to keep both ovaries and my cervix the doctor ended up taking everything but my right ovary out (just like my mom). I am so grateful the cards all fell in the right place for me to get this done. I’m so thankful for my supportive boyfriend who I’ve driven insane for the last 3 years.
I’m my parents visited me and that felt great. I feel good. I’m happy. I hope I don’t have significant pain anymore moving forward. I’m 25 and hope that I can have a rebirth and have a new happy life.
And a huge thank you to Dr. Ted Lee. He is amazing and deserves the world for everything he has done for me. I can just cry of happiness right now. And I was afraid for no reason.
My fellow endo siblings, I wish you nothing but the best treatment and a pain free life one day. 💗
r/r/endometriosis Oct 3, 2024 +2 pts
There are many reasons at play here as to why I chose to have a hysterectomy as well.
1. My mother had the same surgery and she said she’s felt amazing since
2. I haven’t gotten pregnant in over a year. Wasn’t even trying. Was just suicidal and hating my life and knew I was infertile
3. I don’t want kids because I am a narcissist and I would only have kids to take care of me and I know I wouldn’t be a good mother
4. The extent of my adeno and endo disease. Many people on here with both conditions said they had a significant different with like an almost total hysterectomy pretty much.
5. I refuse to ever do birth control or mirena iud. Plus many people don’t tolerate these treatments. And for me personally if adenomyosis gets worse as you get older you might as well have a hysterectomy before it gets bad. My uterus size was about 8-10 week pregnancy size
For me because I live in nyc I was looking for nyc doctors on here. And people were recommended all sorts of surgeons and I looked for the ones who took my insurance but also was very reputable. I am so so thankful Dr Lee takes my insurance and he is extremely skilled. Take a look at the Nancy nook list too and just keep researching until you get somewhere.
r/r/endometriosis Oct 5, 2024 +1 pts
Either my surgeon Dr. Ted Lee is just beyond skilled and has excellent expertise or it has helped that I exercised since 2018 and have cycled to prepare for this surgery. I also ate mostly a raw food diet prior to this surgery (but have been since like 2018 too).
Surgery has been a breeze I woke up feeling amazing. I am off pain meds right now and it’s been three days. I didn’t even need the pain meds yesterday but I took them anyway. I’ve been able to urinate and defecate. The ibs symptoms have lessened. Somehow my right ovary is giving me the right hormonal balance because I have not been emotionally unstable. My eczema has cleared up.
I can walk. I do get so scared how good I feel it’s hard for me to breathe and I keep holding my stomach. But I have not felt tired not once. I don’t know what happened but I am in awe. And surgery was not scary at all. I loved my whole care team I owe my life to them. They were beyond sweet and made sure I was okay. Like just wow. I’m thanking whoever is out there who allowed this to happen for me.
Right now I’m just hoping my bowel movements get better as I’m on antibiotics and I do have a little gas I feel that I’m hoping clears up. I’m hoping to start exercising and getting back to work in a month.
r/r/Endo Oct 5, 2024 +4 pts
Dr. Ted Min Lee was my surgeon. I did not need to convince him. He even told me all I needed was a doctor to believe me based on my symptoms and that’s it. See if he takes your insurance and discuss your options with him.
r/r/endometriosis Oct 15, 2024 +1 pts
I have insurance. Dr Lee took my insurance. His assistant clarified surgery is fully covered by my insurance. Will reach out to her again to double check.
r/r/hysterectomy Mar 10, 2025 +1 pts
I was my normal self right after surgery. If anything I felt even better too. It literally has never felt like I even went through surgery. That’s why I always say shoutout to Dr Ted Lee at nyu langone. But I also put in the work with years of research and constantly looking for the right provider. And I prepared my body for surgery as well (eating healthy and exercising)
r/r/endometriosis Mar 20, 2025 +1 pts
Okay… thanks for sharing. I had a wonderful experience with Dr. Lee. I’m sorry to read that.
r/r/endometriosis Mar 26, 2025 +1 pts
I agree with the other commenter here about Dr. Lee. I remember my appointment with him was May of last year. Surgery was October 1, 2024. He was just so well informed and understands the complexities of endometriosis as well as adenomyosis. I followed everything for surgery to the T. And had a successful surgery. He is extremely skilled. Worth a shot looking into Dr. Lee. It does state he takes Oxford but idk the specifics of your insurance. Mine was fully covered as I have 1199.
r/r/endometriosis Apr 22, 2025 +1 pts
It’s ok I went for Dr Lee and he took my insurance :)
r/r/endometriosis May 3, 2025 +1 pts
You can take a look at my profile. I went with Dr. Lee. No complaints here
r/r/adenomyosis Oct 11, 2025 +1 pts
Update is on my profile. I highly recommend Dr. Ted Lee from NYU LANGONE
r/r/endometriosis Nov 12, 2025 +1 pts
Yeah it was the NP that pissed me off lol. Dr. Lee. Look at my profile for more info
Patient 5 Consulted Positive 30 posts
“Patient had consult in May (year prior), surgery October 1, 2024. Dr. Lee removed uterus, cervix, and left ovary; kept right ovary. Worked with colorectal surgeon Dr. Chady Atallah. Patient describes Lee as 'beyond informative,' 'extremely skilled,' 'knows complexities of endo and adeno.' No complications. Patient posts extensively praising him post-surgery. Lee did NOT recommend presacral neurectomy (said it's not effective long-term), which initially surprised patient but she proceeded with su”
r/r/endometriosis May 6, 2024
(NYC located) Has anyone seen Dr. Ted Lee from NYU Langone?
(NYC located) Has anyone seen Dr. Ted Lee from NYU Langone?
I just saw he’s on the Nancy’s nook list and he takes my insurance so it peaked my interest. I am supposed to have a pre op consult with Dr. Kathy Huang but I did not like my consult with her nurse practitioner (and it was unnecessary? Like I should’ve just been scheduled an appt with Huang right away). Both of these doctors work at the same location.
r/r/Endo May 6, 2024
Wait are you talking about Dr. Ted Lee (NYU Langone) or a diff doctor?
r/r/endometriosis May 9, 2024 +1 pts
Thank you so much for your comment! I had scheduled an appt with Kathy Huang and honestly after seeing why she was taken off the Nancy’s nook list and the fact that she only does her surgery based on pelvic mri results I am not moving forward with her. However Ted Lee is my latest appt bc his next available is August 1 which sucks :/.
May I ask does he does robotic surgery or no? And also did you have adenomysosis and if so did he do anything for it?
r/r/Endo May 15, 2024 +2 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 15, 2024 +1 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 15, 2024 +1 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 17, 2024 +1 pts
So girl I’m surprised I’m 24 and Dr Lee did not recommend presacral neurectomy. He said something about long term wise it’s not effective and I was huh… that’s weird cus ppl on here said he did it for them. It genuinely was weird. But I was given either mirena iud or take the uterus out but he believes iud is best right now.
But yeah I’m thinking of just getting a hysterectomy
r/r/endometriosis May 24, 2024 +4 pts
I think it’s standard for most hospitals in nyc that there is a 15 min grace, just wanted to put that out there as someone who’s been to Mount Sinai and Elmhurst Hospital and other clinics.
Just to let you know Dr. Ted Lee is busy and booked. My surgery date with him is in November so that’s what you should be expecting. It could possibly be into next year if you are seeing him later this year. My original appt with him was in August but someone canceled last week which I am thankful and grateful for.
You should try Dr. Hye Hur. She works under NYU Langone but another location. I do not know how busy she is. I was trying to see if she has earlier surgery dates but apparently I’d have to see her nurse practitioner first and THEN consult with her THEN see surgery dates. So it’s not worth it for me since I already wasted a lot of my time finding an endo specialist. But she was #2 on my list in terms of endo specialists who take my insurance.
r/r/endometriosis May 24, 2024 +2 pts
Oh sorry I have almost been late to many appts because of either being lost or just not feeling well. And yeah I wanted to see Dr. Liu but that $20k turned me off 😭. I did hear good things about Dr. Eswar.
And wow I didn’t realize that about the surgery. I’m stressed out cus there’s a possibility I might need bowel resection and I’m hoping I won’t but who the hell knows at this point. Were you able to reschedule an appt with Dr. Lee for a sooner date?
r/r/endometriosis Jun 19, 2024 +1 pts
Yes! Went with Dr. Ted Lee. He is beyond informative and extremely skilled. You can tell he’s knowledge asf about endometriosis. I did appreciate his pelvic and rectal exam even though it took me by surprised. And Dr. Chady Atallah (the colorectal surgeon he works with) also was amazing. 100% sure I am in good hands. Surgery is in November. Cystoscopy, excision surgery and hysterectomy. I hope all goes well fr.
r/r/adenomyosis Jul 5, 2024 +3 pts
Forever grateful to Dr. Ted Lee for not objecting to my hysterectomy. Now I just hope insurance covers it. I’m 24. And to me if my uterus is having problems it’s already dead to me. Having it gone would be no issue for me cus the shit already not working and it’s causing me pain
r/r/endometriosis Aug 6, 2024 +2 pts
NYC obgyns to recommend for endometriosis?
NYC obgyns to recommend for endometriosis?
My sister suffers from the same symptoms as I do and I want her to get the right help. So far we have been unsatisfied with the doctors she’s seen. I don’t want to hear about Dr. Vidali or Lora liu because for us that’s out of her budget. We don’t have financial support. So I would love recommendations of doctors who do take insurance so I can look into them.
I would have loved for her to see Dr Ted Lee (my surgeon) but he does not take her insurance.
r/r/endometriosis Sep 7, 2024 +1 pts
So Happy for you!! I’m assuming you didn’t have to get a hysterectomy based on what you said? If there’s anything else you’d like for me to know my dms are open! I do trust Dr Lee I just am mourning for myself all this time until my surgery on October 1
r/r/endometriosis Sep 19, 2024 +2 pts
Hey! Did you end up seeing Ted Lee? I’m not sure if we’ve already spoken it’s possible we have. My surgery is a week and a half away and I’m scsreddd
r/r/endometriosis Sep 21, 2024 +1 pts
Anyone most recently had surgery with Dr. Ted Lee? (From May to present)
Anyone most recently had surgery with Dr. Ted Lee? (From May to present)
Would love to know how you’re currently doing as I will be having my surgery soon!
r/r/endometriosis Oct 1, 2024 +166 pts
Surgery has been done! No complications! Life feels UNREAL.
Surgery has been done! No complications! Life feels UNREAL.
Like wow. I feel amazing guys. There’s so much I want to say but I’m so glad I did it. Although I wanted to keep both ovaries and my cervix the doctor ended up taking everything but my right ovary out (just like my mom). I am so grateful the cards all fell in the right place for me to get this done. I’m so thankful for my supportive boyfriend who I’ve driven insane for the last 3 years.
I’m my parents visited me and that felt great. I feel good. I’m happy. I hope I don’t have significant pain anymore moving forward. I’m 25 and hope that I can have a rebirth and have a new happy life.
And a huge thank you to Dr. Ted Lee. He is amazing and deserves the world for everything he has done for me. I can just cry of happiness right now. And I was afraid for no reason.
