Dr. Jeff Arrington

Okay so first from all my research I have to say that that is false It is not irrecoverable because there are extreme specialists out there who work with such cases and if they never gave you a diagnosis of what stage you're at then that's a big sign they were not a specialist in the first place I highly recommend that you speak with someone in New York or California Dr Cook Dr arrington or another well-known specialist in the UK who is truly a specialist

I'm gonna say yes you have endo, no doubt about it. I wish I woukdv listened to my body last time and avoided wh re I am now. Endo gets progressively worse if you don't permanently remove your lessions from within. It sounds like you have a ruptured cyst , and when that happens your endo cells will leak more endo cells to the everything surrounding it and respread even further. That is why is eloquently called a sister to cancer because it grows and spreads so much. Go to a specialist like de. Vidalia or Dr. Cook. Or Dr. Duke. Or Dr. Arrington or Dr. Sinervo or another well known specialist so they can properly get rid of all lessions before you loose parts of your organs like me

Yes I found out it's because of the intense inflammation in the deep bowel endometriosis causes extreme bloating and inflation of your intestines and surrounding organs like your bladder and stomach that it becomes to painful to have sex or to insert tampons or cups of any kind. The only cupni can handle now is the nixit because it sits above where the pelvic bone space is. However it still hurts. It's become so bad for me that I couldn't even handle sitting up. My vagina used to be large enough to maneuver three fingers to place my menstrual cup but now I can barely get two in. I have bowel obstruction as well so dr. Arrington of the CEC in georgia will be doing a bowel resection and I also have adenomyosis which is now just dead muscle so it also needs to be removed.

CEC patients!!!! I Want stories of deep bowel resection recovery time frame,+lung/diaphragm endo excision recovery time+ or waiting timeline after speaking with CEC CEC patients!!!! I Want stories of deep bowel resection recovery time frame,+lung/diaphragm endo excision recovery time+ or waiting timeline after speaking with CEC Hey CEC patients. Anyone who had surgery from Dr. Sinervo or Dr.Arrington. please share how long you had to wait after speaking with doctor to get scheduled for surgery! Also anyone who got a bowel resection or had excision from lungs or diaphragm, how did recovery go I. Detail? How long where you in bed? How long till you could walk around on your own or use the bathroom. We are traveling to Atlanta georgia for the surgery and think we will need to stay for at least 7 days. What was your guys experience! Thank you !

First of all, THANKYOU!! for all the awesome info! Was the catheter bothersome?painful? I am told that I likely won't need a bowel resection anymore and that the a VATS is also unlikely. But a cystoscopy or partial one may be performed. I'm sorry you had to deal with thoracic endo! Dr. Arrington thinks my symptoms are minor enough that we should my lungs alone for the time being, but I'm still a bit worried wether it's asthma or thoracic endo. Thanks again!

You need a real specialist to fix everything fist. Try Dr. Arrington at the CEC or Dr. Sinervo at the cec or Dr. Cook or Dr. Andrea vivaldi in new York. They know how to remove all lessions and provide best chances of getting pregnant afterward without ivf. Ivf should not be your first go to post op. It should be a last option after all else fails

Unfortunately for me, after a botched 1st attempt at excision with a fake specialist I sought after world renowned specialist Dr. Arrington of Dr. Sinervo office to do my next and final lap. ...I was expecting for all endo to be removed except for my adenomyosis in my uterus... But I at least expected pain relieve from my bowel issues. ...instead I found myself a day post op no longer feeling any of the annoying hum of pain that was always constant from endo. The Hum that made it hard to breathe, near impossible to poop and difficult to eat or sleep. ... But unfortunately the pain of being able to eat, sleep, and poop never went away. I learned there was something else wrong as I started pooping blood and my cycle, after 7 days post op, which had always been ignored via BC all of sudden started bleeding every two weeks. The pain was worse than before but for two weeks instead of one... I'm now trying to get to the bottom of what is causing all this bowel issue. It sounds like cancer but I'm hoping it's something easier. My pathology on my bowels came back negative.... But it could also been my adenomyosis

I hear that you're saying you don't want to do any more surgeries but from what it sounds like to me is that you have the wrong kind of surgeon because if you're still in pain after all those surgeries then that means that the endometriosis is still inside your body and it's just not getting removed but instead getting spread everywhere try talking to a real endo specialist. Known true specialists are Dr. Andrea Vivaldi, Dr. Cook, Dr Sinervo or Dr Arrington. They deal with known complex repeated surgeries like me and my mom going on her 7th surgery well past her menopause years but was still in constant pain from endo. They removed everything but didn't help not until Dr. Arrington and Dr Sinervo were able to completely remove all endo from her. She even had tried depro for years and no luck until Dr. Sinervo helped. Now she is finally pain free.