My fellow endo siblings, I wish you nothing but the best treatment and a pain free life one day. 💗
r/r/endometriosis Oct 3, 2024 +2 pts
There are many reasons at play here as to why I chose to have a hysterectomy as well.
1. My mother had the same surgery and she said she’s felt amazing since
2. I haven’t gotten pregnant in over a year. Wasn’t even trying. Was just suicidal and hating my life and knew I was infertile
3. I don’t want kids because I am a narcissist and I would only have kids to take care of me and I know I wouldn’t be a good mother
4. The extent of my adeno and endo disease. Many people on here with both conditions said they had a significant different with like an almost total hysterectomy pretty much.
5. I refuse to ever do birth control or mirena iud. Plus many people don’t tolerate these treatments. And for me personally if adenomyosis gets worse as you get older you might as well have a hysterectomy before it gets bad. My uterus size was about 8-10 week pregnancy size
For me because I live in nyc I was looking for nyc doctors on here. And people were recommended all sorts of surgeons and I looked for the ones who took my insurance but also was very reputable. I am so so thankful Dr Lee takes my insurance and he is extremely skilled. Take a look at the Nancy nook list too and just keep researching until you get somewhere.
r/r/endometriosis Oct 5, 2024 +1 pts
Either my surgeon Dr. Ted Lee is just beyond skilled and has excellent expertise or it has helped that I exercised since 2018 and have cycled to prepare for this surgery. I also ate mostly a raw food diet prior to this surgery (but have been since like 2018 too).
Surgery has been a breeze I woke up feeling amazing. I am off pain meds right now and it’s been three days. I didn’t even need the pain meds yesterday but I took them anyway. I’ve been able to urinate and defecate. The ibs symptoms have lessened. Somehow my right ovary is giving me the right hormonal balance because I have not been emotionally unstable. My eczema has cleared up.
I can walk. I do get so scared how good I feel it’s hard for me to breathe and I keep holding my stomach. But I have not felt tired not once. I don’t know what happened but I am in awe. And surgery was not scary at all. I loved my whole care team I owe my life to them. They were beyond sweet and made sure I was okay. Like just wow. I’m thanking whoever is out there who allowed this to happen for me.
Right now I’m just hoping my bowel movements get better as I’m on antibiotics and I do have a little gas I feel that I’m hoping clears up. I’m hoping to start exercising and getting back to work in a month.
r/r/Endo Oct 5, 2024 +4 pts
Dr. Ted Min Lee was my surgeon. I did not need to convince him. He even told me all I needed was a doctor to believe me based on my symptoms and that’s it. See if he takes your insurance and discuss your options with him.
r/r/endometriosis Oct 15, 2024 +1 pts
I have insurance. Dr Lee took my insurance. His assistant clarified surgery is fully covered by my insurance. Will reach out to her again to double check.
r/r/hysterectomy Mar 10, 2025 +1 pts
I was my normal self right after surgery. If anything I felt even better too. It literally has never felt like I even went through surgery. That’s why I always say shoutout to Dr Ted Lee at nyu langone. But I also put in the work with years of research and constantly looking for the right provider. And I prepared my body for surgery as well (eating healthy and exercising)
r/r/endometriosis Mar 20, 2025 +1 pts
Okay… thanks for sharing. I had a wonderful experience with Dr. Lee. I’m sorry to read that.
r/r/endometriosis Mar 26, 2025 +1 pts
I agree with the other commenter here about Dr. Lee. I remember my appointment with him was May of last year. Surgery was October 1, 2024. He was just so well informed and understands the complexities of endometriosis as well as adenomyosis. I followed everything for surgery to the T. And had a successful surgery. He is extremely skilled. Worth a shot looking into Dr. Lee. It does state he takes Oxford but idk the specifics of your insurance. Mine was fully covered as I have 1199.
r/r/endometriosis Apr 22, 2025 +1 pts
It’s ok I went for Dr Lee and he took my insurance :)
r/r/endometriosis May 3, 2025 +1 pts
You can take a look at my profile. I went with Dr. Lee. No complaints here
r/r/adenomyosis Oct 11, 2025 +1 pts
Update is on my profile. I highly recommend Dr. Ted Lee from NYU LANGONE
r/r/endometriosis Nov 12, 2025 +1 pts
Yeah it was the NP that pissed me off lol. Dr. Lee. Look at my profile for more info
Patient 2 Consulted Positive 30 posts
“Patient describes Dr. Lee as 'beyond informative and extremely skilled', 'extremely skilled', 'amazing and deserves the world'. Surgery had no complications. Patient felt amazing within days post-surgery, off pain meds by day 3. IBS symptoms lessened. Dr. Lee also worked with colorectal surgeon Dr. Chady Atallah. Dr. Lee supported hysterectomy decision without objection. Takes 1199 insurance, surgery fully covered. Wait time: consulted May 2024, surgery October 1, 2024. He is beyond informative ”
r/r/endometriosis May 6, 2024
(NYC located) Has anyone seen Dr. Ted Lee from NYU Langone?
(NYC located) Has anyone seen Dr. Ted Lee from NYU Langone?
I just saw he’s on the Nancy’s nook list and he takes my insurance so it peaked my interest. I am supposed to have a pre op consult with Dr. Kathy Huang but I did not like my consult with her nurse practitioner (and it was unnecessary? Like I should’ve just been scheduled an appt with Huang right away). Both of these doctors work at the same location.
r/r/Endo May 6, 2024
Wait are you talking about Dr. Ted Lee (NYU Langone) or a diff doctor?
r/r/endometriosis May 9, 2024 +1 pts
Thank you so much for your comment! I had scheduled an appt with Kathy Huang and honestly after seeing why she was taken off the Nancy’s nook list and the fact that she only does her surgery based on pelvic mri results I am not moving forward with her. However Ted Lee is my latest appt bc his next available is August 1 which sucks :/.
May I ask does he does robotic surgery or no? And also did you have adenomysosis and if so did he do anything for it?
r/r/Endo May 15, 2024 +2 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 15, 2024 +1 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 15, 2024 +1 pts
Hi! Did you end up getting excision surgery done by Dr. Ted Lee? If so please tell me your experience with him! Originally my appt was on August 1 with him but someone canceled so it’s tomorrow I’m nervous as hell
r/r/Endo May 17, 2024 +1 pts
So girl I’m surprised I’m 24 and Dr Lee did not recommend presacral neurectomy. He said something about long term wise it’s not effective and I was huh… that’s weird cus ppl on here said he did it for them. It genuinely was weird. But I was given either mirena iud or take the uterus out but he believes iud is best right now.
But yeah I’m thinking of just getting a hysterectomy
r/r/endometriosis May 24, 2024 +4 pts
I think it’s standard for most hospitals in nyc that there is a 15 min grace, just wanted to put that out there as someone who’s been to Mount Sinai and Elmhurst Hospital and other clinics.
Just to let you know Dr. Ted Lee is busy and booked. My surgery date with him is in November so that’s what you should be expecting. It could possibly be into next year if you are seeing him later this year. My original appt with him was in August but someone canceled last week which I am thankful and grateful for.
You should try Dr. Hye Hur. She works under NYU Langone but another location. I do not know how busy she is. I was trying to see if she has earlier surgery dates but apparently I’d have to see her nurse practitioner first and THEN consult with her THEN see surgery dates. So it’s not worth it for me since I already wasted a lot of my time finding an endo specialist. But she was #2 on my list in terms of endo specialists who take my insurance.
r/r/endometriosis May 24, 2024 +2 pts
Oh sorry I have almost been late to many appts because of either being lost or just not feeling well. And yeah I wanted to see Dr. Liu but that $20k turned me off 😭. I did hear good things about Dr. Eswar.
And wow I didn’t realize that about the surgery. I’m stressed out cus there’s a possibility I might need bowel resection and I’m hoping I won’t but who the hell knows at this point. Were you able to reschedule an appt with Dr. Lee for a sooner date?
r/r/endometriosis Jun 19, 2024 +1 pts
Yes! Went with Dr. Ted Lee. He is beyond informative and extremely skilled. You can tell he’s knowledge asf about endometriosis. I did appreciate his pelvic and rectal exam even though it took me by surprised. And Dr. Chady Atallah (the colorectal surgeon he works with) also was amazing. 100% sure I am in good hands. Surgery is in November. Cystoscopy, excision surgery and hysterectomy. I hope all goes well fr.
r/r/adenomyosis Jul 5, 2024 +3 pts
Forever grateful to Dr. Ted Lee for not objecting to my hysterectomy. Now I just hope insurance covers it. I’m 24. And to me if my uterus is having problems it’s already dead to me. Having it gone would be no issue for me cus the shit already not working and it’s causing me pain
r/r/endometriosis Aug 6, 2024 +2 pts
NYC obgyns to recommend for endometriosis?
NYC obgyns to recommend for endometriosis?
My sister suffers from the same symptoms as I do and I want her to get the right help. So far we have been unsatisfied with the doctors she’s seen. I don’t want to hear about Dr. Vidali or Lora liu because for us that’s out of her budget. We don’t have financial support. So I would love recommendations of doctors who do take insurance so I can look into them.
I would have loved for her to see Dr Ted Lee (my surgeon) but he does not take her insurance.
r/r/endometriosis Sep 7, 2024 +1 pts
So Happy for you!! I’m assuming you didn’t have to get a hysterectomy based on what you said? If there’s anything else you’d like for me to know my dms are open! I do trust Dr Lee I just am mourning for myself all this time until my surgery on October 1
r/r/endometriosis Sep 19, 2024 +2 pts
Hey! Did you end up seeing Ted Lee? I’m not sure if we’ve already spoken it’s possible we have. My surgery is a week and a half away and I’m scsreddd
r/r/endometriosis Sep 21, 2024 +1 pts
Anyone most recently had surgery with Dr. Ted Lee? (From May to present)
Anyone most recently had surgery with Dr. Ted Lee? (From May to present)
Would love to know how you’re currently doing as I will be having my surgery soon!
r/r/endometriosis Oct 1, 2024 +166 pts
Surgery has been done! No complications! Life feels UNREAL.
Surgery has been done! No complications! Life feels UNREAL.
Like wow. I feel amazing guys. There’s so much I want to say but I’m so glad I did it. Although I wanted to keep both ovaries and my cervix the doctor ended up taking everything but my right ovary out (just like my mom). I am so grateful the cards all fell in the right place for me to get this done. I’m so thankful for my supportive boyfriend who I’ve driven insane for the last 3 years.
I’m my parents visited me and that felt great. I feel good. I’m happy. I hope I don’t have significant pain anymore moving forward. I’m 25 and hope that I can have a rebirth and have a new happy life.
And a huge thank you to Dr. Ted Lee. He is amazing and deserves the world for everything he has done for me. I can just cry of happiness right now. And I was afraid for no reason.
My fellow endo siblings, I wish you nothing but the best treatment and a pain free life one day. 💗
r/r/endometriosis Oct 3, 2024 +2 pts
There are many reasons at play here as to why I chose to have a hysterectomy as well.
1. My mother had the same surgery and she said she’s felt amazing since
2. I haven’t gotten pregnant in over a year. Wasn’t even trying. Was just suicidal and hating my life and knew I was infertile
3. I don’t want kids because I am a narcissist and I would only have kids to take care of me and I know I wouldn’t be a good mother
4. The extent of my adeno and endo disease. Many people on here with both conditions said they had a significant different with like an almost total hysterectomy pretty much.