Hi, looking to get arrington at endowest for another round of Endo excision and because he just started endowest, Im wondering about the price. Like can you tell me how much you had to pay upfront, afterwards and if they had any payment plans , what they looked like both with endowest and with hospital? I know I need 5k upfront on day 1 of seeing arrington. Thanks ahead so much!

Recto- endometriosis, Bowel Endo victim/warrior pls pitch in!!! What comfort helps do you use Recto- endometriosis, Bowel Endo victim/warrior pls pitch in!!! What comfort helps do you use What things do you guys use to help with the constant pain from internal pressure, nausea, gas, bowel pain and just everything. So I was stage 4 had recto Endo that spread to diaphragm, rectum, cul de sac and cervix. It got as bad as me having sepsis and I lost the ability to walk cuz the pain prevented me from using hip joint movement. The constant gas buildup even though I try to stay on the fodmap. Brown rice, greens, legumes, and oats cause so much gas and issues for me later. Taking gasx every day can't be good and the pain pills literally don't do anything for the gas pain. It gets so bad that it hurts in my rectume I can't sit or lay down in any sort of possition. Last time I relied on two large squashmallows to help ease the pain of just existing. But what do you other recto sufferers do? Exercise obviously makes things worse. Heat used to help when I started getting bad but now it makes it worse so I have found cold is actually better. Conserving energy of course keeps inflammation down. Not eating keeps inflammation down but then I begin to shake and collapse from lack of nutrients. Tumeric does nothing or I'm just not obsorbing nutrients properly. I stopped wearing pants completely unless I can't find my long dresses and I know I'm gonna bend a lot since I have a toddler. I also found that wearing a bra made the bloating worse too. My body hates any stimulus when I'm in pain and the stress definitely makes it worse. But if you guys have a secret that I don't yet know please share!!!! I'm on the wait-list for Medicaid endo surgery because I can't afford Dr.Arrington again. It took 30k last time to do surgery and that was a miracle. Anyways please help with suggestions! Thanks!!

I went to my appointment with him recently and he quoted a lot of research that supported estrogen and also that supported HT shrinks endo. But when I mentioned research that contradicts those findings he said I probably misunderstood them. I've learned from Endo doctors around the world quote and teach me the same things I tried to tell dassell but he didn't really believe me. He was nice about though. He was the kindest and most thorough doctor I have ever ever ever met. I spent three hours in his appnt and I'm actually happy about that. He is truly the most sincere doctor I think I've ever met. I wish the best for him, forever and ever. Although I don't agree with everything he said I value his opinion and am willing to give it a try because he is so thourough. I actually just asked straight up for another excision surgery and he didn't think I still have Endo. He wanted me to do pelvic floor therapy and muscle relaxers to help my rectal pain/pressure. I tried to tell him I have pain in the rear and he misunderstood that to mean my lower back. I said I'd give PFT a try and we upped my dosage of progesterone to add prometrium at 200 mg but I upped it again to 400mg. Since I used to be at 600mg years ago...I immediately saw an improvement for a week or two before I got worse again. I'm back to being in near constant pain after three weeks. Although the spotting has stopped, I'm getting desperate, I'm always sick to the stomach, but can't afford another out of pocket surgery that costs 33k for excision surgery with Dr. Arrington in draper,UT. My fatigue is gigantic and I can't eat anything without tons of abdominal pain. So this is what I've got to go on

I'm not the one you asked, but I had surgery with arrington back in 21' I had lost the ability to walk, poop, eat back then. He gave it back to me. It took a while to feel truly better but after 6 months I got pregnant and that is what really helped me feel better. My baby is turning 3 next month and I'm back to feeling sick again. I can still walk but eating is getting painful and difficult. I'm so so fatigued all the time. Constantly nauseous and using the bathroom is getting more difficult with each month. I had Endo on rectum, cervix, and diaphragm and appendix. I waited 4 months for dassel because I can't afford another 33k$ out of pocket for surgery with arrington. I'm on Medicaid and since I'm totally disabled my husband worked to death to pay for my surgery and I didn't want him to do that again so I'm going through Medicaid to hopefully get an excision paid and dassell is the only thing close to a specialist that is in network

Okay so first from all my research I have to say that that is false It is not irrecoverable because there are extreme specialists out there who work with such cases and if they never gave you a diagnosis of what stage you're at then that's a big sign they were not a specialist in the first place I highly recommend that you speak with someone in New York or California Dr Cook Dr arrington or another well-known specialist in the UK who is truly a specialist