5. I refuse to ever do birth control or mirena iud. Plus many people don’t tolerate these treatments. And for me personally if adenomyosis gets worse as you get older you might as well have a hysterectomy before it gets bad. My uterus size was about 8-10 week pregnancy size
For me because I live in nyc I was looking for nyc doctors on here. And people were recommended all sorts of surgeons and I looked for the ones who took my insurance but also was very reputable. I am so so thankful Dr Lee takes my insurance and he is extremely skilled. Take a look at the Nancy nook list too and just keep researching until you get somewhere.
r/r/endometriosis Oct 5, 2024 +1 pts
Either my surgeon Dr. Ted Lee is just beyond skilled and has excellent expertise or it has helped that I exercised since 2018 and have cycled to prepare for this surgery. I also ate mostly a raw food diet prior to this surgery (but have been since like 2018 too).
Surgery has been a breeze I woke up feeling amazing. I am off pain meds right now and it’s been three days. I didn’t even need the pain meds yesterday but I took them anyway. I’ve been able to urinate and defecate. The ibs symptoms have lessened. Somehow my right ovary is giving me the right hormonal balance because I have not been emotionally unstable. My eczema has cleared up.
I can walk. I do get so scared how good I feel it’s hard for me to breathe and I keep holding my stomach. But I have not felt tired not once. I don’t know what happened but I am in awe. And surgery was not scary at all. I loved my whole care team I owe my life to them. They were beyond sweet and made sure I was okay. Like just wow. I’m thanking whoever is out there who allowed this to happen for me.
Right now I’m just hoping my bowel movements get better as I’m on antibiotics and I do have a little gas I feel that I’m hoping clears up. I’m hoping to start exercising and getting back to work in a month.
r/r/Endo Oct 5, 2024 +4 pts
Dr. Ted Min Lee was my surgeon. I did not need to convince him. He even told me all I needed was a doctor to believe me based on my symptoms and that’s it. See if he takes your insurance and discuss your options with him.
r/r/endometriosis Oct 15, 2024 +1 pts
I have insurance. Dr Lee took my insurance. His assistant clarified surgery is fully covered by my insurance. Will reach out to her again to double check.
r/r/hysterectomy Mar 10, 2025 +1 pts
I was my normal self right after surgery. If anything I felt even better too. It literally has never felt like I even went through surgery. That’s why I always say shoutout to Dr Ted Lee at nyu langone. But I also put in the work with years of research and constantly looking for the right provider. And I prepared my body for surgery as well (eating healthy and exercising)
r/r/endometriosis Mar 20, 2025 +1 pts
Okay… thanks for sharing. I had a wonderful experience with Dr. Lee. I’m sorry to read that.
r/r/endometriosis Mar 26, 2025 +1 pts
I agree with the other commenter here about Dr. Lee. I remember my appointment with him was May of last year. Surgery was October 1, 2024. He was just so well informed and understands the complexities of endometriosis as well as adenomyosis. I followed everything for surgery to the T. And had a successful surgery. He is extremely skilled. Worth a shot looking into Dr. Lee. It does state he takes Oxford but idk the specifics of your insurance. Mine was fully covered as I have 1199.
r/r/endometriosis Apr 22, 2025 +1 pts
It’s ok I went for Dr Lee and he took my insurance :)
r/r/endometriosis May 3, 2025 +1 pts
You can take a look at my profile. I went with Dr. Lee. No complaints here
r/r/adenomyosis Oct 11, 2025 +1 pts
Update is on my profile. I highly recommend Dr. Ted Lee from NYU LANGONE
r/r/endometriosis Nov 12, 2025 +1 pts
Yeah it was the NP that pissed me off lol. Dr. Lee. Look at my profile for more info
Patient 42 Had Surgery Positive 13 posts Recurrence laparoscopy (x2, pre-Ted Lee)excision surgery with PSN (Ted Lee, 2022)total hysterectomy (Ann Peters, May 2024)
“Patient had 3 surgeries with Dr. Lee including excision and presacral neurectomy (PSN). First surgery removed scar tissue attaching left ovary to pelvic wall. Patient regained full quality of life after surgery, able to go to the gym, pain nonexistent. PSN provided ~1.5 years of relief before pain returned. Dr. Lee approved patient for surgery without questioning, reviewed records meticulously. Only surgeon in PA doing PSN. Accepts Medicaid. Retiring at end of year (referenced in later post). I ”
r/r/adenomyosis Oct 6, 2021 +1 pts
So I have been going to Penn State Hershey, and I will be honest that it was a lot better when he was there. I used to see Dr. De Souza at Penn State, but sadly she moved away. Penn State now has one endo doctor and most of the time at my appointments I end up with residents who don’t really know what they are doing. The doctor I do have right now at Penn State is pretty dismissive. I would love to see Dr. Harkins if he does PSN surgery. But I’ve found that laparoscopic surgery only helps for a few months, and I’m really not ready for a hysterectomy, which is the only thing Penn State is offering me right now. My other recent posts outline the terrible treatment I’ve been having at Penn State right now.
I have an appointment with Dr. Lee in Pittsburgh in February. But I just feel like canceling all my Penn State appointments until then. I just get pissed off every time I go now.
r/r/Endo Feb 12, 2022 +28 pts
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
I’m giving up. I’m so tired of doctors and physical therapists touching my vagina every week. I don’t want any more surgeries or appointments. I’m burnt out and tired.
I’ve had 2 laps within the last 2 years and my pain keeps coming back because of my adenomyosis. My doctor gave me the choice between a presacral neurectomy or hysterectomy. He sent me to another surgeon who does PSN (Ted Lee) and I’ve been waiting 6 months just to see him. The appointment is on Tuesday and I have to travel 5 hours just to get to his office. Needless to say I haven’t made up my mind on which procedure I want to get. I don’t know what to do.
I’ve been in PT for over a year. I quit on Thursday because honestly, I just don’t feel like doing it anymore. I stopped doing my daily exercises on Monday and I notice no difference. I’m sick of unhelpful people telling me to change my diet, try a new birth control, or try supplements. I already have. There are days when I just wish my endo would kill me.
I don’t know what to do anymore. No one is being helpful. I’m so tired of it all.
r/r/hysterectomy Feb 13, 2022 +2 pts
Can’t decide between a presacral neurectomy or hysterectomy for endometriosis and really burned out from it all
Can’t decide between a presacral neurectomy or hysterectomy for endometriosis and really burned out from it all
I’m giving up. I’m so tired of doctors and physical therapists touching my vagina every week. I don’t want any more surgeries or appointments. I’m burnt out and tired.
I’ve had 2 laps within the last 2 years and my pain keeps coming back because of my adenomyosis. My doctor gave me the choice between a presacral neurectomy or hysterectomy. He sent me to another surgeon who does PSN (Ted Lee) and I’ve been waiting 6 months just to see him. The appointment is on Tuesday and I have to travel 5 hours just to get to his office. Needless to say I haven’t made up my mind on which procedure I want to get. I don’t know what to do.
I’ve been in PT for over a year. I quit on Thursday because honestly, I just don’t feel like doing it anymore. I stopped doing my daily exercises on Monday and I notice no difference. I’m sick of unhelpful people telling me to change my diet, try a new birth control, or try supplements. I already have. There are days when I just wish my endo would kill me.
I don’t know what to do anymore. No one is being helpful. I’m so tired of it all.
r/r/adenomyosis Feb 13, 2022 +12 pts
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
I’m giving up. I’m so tired of doctors and physical therapists touching my vagina every week. I don’t want any more surgeries or appointments. I’m burnt out and tired.
I’ve had 2 laps within the last 2 years and my pain keeps coming back because of my adenomyosis. My doctor gave me the choice between a presacral neurectomy or hysterectomy. He sent me to another surgeon who does PSN (Ted Lee) and I’ve been waiting 6 months just to see him. The appointment is on Tuesday and I have to travel 5 hours just to get to his office. Needless to say I haven’t made up my mind on which procedure I want to get. I don’t know what to do.
I’ve been in PT for over a year. I quit on Thursday because honestly, I just don’t feel like doing it anymore. I stopped doing my daily exercises on Monday and I notice no difference. I’m sick of unhelpful people telling me to change my diet, try a new birth control, or try supplements. I already have. There are days when I just wish my endo would kill me.
I don’t know what to do anymore. No one is being helpful. I’m so tired of it all.
r/r/adenomyosis Feb 27, 2022 +1 pts
Sorry I’m late replying—so I saw Dr. Lee and he didn’t mention anything about a hysterectomy and wanted me to get a PSN. The OR is booked up at the moment but it looks like I’m getting one this summer.
Does he not do hystos/not believe they help? I have endo too and I’ve heard a million times that a hysterectomy doesn’t help endo pain. I think that’s what I am scared of—doing one and then realizing that it did nothing for my pain.
r/r/Endo Apr 28, 2022 +34 pts
I can’t do this. I don’t want endo anymore.
I can’t do this. I don’t want endo anymore.
I’m having my third surgery with Dr. Ted Lee, and it’s in three weeks. No birth control has helped my pain. I’ve been on over 30 kinds. I’ve done Lupron and Orilissa. No help.
I’m thinking of just asking him to remove everything by total hysterectomy so the endo doesn’t come back. I’m a student and on student health insurance. All my wages this year went toward buying my health insurance. It’s great, and I can’t complain about it, but I have two years left of school and I won’t be able to get it anymore.
This terrifies me more than anything. I don’t want surgery every year like I have been. I will never be able to afford running to urgent care every week like I have been. I’m terrified that I won’t be able to get a job with health insurance after graduation to afford endo care.
So what if I just pull the plug on it all? I don’t want more excision surgeries every year and I don’t want to need care when I won’t be able to access it.
Yes, these thoughts are probably crazy, but I’m desperate for help.
r/r/Endo Apr 28, 2022 +2 pts
Yep Dr. Lee is on Nancy’s list for PA. I trust him a lot. I’m having surgery with him in three weeks. I’m just totally unsure as to what happens after that as far as if endo will grow back. I’m terrified.
r/r/Endo Jun 22, 2022 +5 pts
Review of Dr. Ted Lee
Review of Dr. Ted Lee
Hi all! I wanted to give my review of Dr. Ted Lee who is on the Nook list. I hope this helps people in the PA/OH/WV area.
I waited about 8 months to get in with him, I’m guessing because of Covid. My first appointment with him took about an hour. They asked me everything, even if endo belly was causing me distress. He agreed to doing excision and also a presacral neurectomy (PSN). He’s the only surgeon in PA who does the PSN, which is why I waited so long to get in with him.
Surgery was a few months later and everyone at the hospital was really respectful toward me. They give you a meal when you wake up, and I’ve never had that before at any of my surgeries. He removed scar tissue which was attaching my left ovary to my pelvic wall as well as some other spots. All in all surgery went fine.
I completely regained my old life after surgery. I’m able to go to the gym and lift weights again. I don’t feel that endo is controlling my life anymore. My pain is nonexistent!
For those of you who are considering Dr. Lee, go for it! He was not rude or scary. We actually discussed theories of endo causes in my post-op visit. I’ve been to so many mediocre surgeons and Dr. Lee is definitely not one. Magee also accepts Medicaid and many insurances, so that was not an issue either. I wanted to share my experience because it completely changed my life!
r/r/Endo Sep 6, 2022 +1 pts
Thank you! And it is no trouble at all. I did not have any of the side effects. My doctor told me that the possible side effects, like incontinence and constipation, only last for a few weeks after surgery. For me, I didn’t have them at all, which I am so grateful for. I have had two periods after surgery, and everything was a major improvement because I couldn’t feel anything when they started. I usually have pretty bad PMS, but didn’t experience that. I still got constipated when my periods started, but I don’t think that is related, to be honest.
For reference, I saw Dr. Ted Lee at Magee Women’s Hospital in Pittsburgh and he was amazing! The first time I met him I was a bit scared, but I think he is just intimidating.
r/r/Endo Oct 24, 2023 +61 pts
Sure, it is Nicole Donellan of UPMC in Pittsburgh. Ted Lee was my first doctor there and he was my lifesaver. Sadly he’s retiring at the end of the year, and I wanted someone to help me with my months-long periods. She belittled me and actually laughed at me at one point. I feel bad about getting pissed off in the middle of the appointment but I think it was necessary.
r/r/Endo Oct 24, 2023 +6 pts
I love Dr. Lee. He went through all of my records meticulously and approved me for surgery without even questioning me. I was so happy that he was my doctor.
I had a presacral neurectomy during my surgery, and he told my mom that I don’t have adenomyosis. From everything I understand about adeno is that you can only confirm it through a hysterectomy, which is why I wanted to go back to UPMC. I would have been totally fine seeing Dr. Lee again.
Dr. Donellan was so dismissive and rude to me that I’m even questioning if I should go back to UPMC at all. I’m tired of having periods and bleeding all the time, which is why I want a hysterectomy. She didn’t even ask me at the appointment what my biggest concern was. She did not look through my records and seemed surprised about my history. She talked about my pain for 20 minutes, and when I told her that I wanted help with my bleeding, she said “why are you even here.” She then told me that there was no endo at my surgery with Dr. Lee, so that I don’t have endo at all now. I then told her that I had multiple spots of endo at my first two surgeries, and she said “okay… what does that matter.” I left her office with no help other than a phone number for their pain management office, which I’m not doing because members of my family have been addicted to pain meds before.
This is all to say that I’m very skeptical of what’s going on at UPMC now. I can’t believe that someone who trained with Dr. Lee is like this. Maybe it’s just me because I can only see positive reviews of her on Nook. I’m considering going somewhere else entirely but I feel like I just wasted so much time and for nothing.
I called a patient advocate at UPMC with no response. Dr. Donellan was also supposed to message me back, which she never did.
r/r/Endo Oct 25, 2023 +2 pts
Oh my god, I am so sorry to hear that you went through that! For her to see your bleeding and to think that it wasn’t important enough for her to put it in your records is outrageous. I felt like she wasn’t listening to me either. It was so obvious that she was rushing through the appointment because she complained that I was taking too much of her time. How is someone like this missing obvious signs of endo if she was trained by Dr. Lee? She seems to brag about that so much.
I don’t know what my next steps are, but I made an appointment with Dr. Ann Peters at Mercy to talk about a hysterectomy. At this point I’m pretty tired of doctors.
r/r/adenomyosis Apr 18, 2024 +2 pts
I had one done with Dr. Ted Lee in May 2022 and was pain-free for about a year and a half. My pain came back with a vengeance this past January. A PSN is great for buying time but it doesn’t always work.
Patient 7 Had Surgery Mixed 13 posts Recurrence
“Initially excellent — pain-free for ~1.5 years after PSN; pain returned with adenomyosis recurrence. Third surgery also performed but pain recurred. I completely regained my old life after surgery. I'm able to go to the gym and lift weights again. I don't feel that endo is controlling my life anymore. My pain is nonexistent! My first appointment with him took about an hour. They asked me everything, even if endo belly was causing me distress.”
r/r/adenomyosis Oct 6, 2021 +1 pts
So I have been going to Penn State Hershey, and I will be honest that it was a lot better when he was there. I used to see Dr. De Souza at Penn State, but sadly she moved away. Penn State now has one endo doctor and most of the time at my appointments I end up with residents who don’t really know what they are doing. The doctor I do have right now at Penn State is pretty dismissive. I would love to see Dr. Harkins if he does PSN surgery. But I’ve found that laparoscopic surgery only helps for a few months, and I’m really not ready for a hysterectomy, which is the only thing Penn State is offering me right now. My other recent posts outline the terrible treatment I’ve been having at Penn State right now.
I have an appointment with Dr. Lee in Pittsburgh in February. But I just feel like canceling all my Penn State appointments until then. I just get pissed off every time I go now.
r/r/Endo Feb 12, 2022 +28 pts
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
I’m giving up. I’m so tired of doctors and physical therapists touching my vagina every week. I don’t want any more surgeries or appointments. I’m burnt out and tired.
I’ve had 2 laps within the last 2 years and my pain keeps coming back because of my adenomyosis. My doctor gave me the choice between a presacral neurectomy or hysterectomy. He sent me to another surgeon who does PSN (Ted Lee) and I’ve been waiting 6 months just to see him. The appointment is on Tuesday and I have to travel 5 hours just to get to his office. Needless to say I haven’t made up my mind on which procedure I want to get. I don’t know what to do.
I’ve been in PT for over a year. I quit on Thursday because honestly, I just don’t feel like doing it anymore. I stopped doing my daily exercises on Monday and I notice no difference. I’m sick of unhelpful people telling me to change my diet, try a new birth control, or try supplements. I already have. There are days when I just wish my endo would kill me.
I don’t know what to do anymore. No one is being helpful. I’m so tired of it all.
r/r/hysterectomy Feb 13, 2022 +2 pts
Can’t decide between a presacral neurectomy or hysterectomy for endometriosis and really burned out from it all
Can’t decide between a presacral neurectomy or hysterectomy for endometriosis and really burned out from it all
I’m giving up. I’m so tired of doctors and physical therapists touching my vagina every week. I don’t want any more surgeries or appointments. I’m burnt out and tired.
I’ve had 2 laps within the last 2 years and my pain keeps coming back because of my adenomyosis. My doctor gave me the choice between a presacral neurectomy or hysterectomy. He sent me to another surgeon who does PSN (Ted Lee) and I’ve been waiting 6 months just to see him. The appointment is on Tuesday and I have to travel 5 hours just to get to his office. Needless to say I haven’t made up my mind on which procedure I want to get. I don’t know what to do.
I’ve been in PT for over a year. I quit on Thursday because honestly, I just don’t feel like doing it anymore. I stopped doing my daily exercises on Monday and I notice no difference. I’m sick of unhelpful people telling me to change my diet, try a new birth control, or try supplements. I already have. There are days when I just wish my endo would kill me.
I don’t know what to do anymore. No one is being helpful. I’m so tired of it all.
r/r/adenomyosis Feb 13, 2022 +12 pts
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
Can’t decide between a presacral neurectomy or hysterectomy and really burned out from it all
I’m giving up. I’m so tired of doctors and physical therapists touching my vagina every week. I don’t want any more surgeries or appointments. I’m burnt out and tired.
I’ve had 2 laps within the last 2 years and my pain keeps coming back because of my adenomyosis. My doctor gave me the choice between a presacral neurectomy or hysterectomy. He sent me to another surgeon who does PSN (Ted Lee) and I’ve been waiting 6 months just to see him. The appointment is on Tuesday and I have to travel 5 hours just to get to his office. Needless to say I haven’t made up my mind on which procedure I want to get. I don’t know what to do.
I’ve been in PT for over a year. I quit on Thursday because honestly, I just don’t feel like doing it anymore. I stopped doing my daily exercises on Monday and I notice no difference. I’m sick of unhelpful people telling me to change my diet, try a new birth control, or try supplements. I already have. There are days when I just wish my endo would kill me.
I don’t know what to do anymore. No one is being helpful. I’m so tired of it all.
r/r/adenomyosis Feb 27, 2022 +1 pts
Sorry I’m late replying—so I saw Dr. Lee and he didn’t mention anything about a hysterectomy and wanted me to get a PSN. The OR is booked up at the moment but it looks like I’m getting one this summer.
Does he not do hystos/not believe they help? I have endo too and I’ve heard a million times that a hysterectomy doesn’t help endo pain. I think that’s what I am scared of—doing one and then realizing that it did nothing for my pain.
r/r/Endo Apr 28, 2022 +34 pts
I can’t do this. I don’t want endo anymore.
I can’t do this. I don’t want endo anymore.
I’m having my third surgery with Dr. Ted Lee, and it’s in three weeks. No birth control has helped my pain. I’ve been on over 30 kinds. I’ve done Lupron and Orilissa. No help.
I’m thinking of just asking him to remove everything by total hysterectomy so the endo doesn’t come back. I’m a student and on student health insurance. All my wages this year went toward buying my health insurance. It’s great, and I can’t complain about it, but I have two years left of school and I won’t be able to get it anymore.
This terrifies me more than anything. I don’t want surgery every year like I have been. I will never be able to afford running to urgent care every week like I have been. I’m terrified that I won’t be able to get a job with health insurance after graduation to afford endo care.
So what if I just pull the plug on it all? I don’t want more excision surgeries every year and I don’t want to need care when I won’t be able to access it.
Yes, these thoughts are probably crazy, but I’m desperate for help.
r/r/Endo Apr 28, 2022 +2 pts
Yep Dr. Lee is on Nancy’s list for PA. I trust him a lot. I’m having surgery with him in three weeks. I’m just totally unsure as to what happens after that as far as if endo will grow back. I’m terrified.
r/r/Endo Jun 22, 2022 +5 pts
Review of Dr. Ted Lee
Review of Dr. Ted Lee
Hi all! I wanted to give my review of Dr. Ted Lee who is on the Nook list. I hope this helps people in the PA/OH/WV area.
I waited about 8 months to get in with him, I’m guessing because of Covid. My first appointment with him took about an hour. They asked me everything, even if endo belly was causing me distress. He agreed to doing excision and also a presacral neurectomy (PSN). He’s the only surgeon in PA who does the PSN, which is why I waited so long to get in with him.
Surgery was a few months later and everyone at the hospital was really respectful toward me. They give you a meal when you wake up, and I’ve never had that before at any of my surgeries. He removed scar tissue which was attaching my left ovary to my pelvic wall as well as some other spots. All in all surgery went fine.
I completely regained my old life after surgery. I’m able to go to the gym and lift weights again. I don’t feel that endo is controlling my life anymore. My pain is nonexistent!
For those of you who are considering Dr. Lee, go for it! He was not rude or scary. We actually discussed theories of endo causes in my post-op visit. I’ve been to so many mediocre surgeons and Dr. Lee is definitely not one. Magee also accepts Medicaid and many insurances, so that was not an issue either. I wanted to share my experience because it completely changed my life!
r/r/Endo Sep 6, 2022 +1 pts
Thank you! And it is no trouble at all. I did not have any of the side effects. My doctor told me that the possible side effects, like incontinence and constipation, only last for a few weeks after surgery. For me, I didn’t have them at all, which I am so grateful for. I have had two periods after surgery, and everything was a major improvement because I couldn’t feel anything when they started. I usually have pretty bad PMS, but didn’t experience that. I still got constipated when my periods started, but I don’t think that is related, to be honest.