I'm gonna say yes you have endo, no doubt about it. I wish I woukdv listened to my body last time and avoided wh re I am now. Endo gets progressively worse if you don't permanently remove your lessions from within. It sounds like you have a ruptured cyst , and when that happens your endo cells will leak more endo cells to the everything surrounding it and respread even further. That is why is eloquently called a sister to cancer because it grows and spreads so much. Go to a specialist like de. Vidalia or Dr. Cook. Or Dr. Duke. Or Dr. Arrington or Dr. Sinervo or another well known specialist so they can properly get rid of all lessions before you loose parts of your organs like me

Yes I found out it's because of the intense inflammation in the deep bowel endometriosis causes extreme bloating and inflation of your intestines and surrounding organs like your bladder and stomach that it becomes to painful to have sex or to insert tampons or cups of any kind. The only cupni can handle now is the nixit because it sits above where the pelvic bone space is. However it still hurts. It's become so bad for me that I couldn't even handle sitting up. My vagina used to be large enough to maneuver three fingers to place my menstrual cup but now I can barely get two in. I have bowel obstruction as well so dr. Arrington of the CEC in georgia will be doing a bowel resection and I also have adenomyosis which is now just dead muscle so it also needs to be removed.

CEC patients!!!! I Want stories of deep bowel resection recovery time frame,+lung/diaphragm endo excision recovery time+ or waiting timeline after speaking with CEC CEC patients!!!! I Want stories of deep bowel resection recovery time frame,+lung/diaphragm endo excision recovery time+ or waiting timeline after speaking with CEC Hey CEC patients. Anyone who had surgery from Dr. Sinervo or Dr.Arrington. please share how long you had to wait after speaking with doctor to get scheduled for surgery! Also anyone who got a bowel resection or had excision from lungs or diaphragm, how did recovery go I. Detail? How long where you in bed? How long till you could walk around on your own or use the bathroom. We are traveling to Atlanta georgia for the surgery and think we will need to stay for at least 7 days. What was your guys experience! Thank you !

First of all, THANKYOU!! for all the awesome info! Was the catheter bothersome?painful? I am told that I likely won't need a bowel resection anymore and that the a VATS is also unlikely. But a cystoscopy or partial one may be performed. I'm sorry you had to deal with thoracic endo! Dr. Arrington thinks my symptoms are minor enough that we should my lungs alone for the time being, but I'm still a bit worried wether it's asthma or thoracic endo. Thanks again!

You need a real specialist to fix everything fist. Try Dr. Arrington at the CEC or Dr. Sinervo at the cec or Dr. Cook or Dr. Andrea vivaldi in new York. They know how to remove all lessions and provide best chances of getting pregnant afterward without ivf. Ivf should not be your first go to post op. It should be a last option after all else fails

Unfortunately for me, after a botched 1st attempt at excision with a fake specialist I sought after world renowned specialist Dr. Arrington of Dr. Sinervo office to do my next and final lap. ...I was expecting for all endo to be removed except for my adenomyosis in my uterus... But I at least expected pain relieve from my bowel issues. ...instead I found myself a day post op no longer feeling any of the annoying hum of pain that was always constant from endo. The Hum that made it hard to breathe, near impossible to poop and difficult to eat or sleep. ... But unfortunately the pain of being able to eat, sleep, and poop never went away. I learned there was something else wrong as I started pooping blood and my cycle, after 7 days post op, which had always been ignored via BC all of sudden started bleeding every two weeks. The pain was worse than before but for two weeks instead of one... I'm now trying to get to the bottom of what is causing all this bowel issue. It sounds like cancer but I'm hoping it's something easier. My pathology on my bowels came back negative.... But it could also been my adenomyosis

I hear that you're saying you don't want to do any more surgeries but from what it sounds like to me is that you have the wrong kind of surgeon because if you're still in pain after all those surgeries then that means that the endometriosis is still inside your body and it's just not getting removed but instead getting spread everywhere try talking to a real endo specialist. Known true specialists are Dr. Andrea Vivaldi, Dr. Cook, Dr Sinervo or Dr Arrington. They deal with known complex repeated surgeries like me and my mom going on her 7th surgery well past her menopause years but was still in constant pain from endo. They removed everything but didn't help not until Dr. Arrington and Dr Sinervo were able to completely remove all endo from her. She even had tried depro for years and no luck until Dr. Sinervo helped. Now she is finally pain free.