For reference, I saw Dr. Ted Lee at Magee Women’s Hospital in Pittsburgh and he was amazing! The first time I met him I was a bit scared, but I think he is just intimidating.
r/r/Endo Oct 24, 2023 +61 pts
Sure, it is Nicole Donellan of UPMC in Pittsburgh. Ted Lee was my first doctor there and he was my lifesaver. Sadly he’s retiring at the end of the year, and I wanted someone to help me with my months-long periods. She belittled me and actually laughed at me at one point. I feel bad about getting pissed off in the middle of the appointment but I think it was necessary.
r/r/Endo Oct 24, 2023 +6 pts
I love Dr. Lee. He went through all of my records meticulously and approved me for surgery without even questioning me. I was so happy that he was my doctor.
I had a presacral neurectomy during my surgery, and he told my mom that I don’t have adenomyosis. From everything I understand about adeno is that you can only confirm it through a hysterectomy, which is why I wanted to go back to UPMC. I would have been totally fine seeing Dr. Lee again.
Dr. Donellan was so dismissive and rude to me that I’m even questioning if I should go back to UPMC at all. I’m tired of having periods and bleeding all the time, which is why I want a hysterectomy. She didn’t even ask me at the appointment what my biggest concern was. She did not look through my records and seemed surprised about my history. She talked about my pain for 20 minutes, and when I told her that I wanted help with my bleeding, she said “why are you even here.” She then told me that there was no endo at my surgery with Dr. Lee, so that I don’t have endo at all now. I then told her that I had multiple spots of endo at my first two surgeries, and she said “okay… what does that matter.” I left her office with no help other than a phone number for their pain management office, which I’m not doing because members of my family have been addicted to pain meds before.
This is all to say that I’m very skeptical of what’s going on at UPMC now. I can’t believe that someone who trained with Dr. Lee is like this. Maybe it’s just me because I can only see positive reviews of her on Nook. I’m considering going somewhere else entirely but I feel like I just wasted so much time and for nothing.
I called a patient advocate at UPMC with no response. Dr. Donellan was also supposed to message me back, which she never did.
r/r/Endo Oct 25, 2023 +2 pts
Oh my god, I am so sorry to hear that you went through that! For her to see your bleeding and to think that it wasn’t important enough for her to put it in your records is outrageous. I felt like she wasn’t listening to me either. It was so obvious that she was rushing through the appointment because she complained that I was taking too much of her time. How is someone like this missing obvious signs of endo if she was trained by Dr. Lee? She seems to brag about that so much.
I don’t know what my next steps are, but I made an appointment with Dr. Ann Peters at Mercy to talk about a hysterectomy. At this point I’m pretty tired of doctors.
r/r/adenomyosis Apr 18, 2024 +2 pts
I had one done with Dr. Ted Lee in May 2022 and was pain-free for about a year and a half. My pain came back with a vengeance this past January. A PSN is great for buying time but it doesn’t always work.
Patient 44 Consulted Positive 11 posts none yet (lap planned)
“First consult completed. Dr. Lee diagnosed Stage IV, recommended hysterectomy + oophorectomy (one ovary) + salpingectomy + appendectomy. Patient has follow-up scheduled to discuss more conservative surgical approach. Patient felt unhurried and appreciated that Lee performed a physical exam. I really liked how Dr. Lee spent a lot of time with me during the appt to answer all of my questions. I didn't feel like I was being rushed out. he throughout his entire work-up, exam, and me asking him 50 di”
r/r/Endo Mar 28, 2024 +1 pts
Hi, I just found your post as I was searching Dr. Ted Lee’s name as I plan to see him in NYC in a few months. So he is a big proponent of trying marijuana before Endo surgery? Is that because marijuana can be just as effective? I’m curious bc none of my doctors have recommended that before and I’m honestly willing to try it if it means I don’t have to endure a surgery and recovery.
r/r/endometriosis Mar 28, 2024 +1 pts
Dr. Lee has moved to NYU Langone in NYC. I’m planning to see him in a few months. What about him stood out to you as a surgeon? I’ve seen 2 other surgeons for consults in the past year, both told me I have at least stage 3 Endo but I’m scared to have surgery and instead just suffer every month with horrible cramps and digestive problems.
r/r/Endo Mar 28, 2024 +1 pts
That’s great! What about Dr. Lee stood out to you and made you comfortable with him as a surgeon? I’m planning to see him in NYC in a couple of months.
r/r/endometriosis Mar 28, 2024 +1 pts
I know this is a ln old post but how did your lap go with Dr. Lee? I’ll be seeing him in a few months for an Endo consult (already told I have Endo from multiple imaging studies) but curious about his surgical approach. Thx
r/r/endometriosis Apr 3, 2024 +1 pts
Good for you that you’re working with the team at NYU Langone! I’ve heard they are amazing. I’m actually planning to see Dr. Ted Lee there in a few months for an Endo surgery consult myself. I agree that it’s very difficult to find a functional medicine doctor with a gyno speciality. I can recommend a great functional medicine doctor if you’re interested, Dr. Elena Klimenko. She is wonderful and I will usually discuss with her my Endo symptoms and she is always looking for the root cause (I’m not there quite yet). She does take insurance if you have out of network benefits. If you have time to copy-paste the Dr. Poynor email that would be helpful, thank you!
r/r/endometriosis Jul 24, 2024 +1 pts
Hi, I’m following this dialogue as I have my first appt with Dr. Lee scheduled in August. I was first diagnosed with Endo back in 2016 (on imaging) and only in the last two years became familiar with excision specialists. I’ve heard great things about him and I want to make my appointment as productive as possible. What were some of the most important questions you asked during the consult? I am nervous about surgery because I’ve never had a lap before and worry about complications from surgery. But I also suffer 5-7 days every month in severe pain (predominantly GI related along with awful cramps) and right now I’m up at 3:30am bc I can’t sleep from the pain, as per usual, and my period hasn’t even started yet. I know the surgery has to happen bc things need to get cleaned up in there and I have a few chocolate cysts that have been in my body for decades at this point and should get removed and biopsied. Thank you in advance for any feedback you have.
r/r/endometriosis Jul 27, 2024 +1 pts
Thank you so much for this and my apologies for missing your response earlier! I will check out this website you sent about Dr. Lee. I’m so glad to hear that you have found the surgery to be life-changing for you. That’s very positive to hear as I’ve have anxiety about it. Did the surgery help with your digestive/GI symptoms associated with your period?
r/r/endometriosis Sep 20, 2024 +1 pts
Hi! I think I may have posted a few messages on your other prior convos. Yes, I saw Dr. Lee recently. In my first appt he said my case was Stage IV and he recommended removing my uterus, ovary with the largest endometrioma, my tubes, and appendix. I have a follow-up appointment with him next month to discuss my desire to keep my uterus, both ovaries, and tubes, and just do clean-up of Endo on my organs (including bowel). I really liked how Dr. Lee spent a lot of time with me during the appt to answer all of my questions. I didn’t feel like I was being rushed out. I also appreciated that he did an exam as I know not all surgeons do one and I think that’s an important step. I can totally understand you are feeling overwhelmed and nervous before your surgery. I would be as well and I know I will be once my surgery date is set. I know it may be hard but try to think as positively as you can right now. I will send you healing vibes for a quick recovery! ❤️🩹
r/r/endometriosis Oct 16, 2024 +2 pts
Thanks a lot for letting me know this information! I will discuss it with my doctor. I will be seeing Dr. Lee again soon for a follow-up consult!
r/r/Endo Feb 11, 2025 +1 pts
Yes, thank you for sharing your experience so that other women are forewarned about him. I also saw Dr. Vidali for an ultrasound and was charged $900 but saw that he charged my insurance company almost $3k for the appointment. He concurred that I had Stage IV DIE based on prior imaging studies alongside previous opinions from other reputable surgeons and also said he could see it on his ultrasound. I picked up some big red flags at his office (i.e. no office staff in the office, office located in a run-down hospital setting, couldn't seem to focus well during the appointment on what I explained to him, seemed to be very ADHD and also pulled out his iphone to start recording him explaining my MRI images to me (now I'm not even sure that is a HIPPA violation or not - will have to look into this). Separately have seen Dr. Lee and he throughout his entire work-up, exam, and me asking him 50 different questions and him answering all of them, he would definitely be the surgeon I would pick when I decide to have surgery.
Patient 8 Consulted Positive 11 posts
“I really liked how Dr. Lee spent a lot of time with me during the appt to answer all of my questions. I didn't feel like I was being rushed out. I also appreciated that he did an exam as I know not all surgeons do one and I think that's an important step.”
r/r/Endo Mar 28, 2024 +1 pts
Hi, I just found your post as I was searching Dr. Ted Lee’s name as I plan to see him in NYC in a few months. So he is a big proponent of trying marijuana before Endo surgery? Is that because marijuana can be just as effective? I’m curious bc none of my doctors have recommended that before and I’m honestly willing to try it if it means I don’t have to endure a surgery and recovery.
r/r/endometriosis Mar 28, 2024 +1 pts
Dr. Lee has moved to NYU Langone in NYC. I’m planning to see him in a few months. What about him stood out to you as a surgeon? I’ve seen 2 other surgeons for consults in the past year, both told me I have at least stage 3 Endo but I’m scared to have surgery and instead just suffer every month with horrible cramps and digestive problems.
r/r/Endo Mar 28, 2024 +1 pts
That’s great! What about Dr. Lee stood out to you and made you comfortable with him as a surgeon? I’m planning to see him in NYC in a couple of months.
r/r/endometriosis Mar 28, 2024 +1 pts
I know this is a ln old post but how did your lap go with Dr. Lee? I’ll be seeing him in a few months for an Endo consult (already told I have Endo from multiple imaging studies) but curious about his surgical approach. Thx
r/r/endometriosis Apr 3, 2024 +1 pts
Good for you that you’re working with the team at NYU Langone! I’ve heard they are amazing. I’m actually planning to see Dr. Ted Lee there in a few months for an Endo surgery consult myself. I agree that it’s very difficult to find a functional medicine doctor with a gyno speciality. I can recommend a great functional medicine doctor if you’re interested, Dr. Elena Klimenko. She is wonderful and I will usually discuss with her my Endo symptoms and she is always looking for the root cause (I’m not there quite yet). She does take insurance if you have out of network benefits. If you have time to copy-paste the Dr. Poynor email that would be helpful, thank you!
r/r/endometriosis Jul 24, 2024 +1 pts
Hi, I’m following this dialogue as I have my first appt with Dr. Lee scheduled in August. I was first diagnosed with Endo back in 2016 (on imaging) and only in the last two years became familiar with excision specialists. I’ve heard great things about him and I want to make my appointment as productive as possible. What were some of the most important questions you asked during the consult? I am nervous about surgery because I’ve never had a lap before and worry about complications from surgery. But I also suffer 5-7 days every month in severe pain (predominantly GI related along with awful cramps) and right now I’m up at 3:30am bc I can’t sleep from the pain, as per usual, and my period hasn’t even started yet. I know the surgery has to happen bc things need to get cleaned up in there and I have a few chocolate cysts that have been in my body for decades at this point and should get removed and biopsied. Thank you in advance for any feedback you have.
r/r/endometriosis Jul 27, 2024 +1 pts
Thank you so much for this and my apologies for missing your response earlier! I will check out this website you sent about Dr. Lee. I’m so glad to hear that you have found the surgery to be life-changing for you. That’s very positive to hear as I’ve have anxiety about it. Did the surgery help with your digestive/GI symptoms associated with your period?
r/r/endometriosis Sep 20, 2024 +1 pts
Hi! I think I may have posted a few messages on your other prior convos. Yes, I saw Dr. Lee recently. In my first appt he said my case was Stage IV and he recommended removing my uterus, ovary with the largest endometrioma, my tubes, and appendix. I have a follow-up appointment with him next month to discuss my desire to keep my uterus, both ovaries, and tubes, and just do clean-up of Endo on my organs (including bowel). I really liked how Dr. Lee spent a lot of time with me during the appt to answer all of my questions. I didn’t feel like I was being rushed out. I also appreciated that he did an exam as I know not all surgeons do one and I think that’s an important step. I can totally understand you are feeling overwhelmed and nervous before your surgery. I would be as well and I know I will be once my surgery date is set. I know it may be hard but try to think as positively as you can right now. I will send you healing vibes for a quick recovery! ❤️🩹
r/r/endometriosis Oct 16, 2024 +2 pts
Thanks a lot for letting me know this information! I will discuss it with my doctor. I will be seeing Dr. Lee again soon for a follow-up consult!
r/r/Endo Feb 11, 2025 +1 pts
Yes, thank you for sharing your experience so that other women are forewarned about him. I also saw Dr. Vidali for an ultrasound and was charged $900 but saw that he charged my insurance company almost $3k for the appointment. He concurred that I had Stage IV DIE based on prior imaging studies alongside previous opinions from other reputable surgeons and also said he could see it on his ultrasound. I picked up some big red flags at his office (i.e. no office staff in the office, office located in a run-down hospital setting, couldn't seem to focus well during the appointment on what I explained to him, seemed to be very ADHD and also pulled out his iphone to start recording him explaining my MRI images to me (now I'm not even sure that is a HIPPA violation or not - will have to look into this). Separately have seen Dr. Lee and he throughout his entire work-up, exam, and me asking him 50 different questions and him answering all of them, he would definitely be the surgeon I would pick when I decide to have surgery.
Patient 10 Had Surgery Positive 10 posts
“Patient explicitly notes curt bedside manner but exceptional surgical skill. Performed laparoscopic removal of 3100g fibroid. Third-generation doctor described as world-class for extreme fibroid cases. Finally I found Dr Ted Lee of Langone, a world renowned laproscopic surgeon In NYC. No bedside manner but mad skills! I love his curt self with all my heart in gratitude.”
r/r/hysterectomy Jan 2, 2026 +12 pts
1 day post op for gigantic 7lb fibroid doing great
1 day post op for gigantic 7lb fibroid doing great
hi friends, I got so much support fr other stories on here I wanted to share. I’ve known I had fibroids since my first pregnancy 18 years ago. they grew morefor my seconds pregnancy then just kept growing Until I Iooked and felt 9 month pregnant. I didn’t have pain, so I kind of lived with it Gradually growing over time. eventually I became severely anemic from super heavy blood loss (bleeding through super tampon in 30 mins and super overnight pads too) I needed iron infusions Which made me so sick. One doctor prescribed me the Myfembree drug which was great and slowed my bleeding but can only be given for two years max. I sought multiple surgery doctor opinions (4) most of them scared me so much I couldn’t do it. (They talked of Giant scars, transfusions, high risk etc)
Finally I found Dr Ted Lee of Langone, a world renowned laproscopic surgeon In NYC. He said he would do the surgery, so on New Year’s Eve I had it done. I was crying the whole time in pre-op and the staff was so kind. In mymind I thought i had a 50-50 chance of dying. When I woke up in recovery I was so thankful, thanking Jesus I was alive. He said my fibroid was a 9 month pregnant equivalent and weighed almost 3100g or almost 7 lbs all done by laproscopic Technique. let me tell you, the 7 lbs gone from my body is nothing compared to the head space / mental anguish it was causing me with endless scenarios and googling for probably thousands of hours over the decade I waited to have it removed. I went home that day, my family all in lobby cheering for me to was finally over. I always wanted to see NYC on NYE but maybe not like this. still, I’m so glad I had it done. My stomach looks flat, for the first time in years I didn’t need antacid before bed and my blood pressure dropped at least 10 points when I took it today. I’m sore, but wouldn’t say I’m in a lot of pain. I also had a hemmrood surgery years ago which was a 10/10 for pain for days, I feel like a 5/10 now With my 5 laproscopic incisons. I kept my ovaries and cervix, so happy about that too. don’t be afraid ladies, you can do this and you will also be so happy.
r/r/hysterectomy Jan 2, 2026 +308 pts
My 9 month / 7 lb / 3100g fibroid before removal at Langone NYC with Dr Ted Lee laproscopically
My 9 month / 7 lb / 3100g fibroid before removal at Langone NYC with Dr Ted Lee laproscopically
r/r/hysterectomy Jan 2, 2026 +109 pts
Hi friends, I got so much support from other stories on here I wanted to share my own of it helps someone! I’ve known I had fibroids since my first pregnancy 18 years ago. I’m now 48 with no prior surgeries or anesthesia ever. the fibroids grew more-for my second pregnancy then just kept growing Until I Iooked and felt 9 months pregnant. I didn’t have pain, so I kind of lived with it, Gradually growing over time (18 years time) . eventually I became severely anemic from super heavy blood loss (bleeding through super tampon in 30 mins and super overnight pads too) I needed iron infusions Which made me so sick. One doctor prescribed me the Myfembree drug which was great and slowed my bleeding but can only be given for two years max. I sought multiple surgery doctor opinions (4) most of them scared me so much I couldn’t do it. (They talked of Giant scars, transfusions, high risk etc)
Finally I found Dr Ted Lee of Langone, a world renowned laproscopic surgeon In NYC. He said he would do the surgery, so on New Year’s Eve 2025 /2026 I had it done. I was crying the whole time in pre-op and the staff was so kind. In my mind I thought i had a 50-50 chance of dying. When I woke up in recovery I was so thankful, thanking Jesus I was alive. He said my fibroid was a 9 month pregnant equivalent and weighed almost 3100g or almost 7 lbs all done by laproscopic Technique. let me tell you, the 7 lbs gone from my body is nothing compared to the head space / mental anguish it was causing me with endless scenarios and googling for probably thousands of hours over the decades I waited to have it removed. I went home that day, my family all in lobby cheering for me as it was finally over. I always wanted to see NYC on NYE but maybe not like this. still, I’m so so glad I had it done. My stomach looks flat, for the first time in years I didn’t need antacid before bed and my blood pressure dropped at least 10 points when I took it today. I’m sore, but wouldn’t say I’m in a lot of pain. I also had a hemeroid surgery years ago which was a 10/10 for pain for days, I feel like a 5/10 now With my 5 laproscopic incisons. I’m only taking acetaminophen and Tylenol. I kept my ovaries and cervix, so happy about that too. don’t be afraid ladies, you can do this and you will also be so happy. You can cry your way into the OR convinced you will croak and they will still take great care of you! Here to everyone having a healthy and happy 2026!
r/r/hysterectomy Jan 2, 2026 +19 pts
There are only a few doctors who will do it this big. I searched all over to find Dr Ted Lee at Langone. He’s a third generation doctor and world class. No bedside manner but mad skills! I love his curt self with all my heart in gratitude.
r/r/hysterectomy Jan 2, 2026 +4 pts
Yes they did!! It went great. I’m feeling good now 36 hours post op. Dr Ted Lee at Langone is amazing!!
r/r/hysterectomy Jan 2, 2026 +2 pts
Dr Lee is amazing. Do t be put off by his curt manner, we go to him for his crazy skill. He is a blessing to humanity. The or staff was super supportive, I cried with every new face that came in to introduce themselves and they were so so kind. I love Dr Lee with all my heart for how he helped me not for his bedside manner lol. You will be in excellent hands!
r/r/hysterectomy Jan 2, 2026 +2 pts
Also I’m not sure if it’s possible but a Dr Lee was also my anesthesiologist if you can request her she was amazing at relieving my fears and has wonderful bedside manner.
r/r/hysterectomy Jan 5, 2026 +1 pts
Consider getting a second opinion at Langone. Insurance delays for Myfembree med took so long the original doctor I had set up at Brigham and woman’s left his practice and I had to start lll over with Dr Ted lee but so glad I did. There were additional insurance delays with trying to get orlissa to shrink it preop. I had so many delays, so much fear, but I’m grateful to God it all went well and it will for you too
r/r/hysterectomy Jan 18, 2026 +2 pts
I think I was under 3.5-4 hours? Only a very small percent of surgeons can do this extreme surgery, but the ones who do are amazing. You might have to travel to find one who will do it. Dr Ted Lee at Langone was my surgeon I traveled from Philly to NYC to see him
r/r/hysterectomy Jan 18, 2026 +3 pts
Only a very small percent of surgeons can do this extreme surgery, but the ones who do are amazing. You might have to travel to find one who will do it. Dr Ted Lee at Langone was my surgeon I traveled from Philly to NYC to see him. Brigham and women’s in Boston can possibly do it was well as some in California
Patient 40 Consulted Mixed 10 posts Complication laparoscopyexcision surgerypresacral neurectomy
“Surgery was successful — endo found and excised, presacral neurectomy performed. Pain improved significantly; fatigue improved greatly. However, PSN provided limited relief for adenomyosis-related pain. Consultation experience was highly negative: dismissive, cut patient off, questioned her symptoms, pushed psychiatry referral, poor bedside manner. Patient left consultation crying. Post-op: attempted fibromyalgia diagnosis with little basis, causing complications with other doctors at UPMC. Pati”
Reported complications: constipation post-PSN (temporary)
r/r/Endo Nov 3, 2019 +1 pts
Dr. Ted Lee and Dr. Nicole Donnellan are at UPMC Magee's in Pittsburgh. Dr. Suketu Mansuria I don't think is always at Magee's, but he practices at UPMC as well. I'm seeing Dr. Ted Lee this month — I'm out of state, but my husband has loved the care at UPMC.
You can get the bios about them online, I believe. I know Dr. Lee and Dr. Donnellan have completed a fellowship in minimally invasive gynecological surgery, meaning they spent 2 years with several days a week in the OR. If you want to schedule with them, the scheduler does not actually have access to their true availability, and I had to get a call back from the front desk. You need to say that you are looking for an opinion on [possible] endometriosis, and you heard they are accepting patients for those concerns.
All the best. xo
r/r/Endo Nov 23, 2019 +3 pts
It depends on where you're moving to on the east coast, but thankfully you'll have plenty of options.