Hi, looking to get arrington at endowest for another round of Endo excision and because he just started endowest, Im wondering about the price. Like can you tell me how much you had to pay upfront, afterwards and if they had any payment plans , what they looked like both with endowest and with hospital? I know I need 5k upfront on day 1 of seeing arrington. Thanks ahead so much!

Recto- endometriosis, Bowel Endo victim/warrior pls pitch in!!! What comfort helps do you use Recto- endometriosis, Bowel Endo victim/warrior pls pitch in!!! What comfort helps do you use What things do you guys use to help with the constant pain from internal pressure, nausea, gas, bowel pain and just everything. So I was stage 4 had recto Endo that spread to diaphragm, rectum, cul de sac and cervix. It got as bad as me having sepsis and I lost the ability to walk cuz the pain prevented me from using hip joint movement. The constant gas buildup even though I try to stay on the fodmap. Brown rice, greens, legumes, and oats cause so much gas and issues for me later. Taking gasx every day can't be good and the pain pills literally don't do anything for the gas pain. It gets so bad that it hurts in my rectume I can't sit or lay down in any sort of possition. Last time I relied on two large squashmallows to help ease the pain of just existing. But what do you other recto sufferers do? Exercise obviously makes things worse. Heat used to help when I started getting bad but now it makes it worse so I have found cold is actually better. Conserving energy of course keeps inflammation down. Not eating keeps inflammation down but then I begin to shake and collapse from lack of nutrients. Tumeric does nothing or I'm just not obsorbing nutrients properly. I stopped wearing pants completely unless I can't find my long dresses and I know I'm gonna bend a lot since I have a toddler. I also found that wearing a bra made the bloating worse too. My body hates any stimulus when I'm in pain and the stress definitely makes it worse. But if you guys have a secret that I don't yet know please share!!!! I'm on the wait-list for Medicaid endo surgery because I can't afford Dr.Arrington again. It took 30k last time to do surgery and that was a miracle. Anyways please help with suggestions! Thanks!!

I went to my appointment with him recently and he quoted a lot of research that supported estrogen and also that supported HT shrinks endo. But when I mentioned research that contradicts those findings he said I probably misunderstood them. I've learned from Endo doctors around the world quote and teach me the same things I tried to tell dassell but he didn't really believe me. He was nice about though. He was the kindest and most thorough doctor I have ever ever ever met. I spent three hours in his appnt and I'm actually happy about that. He is truly the most sincere doctor I think I've ever met. I wish the best for him, forever and ever. Although I don't agree with everything he said I value his opinion and am willing to give it a try because he is so thourough. I actually just asked straight up for another excision surgery and he didn't think I still have Endo. He wanted me to do pelvic floor therapy and muscle relaxers to help my rectal pain/pressure. I tried to tell him I have pain in the rear and he misunderstood that to mean my lower back. I said I'd give PFT a try and we upped my dosage of progesterone to add prometrium at 200 mg but I upped it again to 400mg. Since I used to be at 600mg years ago...I immediately saw an improvement for a week or two before I got worse again. I'm back to being in near constant pain after three weeks. Although the spotting has stopped, I'm getting desperate, I'm always sick to the stomach, but can't afford another out of pocket surgery that costs 33k for excision surgery with Dr. Arrington in draper,UT. My fatigue is gigantic and I can't eat anything without tons of abdominal pain. So this is what I've got to go on

I'm not the one you asked, but I had surgery with arrington back in 21' I had lost the ability to walk, poop, eat back then. He gave it back to me. It took a while to feel truly better but after 6 months I got pregnant and that is what really helped me feel better. My baby is turning 3 next month and I'm back to feeling sick again. I can still walk but eating is getting painful and difficult. I'm so so fatigued all the time. Constantly nauseous and using the bathroom is getting more difficult with each month. I had Endo on rectum, cervix, and diaphragm and appendix. I waited 4 months for dassel because I can't afford another 33k$ out of pocket for surgery with arrington. I'm on Medicaid and since I'm totally disabled my husband worked to death to pay for my surgery and I didn't want him to do that again so I'm going through Medicaid to hopefully get an excision paid and dassell is the only thing close to a specialist that is in network

I've been working with Dr. Arrington at the Center for Endometriosis Care in Atlanta. My obgyn recommended Orilissa and I asked Dr. Arrington about it since my surgery is scheduled for December 3rd. I'm going to post the response I got below. I hope it helps! He is Dr. Arrington’s response to your question. They are talking about Orlissa. There is no proven benefit of those medications over a simple, less risky birth control pill. Also, no evidence that any of the medicines prevent endo from "coming back". Studies have only shown hormones to increase the interval to a next surgery. Those studies were all done with techniques that incompletely treat the endo. I think it is easy to assume that the post operative hormones in those studies served the same purpose that they do before surgery...They mask the symptoms of untreated disease. Hormone do not kill off or prevent progression or development of endometriosis. There isn't a single study to support that. That being said, many patients feel more comfortable doing something. If anything, I'd recommend the OCP or a progesterone only pill. I don't think the others are worth the risk of bone loss, prolonged ovarian suppression, or suicidal ideation. I have already seen two patients who took Orlissa and had problems with suicidal thoughts.