Pittsburgh has three phenomenal doctors (Dr. Ted Lee, Dr. Nicole Donnellan, Dr. Mansuria Suketu) at UPMC hospitals.
The Center for Endometriosis care in Atlanta (Dr. Ken Sinervo and Dr. Jeff Arrington) is also great from what I've heard, with a skilled multidisciplinary team.
Nancy's Nook on FB has some more recommendations if you're not already on there. It seems most states on the far east coast have a good specialist with great reviews within a couple hours.
r/r/Endo Jan 21, 2020 +2 pts
Dr. Ted Lee, Dr. Nicole Donnellan, and Dr. Suketu Mansuria are all within the city and are recommended as endometriosis/excision specialists. When you call, make sure you say you're calling for a second opinion for endometriosis (or something of the like). I was told Dr. Lee was not accepting new patients (for annuals, basically), and I said that I was told he was seeing patients for suspected / confirmed endometriosis. They had to double check with the front desk, and I got a call back about 10 minutes later. Dr. Lee in particular is in the office at max two days a week, so it took me about a month and a half to get in at the end of last year, and I was told he was accepting surgeries about a month out (start of the year) which was pretty quick, all things considered. I have my lap with him this week. He's straight and to the point, and my anxiety (after having a botched lap a month prior) caused me to cry and feel frustrated after my appointment, but I know he genuinely cares and doesn't want to sugar coat. So if you go see him, do expect him to have not-so-great bedside manner, but know that he does care and takes your pain seriously.
Good luck! Let me know if you have any questions.
r/r/Endo Jan 24, 2020 +35 pts
Back in October, I had a laparoscopy with a wonderful doctor who unfortunately only spent one day a month in the OR. I went through with the lap because I was hopeful that my doctor would find something, anything, to explain my symptoms. She made an incision in my belly button and one on my right side, spent maybe 20 minutes in the OR, and proclaimed I didn't have endo.
My first post-lap experience was hell—nobody explained that I would bleed vaginally or why, and I woke up with a pad messily shoved between my legs. They kept giving me fentanyl despite how poorly I clearly reacted to it. They removed my IV before I was fully conscious, which leaked everywhere on my bed, so I had to dry off with the blankets while feeling absolutely terrible. I couldn't stand without being extremely dizzy and nauseous, but they still ushered me out via wheelchair and sent me on my way.
I decided to travel to UPMC in Pittsburgh to see Dr. Ted Lee. I walked into my lap today surrounded by very caring nursing staff, a quirky anesthesiologist, a nurse anesthetist whose partner had endo, and people who continually checked on my well being. Dr. Lee is a man of few words and to the point, but I trusted his skills. I took several pills pre-surgery that they said would help with pain, nausea, and the like so that I would feel better when waking up. I was comfortably talking to my nursing staff while the nurse anesthetist held the oxygen mask to my face and told me to breathe.
Sure enough, Dr. Lee found endo near my ureter on my uterosacral ligaments. He also performed a presacral neurectomy as we agreed the pros outweighed the (likely short-lived) cons.
After surgery, the staff continuously checked on me to see how I was doing, put a pad in a very stretchy, comfortable underwear for me and helped me slide it on. I woke up with two IVs because of the PSN, and they kept the IVs in until I was feeling better. They brought the meds TO my husband so he didn't have to leave my side during or after recovery. They also brought additional oral nausea meds and the patch for behind the ear (since I began getting nauseous off the IV).
If you haven't seen an excision specialist and were told by a general OB/GYN that you do not have endo, please seek out a second opinion. Dr. Lee was pretty skeptical that he would even find any endo, but he believed in my pain (also prescribed me a pain med that I unfortunately cannot take as a federal contractor, but he thought it might help). I had a huge packet to take home with detailed, specific instructions for meds and a number to call 24/7 if I have any issues.
I'm very surprised at how great I feel today. I know mentally, I wasn't in a great spot post-lap last time, but I feel amazing and plan on using the next two weeks to recover and take it easy.
Your health is important, and it's a hell of a fight, but you got this. ❤
r/r/Endo Jan 24, 2020 +3 pts
It sounds like the "big three" are all extremely skilled and work hard to get you feeling better (Dr. Lee/Dr. Donnellan/Dr. Mansuria). If you do see Dr. Lee, remind yourself he can be a bit brusque, and his bedside manner isn't great, but he truly does care about you. I actually left in tears after my first appointment because I had been so anxious about seeing another doctor so shortly after my failed lap. Once I had time to reflect, I saw that he had done nothing wrong and was truly just concerned for my well being. I only saw him for a few minutes pre-surgery, which was fine, because all of the nursing staff I had were absolutely amazing.
If you do opt for a presacral neurectomy, I think most if not all three of the doctors can perform them (I know that Dr. Lee obviously does 😁). This is truly a testament to their surgical skills since it's a high-level procedure (right near an artery).
If you do end up getting a lap, be sure the person you bring records the post-op conversation. Dr. Lee pointed out specifics in my pictures for my husband.
Best of luck! ❤
r/r/Endo Mar 6, 2020 +1 pts
* January 23 of this year. I'm doing pretty good. I had always wondered if I had CFS but excision has made my fatigue lightyears better.
* Dr. Ted Lee at UPMC in Pittsburgh. He is a Nook doctor and specializes in minimally invasive gynecological surgery. His bedside manner just leaves a lot to be desired.
* My insurance "covers" the procedure and it was in network, but it was still very expensive, and I ended up paying $4,200 and hitting my max out of pocket for the year (with 90/10 coinsurance).
* Small complications post op mostly attributed to getting a presacral neurectomy. (Mostly constipation.)
* Minimal involvement — stage 1 I imagine. Endo found near my left ureter on my uterosacral ligaments.
r/r/Endo May 11, 2020 +10 pts
Dr. Ted Lee review (excision specialist) PA, USA
Dr. Ted Lee review (excision specialist) PA, USA
Hi friends,
I know a lot of people search for results with doctors on here, so I wanted to give my experience with Dr. Ted Lee in Pittsburgh.
I spent some time analyzing my experiences with him and whether I felt I was overreacting (I left my consultation crying, I had anxiety going into my post-op just because I had to talk to him, and so on). However, I decided that how I felt was justified.
I will say that have immense confidence in his skills. This was thankfully never an issue — I knew he would find endo if it was there and that it would be appropriately taken care of. He was also able to perform a presacral neurectomy, which is a difficult procedure. Much of my pain has gone away since surgery, and pelvic floor therapy is wrapping up some of the loose ends from the endo inflammation.
However, I felt my consultation was a disaster. I found him very difficult to talk to, very dismissive, and he often cut me off. I've had a lot of doctors, and his bedside manner is the absolute worst of them all. I had a negative lap about 2 months prior and was looking for a second opinion. I mentioned that I found him through the Nook, and he made an offhand comment that sounded like he disapproved because people "become convinced they have endo on there." He said I didn't exhibit classic symptoms of endo, and because I didn't "react" the way apparently most of his patients do to his pelvic exam, he was very doubtful that I had it. He made no other suggestions for what could be going on with my pelvic area. I became slightly emotional after he left the room because of how poorly the appointment was going. When he came back in, he kept asking if I had a history of depression and whether I was depressed. Despite me saying I was doing pretty well, he kept insisting I see a psychiatrist. I know very well that mental health affects physical health, and I also knew that this wasn't the source of most of my pain, so it felt like I was being brushed off since he was more concerned about that than my other symptoms.
After surgery, he told my husband that he was confident that I would be feeling a lot better. During my post-op, however, he kept trying to diagnose me with fibromyalgia with little to base it on. He had previously prescribed medication that I said I can't take (THC) and another medication he thought might help with fibromyalgia (which the side effects conflict with his earlier assessment that I needed to see a psychiatrist). Because of this, another doctor I'm seeing at that hospital thinks I have fibromyalgia and that endo wasn't my problem, so I now have to explain myself to any doctor I see there.
I think he's a great surgeon for people who already have confirmed diagnoses of endo, plus recovery at the hospital was fantastic. So if you already have a confirmed diagnosis, I think he might be a good fit because he is thorough and knows what he's doing in the operating room.
However, I can't recommend him for those who are trying to get diagnosed. I'm thankful I was able to find a doctor close-ish because of the Nook, but I'm really disappointed in his level of care outside of surgery. It seemed to me like he needed his ego checked. I talked to Nancy about this and she said that unfortunately, my experience is not uncommon, but we both know that he is a great surgeon. Thankfully, if you're in the Pittsburgh area, there are 3 other excision specialists at Magee that trained under Dr. Lee, and I've read better reviews about their attitudes.
r/r/hysterectomy Jan 28, 2022 +9 pts
Nicole Donnellan in Pittsburgh did mine. I asked for one, and she immediately accepted. I was 26 with no kids and no diagnosed issues other than endo and pelvic floor dysfunction. She and several other doctors at UPMC Magee-Womens are endo specialists, so they're very well versed in surgery compared to regular OBGYNs.
She had a very long wait due to Covid (took 7 months for appointment and then 4 months for surgery), but this was my second surgery at Magee and I highly recommend the hospital. I also saw Ted Lee for my excision surgery, but from what I understand, a lot of the doctors here are very understanding of bodily autonomy.
I hope that's not too far, and I wish you luck.
r/r/adenomyosis Feb 14, 2022 +5 pts
Dr. Lee performed my presacral neurectomy, so at least from a surgical standpoint, he is a doctor you can trust to perform it. We went over the pros and cons, and he said many of the issues you might experience post-op (constipation namely) are temporary. I was in pelvic floor therapy as well and saw a lot of progress afterward in post-op symptoms, and I'm confident in saying I had no lasting side effects.
However, it hardly did anything for my pain. I noticed my pain that usually fluctuated around a 4—6 on days 3—4 of my period were maybe lessened a point.
I sought out his colleague and has a hysterectomy recently (two years after my endo excision / PSN). Pathology came back positive for adeno. A PSN is unfortunately quite hit or miss in folks with adeno because it predominantly helps with midline pain — my uterus just pissed off everything around it, so I was still in so much pain.
Are you in therapy at the moment? Managing chronic illnesses is so mentally and physically taxing. If you're in PA, there is a chronic pain therapist that they work with whom I met with once (unfortunately can't see her because of state lines), and she does telehealth visits.
r/r/adenomyosis Feb 27, 2022 +2 pts
It took me 7 months to see Dr. Donnellan and that was last year, so they're probably even more busy now. It took me less than 2 months to see Dr. Lee pre-Covid as a new patient.
I'm sorry that he did that. I had pretty much the. Same experience. His bedside manner is garbage, but his surgical skill is amazing.
Patient 9 Consulted Mixed 10 posts Complication laparoscopyexcisionpresacral neurectomy
“Endo excised successfully; PSN provided minimal pain relief for adenomyosis-related pain; hysterectomy later needed for adeno”
Reported complications: constipation post-PSN (temporary)
r/r/Endo Nov 3, 2019 +1 pts
Dr. Ted Lee and Dr. Nicole Donnellan are at UPMC Magee's in Pittsburgh. Dr. Suketu Mansuria I don't think is always at Magee's, but he practices at UPMC as well. I'm seeing Dr. Ted Lee this month — I'm out of state, but my husband has loved the care at UPMC.
You can get the bios about them online, I believe. I know Dr. Lee and Dr. Donnellan have completed a fellowship in minimally invasive gynecological surgery, meaning they spent 2 years with several days a week in the OR. If you want to schedule with them, the scheduler does not actually have access to their true availability, and I had to get a call back from the front desk. You need to say that you are looking for an opinion on [possible] endometriosis, and you heard they are accepting patients for those concerns.
All the best. xo
r/r/Endo Nov 23, 2019 +3 pts
It depends on where you're moving to on the east coast, but thankfully you'll have plenty of options.
Pittsburgh has three phenomenal doctors (Dr. Ted Lee, Dr. Nicole Donnellan, Dr. Mansuria Suketu) at UPMC hospitals.
The Center for Endometriosis care in Atlanta (Dr. Ken Sinervo and Dr. Jeff Arrington) is also great from what I've heard, with a skilled multidisciplinary team.
Nancy's Nook on FB has some more recommendations if you're not already on there. It seems most states on the far east coast have a good specialist with great reviews within a couple hours.
r/r/Endo Jan 21, 2020 +2 pts
Dr. Ted Lee, Dr. Nicole Donnellan, and Dr. Suketu Mansuria are all within the city and are recommended as endometriosis/excision specialists. When you call, make sure you say you're calling for a second opinion for endometriosis (or something of the like). I was told Dr. Lee was not accepting new patients (for annuals, basically), and I said that I was told he was seeing patients for suspected / confirmed endometriosis. They had to double check with the front desk, and I got a call back about 10 minutes later. Dr. Lee in particular is in the office at max two days a week, so it took me about a month and a half to get in at the end of last year, and I was told he was accepting surgeries about a month out (start of the year) which was pretty quick, all things considered. I have my lap with him this week. He's straight and to the point, and my anxiety (after having a botched lap a month prior) caused me to cry and feel frustrated after my appointment, but I know he genuinely cares and doesn't want to sugar coat. So if you go see him, do expect him to have not-so-great bedside manner, but know that he does care and takes your pain seriously.
Good luck! Let me know if you have any questions.
r/r/Endo Jan 24, 2020 +35 pts
Back in October, I had a laparoscopy with a wonderful doctor who unfortunately only spent one day a month in the OR. I went through with the lap because I was hopeful that my doctor would find something, anything, to explain my symptoms. She made an incision in my belly button and one on my right side, spent maybe 20 minutes in the OR, and proclaimed I didn't have endo.
My first post-lap experience was hell—nobody explained that I would bleed vaginally or why, and I woke up with a pad messily shoved between my legs. They kept giving me fentanyl despite how poorly I clearly reacted to it. They removed my IV before I was fully conscious, which leaked everywhere on my bed, so I had to dry off with the blankets while feeling absolutely terrible. I couldn't stand without being extremely dizzy and nauseous, but they still ushered me out via wheelchair and sent me on my way.
I decided to travel to UPMC in Pittsburgh to see Dr. Ted Lee. I walked into my lap today surrounded by very caring nursing staff, a quirky anesthesiologist, a nurse anesthetist whose partner had endo, and people who continually checked on my well being. Dr. Lee is a man of few words and to the point, but I trusted his skills. I took several pills pre-surgery that they said would help with pain, nausea, and the like so that I would feel better when waking up. I was comfortably talking to my nursing staff while the nurse anesthetist held the oxygen mask to my face and told me to breathe.
Sure enough, Dr. Lee found endo near my ureter on my uterosacral ligaments. He also performed a presacral neurectomy as we agreed the pros outweighed the (likely short-lived) cons.
After surgery, the staff continuously checked on me to see how I was doing, put a pad in a very stretchy, comfortable underwear for me and helped me slide it on. I woke up with two IVs because of the PSN, and they kept the IVs in until I was feeling better. They brought the meds TO my husband so he didn't have to leave my side during or after recovery. They also brought additional oral nausea meds and the patch for behind the ear (since I began getting nauseous off the IV).
If you haven't seen an excision specialist and were told by a general OB/GYN that you do not have endo, please seek out a second opinion. Dr. Lee was pretty skeptical that he would even find any endo, but he believed in my pain (also prescribed me a pain med that I unfortunately cannot take as a federal contractor, but he thought it might help). I had a huge packet to take home with detailed, specific instructions for meds and a number to call 24/7 if I have any issues.
I'm very surprised at how great I feel today. I know mentally, I wasn't in a great spot post-lap last time, but I feel amazing and plan on using the next two weeks to recover and take it easy.
Your health is important, and it's a hell of a fight, but you got this. ❤
r/r/Endo Jan 24, 2020 +3 pts
It sounds like the "big three" are all extremely skilled and work hard to get you feeling better (Dr. Lee/Dr. Donnellan/Dr. Mansuria). If you do see Dr. Lee, remind yourself he can be a bit brusque, and his bedside manner isn't great, but he truly does care about you. I actually left in tears after my first appointment because I had been so anxious about seeing another doctor so shortly after my failed lap. Once I had time to reflect, I saw that he had done nothing wrong and was truly just concerned for my well being. I only saw him for a few minutes pre-surgery, which was fine, because all of the nursing staff I had were absolutely amazing.
If you do opt for a presacral neurectomy, I think most if not all three of the doctors can perform them (I know that Dr. Lee obviously does 😁). This is truly a testament to their surgical skills since it's a high-level procedure (right near an artery).
If you do end up getting a lap, be sure the person you bring records the post-op conversation. Dr. Lee pointed out specifics in my pictures for my husband.
Best of luck! ❤
r/r/Endo Mar 6, 2020 +1 pts
* January 23 of this year. I'm doing pretty good. I had always wondered if I had CFS but excision has made my fatigue lightyears better.
* Dr. Ted Lee at UPMC in Pittsburgh. He is a Nook doctor and specializes in minimally invasive gynecological surgery. His bedside manner just leaves a lot to be desired.
* My insurance "covers" the procedure and it was in network, but it was still very expensive, and I ended up paying $4,200 and hitting my max out of pocket for the year (with 90/10 coinsurance).
* Small complications post op mostly attributed to getting a presacral neurectomy. (Mostly constipation.)
* Minimal involvement — stage 1 I imagine. Endo found near my left ureter on my uterosacral ligaments.
r/r/Endo May 11, 2020 +10 pts
Dr. Ted Lee review (excision specialist) PA, USA
Dr. Ted Lee review (excision specialist) PA, USA
Hi friends,
I know a lot of people search for results with doctors on here, so I wanted to give my experience with Dr. Ted Lee in Pittsburgh.
I spent some time analyzing my experiences with him and whether I felt I was overreacting (I left my consultation crying, I had anxiety going into my post-op just because I had to talk to him, and so on). However, I decided that how I felt was justified.
I will say that have immense confidence in his skills. This was thankfully never an issue — I knew he would find endo if it was there and that it would be appropriately taken care of. He was also able to perform a presacral neurectomy, which is a difficult procedure. Much of my pain has gone away since surgery, and pelvic floor therapy is wrapping up some of the loose ends from the endo inflammation.
However, I felt my consultation was a disaster. I found him very difficult to talk to, very dismissive, and he often cut me off. I've had a lot of doctors, and his bedside manner is the absolute worst of them all. I had a negative lap about 2 months prior and was looking for a second opinion. I mentioned that I found him through the Nook, and he made an offhand comment that sounded like he disapproved because people "become convinced they have endo on there." He said I didn't exhibit classic symptoms of endo, and because I didn't "react" the way apparently most of his patients do to his pelvic exam, he was very doubtful that I had it. He made no other suggestions for what could be going on with my pelvic area. I became slightly emotional after he left the room because of how poorly the appointment was going. When he came back in, he kept asking if I had a history of depression and whether I was depressed. Despite me saying I was doing pretty well, he kept insisting I see a psychiatrist. I know very well that mental health affects physical health, and I also knew that this wasn't the source of most of my pain, so it felt like I was being brushed off since he was more concerned about that than my other symptoms.
After surgery, he told my husband that he was confident that I would be feeling a lot better. During my post-op, however, he kept trying to diagnose me with fibromyalgia with little to base it on. He had previously prescribed medication that I said I can't take (THC) and another medication he thought might help with fibromyalgia (which the side effects conflict with his earlier assessment that I needed to see a psychiatrist). Because of this, another doctor I'm seeing at that hospital thinks I have fibromyalgia and that endo wasn't my problem, so I now have to explain myself to any doctor I see there.
I think he's a great surgeon for people who already have confirmed diagnoses of endo, plus recovery at the hospital was fantastic. So if you already have a confirmed diagnosis, I think he might be a good fit because he is thorough and knows what he's doing in the operating room.
However, I can't recommend him for those who are trying to get diagnosed. I'm thankful I was able to find a doctor close-ish because of the Nook, but I'm really disappointed in his level of care outside of surgery. It seemed to me like he needed his ego checked. I talked to Nancy about this and she said that unfortunately, my experience is not uncommon, but we both know that he is a great surgeon. Thankfully, if you're in the Pittsburgh area, there are 3 other excision specialists at Magee that trained under Dr. Lee, and I've read better reviews about their attitudes.
r/r/hysterectomy Jan 28, 2022 +9 pts
Nicole Donnellan in Pittsburgh did mine. I asked for one, and she immediately accepted. I was 26 with no kids and no diagnosed issues other than endo and pelvic floor dysfunction. She and several other doctors at UPMC Magee-Womens are endo specialists, so they're very well versed in surgery compared to regular OBGYNs.
She had a very long wait due to Covid (took 7 months for appointment and then 4 months for surgery), but this was my second surgery at Magee and I highly recommend the hospital. I also saw Ted Lee for my excision surgery, but from what I understand, a lot of the doctors here are very understanding of bodily autonomy.
I hope that's not too far, and I wish you luck.
r/r/adenomyosis Feb 14, 2022 +5 pts
Dr. Lee performed my presacral neurectomy, so at least from a surgical standpoint, he is a doctor you can trust to perform it. We went over the pros and cons, and he said many of the issues you might experience post-op (constipation namely) are temporary. I was in pelvic floor therapy as well and saw a lot of progress afterward in post-op symptoms, and I'm confident in saying I had no lasting side effects.
However, it hardly did anything for my pain. I noticed my pain that usually fluctuated around a 4—6 on days 3—4 of my period were maybe lessened a point.
I sought out his colleague and has a hysterectomy recently (two years after my endo excision / PSN). Pathology came back positive for adeno. A PSN is unfortunately quite hit or miss in folks with adeno because it predominantly helps with midline pain — my uterus just pissed off everything around it, so I was still in so much pain.
Are you in therapy at the moment? Managing chronic illnesses is so mentally and physically taxing. If you're in PA, there is a chronic pain therapist that they work with whom I met with once (unfortunately can't see her because of state lines), and she does telehealth visits.
r/r/adenomyosis Feb 27, 2022 +2 pts
It took me 7 months to see Dr. Donnellan and that was last year, so they're probably even more busy now. It took me less than 2 months to see Dr. Lee pre-Covid as a new patient.
I'm sorry that he did that. I had pretty much the. Same experience. His bedside manner is garbage, but his surgical skill is amazing.