My last surgeon was Dr. Arrington who partnered with Sinervo. I’ve heard great things about Ken but they didn’t take insurance and my surgery total out of pocket was over 10k. I don’t want to be buried in medical debt if I don’t have to be. I’ve heard Nancy’s Nook also accepts payments for doctors to be on her list, so I figured I’d ask here to see if anyone had recommendations that weren’t bought and paid for…

“Critical Illness Insurance” does not know our critical illness 😒 (UNUM) “Critical Illness Insurance” does not know our critical illness 😒 (UNUM) This year my job introduced the option to opt into a “Critical Illness Insurance” through UNUM. It would pay you $15,000 or $30,000 (usd, USA OP here) depending on which level you enroll in. This is not money that would go to drs hospitals, etc, instead; it’s paid directly to you. The cost of it goes up according to how old you are, in 5 year intervals Below the photo attached to this post it said: “Please refer to the certificate for complete definitions about these covered conditions. Coverage may vary by state. See exclusions and limitations.” I scoured my WorkDay, the UNUM site, called them and spoke to 3 people… they said I have to enroll first to then receive my policy docs and the “certificate” People can un-enroll within the first 30 days and get the first monthly payment $ back but I did not enroll Would y’all have enrolled? Did I make a mistake? I’m 28 and would’ve paid $10ish monthly for the $30,000 coverage I have not been diagnosed with endo (the critical illness would’ve had to get diagnosed after 01/01/3025) and I have my first appointment with a specialist (Dr Arrington from EndoWest in UT) scheduled for 12/17/24 I had a lot of tests with gynos and GI Drs but they only “suspect” endo so far

I’ve only got info on Arrington (he’s closer to me and after researching him + the consult i decided to schedule the surgery with him) The nurse (I think her name is Brittany) did an amazing job jotting down my medical history, we spoke for over half an hr He took his time talking to me too, felt genuine and caring, did not rush me and I felt like he’s a good listener. He did an internal ultrasound (with Brittany there) Was detailed and slow showing me what he was seeing on the ultrasound screen as he analyzed de imaging Then we debriefed in his office, he said based on the ultrasound I likely have stage 2 endo. He brought up ALL options (he’s big on INFORMED consent) and did not tell me “You need surgery” He basically said some ppl benefit from diet, lifestyle changes and hormonal birth control I let him know the Kyleena IUD got rid of my period and it’s symptoms but made my migraines x10 worse, I did keto for almost 5 years and that helped a bit but I’m not looking to go back to keto I said I’m here because I can’t function, don’t wanna lose my job and NEED to try surgery We agreed is probably the best bet He said his benefits ppl would contact my insurance and get me a good faith estimate so that id know all the details before choosing him and scheduling it I told him I was leaning towards doing my surgery in Mexico because I wasn’t sure I could afford it in dollars (had a dental surgery in MX bc of this, stayed w family bc I grew up there) and asked if he had any colleagues he’d recommend from MX and if he’d be willing to send my imaging, he immediately mentioned Dr Cabrera (he’s not in the area my family lives so he was not in the running) and said yes to sending my imaging That reassured me a ton I ended up doing a zoom consult with another surgeon from Mexico but he quoted me over $6,000 USD… Arrington’s self pay quote was under $6,000 USD (if done in one pmnt before surgery and without insurance) Please keep in mind your endo lesions may be completely different from mine and involve a completely different time line, complexity; surgery wise. Not certain if your estimates would be similar The ultrasound was $50 deposit to schedule and $450 as i checked out of the appointment I’m scheduled for the end of this month, please reply to this comment after mid March so I can come back and let you know how it went 🤞

Of course, in the end I spent over 6,000 but under 7,000 (counting in supplies for recovery, medication, etc) His out of pocket pricing will likely be cheaper than his pricing if using insurance by submitting it as an out of network expense I have a high deductible insurance that has any out of network expenses count towards my out of pocket maximum… this meant that I saved money by using my insurance (even though it would cost more with the surgeon) because the surgery met my out of pocket maximum and the insurance covered the hospital expense Otherwise it would’ve been $5k ish for the surgeon + $5k ish for the hospital Do not hesitate in having them draw up the “Best Faith Estimate” they’ll send it to you via docusign I opened mine, wrote down the numbers, took my time considering them AND scheduled a virtual consult with another surgeon who also gave me his pricing (Dr Arrington turned out cheaper) so I called them and asked for the Docusign a second time to actually sign it I could have said “thanks for the ultrasound, thanks for the best faith estimate but I chose another surgeon” Feel free to dm me, happy to answer anything else. I’m three weeks post op now and at the end of my first post op cycle too

Heres a little bit on diagnosing endometriosis from John Hopkins University Diagnosis Doctors may suspect endometriosis based on your history or physical exam, and may use these tools to diagnose endometriosis: Laparoscopy: In this procedure, a doctor makes a small cut in the abdomen and inserts a thin tube with a light and a camera. This allows the doctor to look at the tissues in and around the uterus, and check for signs of endometrial tissue growth. Biopsy: If the doctor finds suspicious tissue, he or she may use a small device to scrape off a few cells and send them to the laboratory. A pathologist examines the tissues under a microscope. Biopsy is required for definitive diagnosis of endometriosis. How to diagnose endometriosis without surgery There is no lab test, procedure or imaging that can be done to diagnose endometriosis without surgery. However, imaging studies can be useful to look for signs of endometriosis. Common diagnostic imaging exams include: Ultrasound: This procedure uses sound waves to view organs. Transvaginal ultrasounds use a small wand inserted into the vagina to see the uterus, pelvic area and reproductive organs. MRI: This noninvasive scan uses magnetic waves to look at organs and tissues inside the body. *I have stage 4 endometriosis and have been under the knife with excision specialists Dr.Adam Duke and also Dr.Jeff Arrington at The Center for Endometriosis Care. I never meant for my comments to come off wrong. There is just so much misinformation out there about endometriosis as a whole. Adenomyosis & Endometriosis are like sister. Ones inside the uterus walls and the other is outside in the pelvic cavity, bladder, bowels, ext. I hope you find a doctor near you who understands this complex disease as many regular OBGYNs have extremely outdated information or are just overall uneducated on the subject. I'm so sorry you're struggling 😔

Oh honey. I am so so so sorry. That is absolutely mortifying and all the feelings you have are valid. I'm very surprised to hear about this experience and think you should speak up on some fb forums if you're comfortable. An honest review could help another person stay out of this situation. I've had surgeries with Dr.Arrington who now works for the CEC and never had this experience and also with Dr.Duke in Post Falls and NW women's health. The fact this is happening with specialists is sickening and heartbreaking. I had a very traumatic birth in February and a Hysterectomy 2 weeks go. I would highly suggest therapy or some self help type therapy books to work through what happened. Helping isn't linear and it's okay. Be gracious with yourself right now and gentle. Rest up and heal. Much love, a fellow endo Warrior. ❤️‍🩹

I traveled to the CEC for treatment. It made the most sense for me financially because I had already spent around $8000 on failed surgeries with in-network providers. I also have thoracic endo so that influenced my decision to go to the CEC as well. Ultimately, my endo was much more extensive than I thought (it was on my cervix, bowels, bladder, ureters, diaphragm, right lung, uterosacral ligaments and my pouch of Douglas was obliterated) but Dr. Sinervo and Dr. Arrington were able to remove all my endo in a single surgery. They said the recurrence rate is 5-10%. It was worth every penny and I acknowledge that I am extremely fortunate that I had the savings to go. My coworker also had a good experience at the CEC. You can always submit your records for a free review and see what they have to say!

I did not have any issues with the catheter being painful. It may burn a bit after it is taken out but nothing major. I was actually glad to have one after surgery since my bladder has a difficult time waking up from anesthesia and it can get uncomfortable not being able to pee. You’re in great hands with Dr. Arrington! He is by far one of the most compassionate doctors I have ever met. He was one of my surgeons in 2019 but not in 2020 and he still came to check on me every day I was in the hospital last year. I hope you get some answers! Also, if you’re not having bowel resection or VATS then you will likely stay at Northside for only 24 hours after surgery. I believe your caregiver is allowed to stay with you overnight as long as you are not admitted to the hospital

I could not find any endometriosis specialists to treat my thoracic/diaphragm endo in CT. There are no highly skilled endo surgeons with multidisciplinary teams in the state. It’s really important that your surgeon knows how to properly mobilize the liver to fully evaluate the left side of the diaphragm. They should also work alongside a thoracic surgeon so both the abdominal and thoracic side of the diaphragm is evaluated for lesions. The other concern is that most unskilled surgeons will place a mesh to “fix” fenestrations of the diaphragm; however, the proper technique is to fully excise any lesions then suture the diaphragm. This is most effective in preventing recurrence and lung collapses. I have a family friend who works in the OR for OBGYNs at UConn Health as a first assist and the only endo surgeons she recommends are the Luciano’s, but even they do not treat diaphragm endo and use ablation rather than excision. I personally traveled to the CEC because Dr. Sinervo and Dr. Gouldman are a world-renowned team for treating thoracic endo (I had BCBS and you can check my post history for my out-of-pocket costs). I’ve heard good things about Dr. Kip McKenzie, Dr. Martin Robbins (Maine) and Dr. Vidali if you’re looking to stay in the New England area. Dr. Nicholas Fogelson (Oregon) and Dr. Jeff Arrington (Utah) are on the west coast but also very experienced in this type of endo. Good luck!

I traveled to the CEC for treatment. It made the most sense for me financially because I had already spent around $8000 on failed surgeries with in-network providers. I also have thoracic endo so that influenced my decision to go to the CEC as well. Ultimately, my endo was much more extensive than I thought (it was on my cervix, bowels, bladder, ureters, diaphragm, right lung, uterosacral ligaments and my pouch of Douglas was obliterated) but Dr. Sinervo and Dr. Arrington were able to remove all my endo in a single surgery. They said the recurrence rate is 5-10%. It was worth every penny and I acknowledge that I am extremely fortunate that I had the savings to go. My coworker also had a good experience at the CEC. You can always submit your records for a free review and see what they have to say!

I did not have any issues with the catheter being painful. It may burn a bit after it is taken out but nothing major. I was actually glad to have one after surgery since my bladder has a difficult time waking up from anesthesia and it can get uncomfortable not being able to pee. You’re in great hands with Dr. Arrington! He is by far one of the most compassionate doctors I have ever met. He was one of my surgeons in 2019 but not in 2020 and he still came to check on me every day I was in the hospital last year. I hope you get some answers! Also, if you’re not having bowel resection or VATS then you will likely stay at Northside for only 24 hours after surgery. I believe your caregiver is allowed to stay with you overnight as long as you are not admitted to the hospital

I could not find any endometriosis specialists to treat my thoracic/diaphragm endo in CT. There are no highly skilled endo surgeons with multidisciplinary teams in the state. It’s really important that your surgeon knows how to properly mobilize the liver to fully evaluate the left side of the diaphragm. They should also work alongside a thoracic surgeon so both the abdominal and thoracic side of the diaphragm is evaluated for lesions. The other concern is that most unskilled surgeons will place a mesh to “fix” fenestrations of the diaphragm; however, the proper technique is to fully excise any lesions then suture the diaphragm. This is most effective in preventing recurrence and lung collapses. I have a family friend who works in the OR for OBGYNs at UConn Health as a first assist and the only endo surgeons she recommends are the Luciano’s, but even they do not treat diaphragm endo and use ablation rather than excision. I personally traveled to the CEC because Dr. Sinervo and Dr. Gouldman are a world-renowned team for treating thoracic endo (I had BCBS and you can check my post history for my out-of-pocket costs). I’ve heard good things about Dr. Kip McKenzie, Dr. Martin Robbins (Maine) and Dr. Vidali if you’re looking to stay in the New England area. Dr. Nicholas Fogelson (Oregon) and Dr. Jeff Arrington (Utah) are on the west coast but also very experienced in this type of endo. Good luck!

Anyone else experience nervousness for surgery that nothing will be found with stage 1-2 endo? Anyone else experience nervousness for surgery that nothing will be found with stage 1-2 endo? Hi! I'm a 25F that has been dealing with pain for over a decade. I had my first ultrasound in 2017 and they found signs of endo. I waited and got an MRI in 2023 that basically told me everything looks great, which wasn't helpful at all. I still have chronic pain. It took me years for my pain to finally be taken seriously and I was referred to pelvic floor PT. That helped me immensely. My PT ended up referring me to Dr. Jeff Arrington in Utah for a consult. I had my consult last week with Dr. Arrington and he did an ultrasound and said my endometriosis is likely stage 1 or stage 2, which was good news for me. It was relieving to hear a confirmation after so long. After my consult, I decided I wanted to go forward with surgery since I feel I've exhausted all options. I've done the bc, the PT, the vitamins, the diet, etc. and I just feel like there isn't any other option. I've already experienced a miscarriage, passing out from the pain, vomiting, and am tired of feeling miserable and bloated. I just have this little voice in the back of my head that's saying, "What if they don't find anything, what if it's just in your head?" I know it's a dark thought but it's hard to spend so much money for the surgery and take time off work for a potential unknown. I just worry since he said it's probably only stage 1-2 endometriosis. Has anyone else experienced this? Also, any stories about excision surgery with stage 1 to 2 Endo? I haven't scheduled my surgery yet so any stories or advice is greatly appreciated since I'm feeling so apprehensive.

Anyone else experience nervousness for surgery that nothing will be found with stage 1-2 endo? Anyone else experience nervousness for surgery that nothing will be found with stage 1-2 endo? Hi! I'm a 25F that has been dealing with pain for over a decade. I had my first ultrasound in 2017 and they found signs of endo. I waited and got an MRI in 2023 that basically told me everything looks great, which wasn't helpful at all. I still have chronic pain. It took me years for my pain to finally be taken seriously and I was referred to pelvic floor PT. That helped me immensely. My PT ended up referring me to Dr. Jeff Arrington in Utah for a consult. I had my consult last week with Dr. Arrington and he did an ultrasound and said my endometriosis is likely stage 1 or stage 2, which was good news for me. It was relieving to hear a confirmation after so long. After my consult, I decided I wanted to go forward with surgery since I feel I've exhausted all options. I've done the bc, the PT, the vitamins, the diet, etc. and I just feel like there isn't any other option. I've already experienced a miscarriage, passing out from the pain, vomiting, and am tired of feeling miserable and bloated. I just have this little voice in the back of my head that's saying, "What if they don't find anything, what if it's just in your head?" I know it's a dark thought but it's hard to spend so much money for the surgery and take time off work for a potential unknown. I just worry since he said it's probably only stage 1-2 endometriosis. Has anyone else experienced this? Also, any stories about excision surgery with stage 1 to 2 Endo? I haven't scheduled my surgery yet so any stories or advice is greatly appreciated since I'm feeling so apprehensive.

If you can get images from your surgery you can consult with the Center for Endometriosis Care for free. [Here is the link where you can submit your case for a free review.](https://centerforendo.com/registrationforms-patientmaterial) I made a telemedicine appointment with them first (not the free consult) and will be going in to their office for my surgery consult later this month after my first telehealth appointment. Dr Arrington diagnosed me with endometriosis after looking at my images from surgeries that took place over 10 years ago. I’ve heard they are the best of the best, and I believe it. There was a problem with the email and the images didn’t come through on their end so during the appointment, I held up the pictures from my surgery and Dr. Arrington was able to see the endo that way.

Ooh, are you doing your surgery in Atlanta with the Center for Endometriosis Care? That’s where I saw Dr Arrington who diagnosed me with endo. Their office is amazing and everyone I interacted with was so kind and caring! Also, Canolli sounds like an angel, I’m so happy you found her. Sounds like you have an excellent plan for phasing in the babies that need a bit more attention from you, way to go knowing your limits.

2nd Excision Surgery - Still in pain 2nd Excision Surgery - Still in pain Hi ladies! I had my first excision surgery with a Nook doctor in October - Dr. Atashroo in IL. I still had major debilitating pelvic pain. Tried everything. See my post history, but the pain made me suicidal. Anyways I had my second excision surgery last week. I was feeling ok and had incision pain. Today it’s been as bad as before the surgery. I had my right ovary, right Fallopian tube, and a lot more endo taken out. She noted that more endo grew all over my pelvic cavity again, in a 7 month period. Can anyone answer any of the following questions: -Has anyone had endo grow super fast after excision surgery? -Has anyone had an ovary taken out? What was the recovery like/timeline? -Do I need to be patient and wait till I’m healed or should I see Dr. Arrington in the CEC? *He noted that I have DIE and was interested in my case, but I couldn’t raise money before he moved to the CEC. Thanks for reading this! I hate this stupid disease. I just want relief! I finally started a new job and they were super supportive. I don’t want to take more time off.

I am ending up having surgery with Dr. Furr, in Chattanooga. The surgeon fee was kinda ridiculous. Total was going to be $15,000. And they weren’t willing to budge. I asked Dr. Arrington if it’s possible for a pro bono case. Didn’t even respond. Yeaaaaaa I’m glad I found Dr. Furr. He is going to be thorough and take his time. Thanks for the suggestion earlier to avoid him.