Dr. Arrington

I'm gonna say yes you have endo, no doubt about it. I wish I woukdv listened to my body last time and avoided wh re I am now. Endo gets progressively worse if you don't permanently remove your lessions from within. It sounds like you have a ruptured cyst , and when that happens your endo cells will leak more endo cells to the everything surrounding it and respread even further. That is why is eloquently called a sister to cancer because it grows and spreads so much. Go to a specialist like de. Vidalia or Dr. Cook. Or Dr. Duke. Or Dr. Arrington or Dr. Sinervo or another well known specialist so they can properly get rid of all lessions before you loose parts of your organs like me

Yes I found out it's because of the intense inflammation in the deep bowel endometriosis causes extreme bloating and inflation of your intestines and surrounding organs like your bladder and stomach that it becomes to painful to have sex or to insert tampons or cups of any kind. The only cupni can handle now is the nixit because it sits above where the pelvic bone space is. However it still hurts. It's become so bad for me that I couldn't even handle sitting up. My vagina used to be large enough to maneuver three fingers to place my menstrual cup but now I can barely get two in. I have bowel obstruction as well so dr. Arrington of the CEC in georgia will be doing a bowel resection and I also have adenomyosis which is now just dead muscle so it also needs to be removed.

First of all, THANKYOU!! for all the awesome info! Was the catheter bothersome?painful? I am told that I likely won't need a bowel resection anymore and that the a VATS is also unlikely. But a cystoscopy or partial one may be performed. I'm sorry you had to deal with thoracic endo! Dr. Arrington thinks my symptoms are minor enough that we should my lungs alone for the time being, but I'm still a bit worried wether it's asthma or thoracic endo. Thanks again!

You need a real specialist to fix everything fist. Try Dr. Arrington at the CEC or Dr. Sinervo at the cec or Dr. Cook or Dr. Andrea vivaldi in new York. They know how to remove all lessions and provide best chances of getting pregnant afterward without ivf. Ivf should not be your first go to post op. It should be a last option after all else fails

He did my surgery 5 years ago and made it so I went from not being able to poop at all! And not being able to walk or have a baby to being able to do all this things and have my 2 yr old baby now who I adore. We bought CHM health share and it paid for the grunt of it. It cost 3k upfront to the CEC and 3k to the hospital and then the bill was initially 36k but we got the self pay discount, so it ended up only being 16k, and then borrowed from my mil, 12k. The CHM reimbursed us the 12k and we paid off the rest over the next two years. But we aren't able to do CHM again because Endo is in my records now so they don't cover preexisting stuff under 3 years. Now that he is in draper Utah, at endowest, we have to get 5,500$ yo get the surgery started. Then it's an estimated 36k due afterwards. No help this time.

I'm not the one you asked, but I had surgery with arrington back in 21' I had lost the ability to walk, poop, eat back then. He gave it back to me. It took a while to feel truly better but after 6 months I got pregnant and that is what really helped me feel better. My baby is turning 3 next month and I'm back to feeling sick again. I can still walk but eating is getting painful and difficult. I'm so so fatigued all the time. Constantly nauseous and using the bathroom is getting more difficult with each month. I had Endo on rectum, cervix, and diaphragm and appendix. I waited 4 months for dassel because I can't afford another 33k$ out of pocket for surgery with arrington. I'm on Medicaid and since I'm totally disabled my husband worked to death to pay for my surgery and I didn't want him to do that again so I'm going through Medicaid to hopefully get an excision paid and dassell is the only thing close to a specialist that is in network 

I've been working with Dr. Arrington at the Center for Endometriosis Care in Atlanta. My obgyn recommended Orilissa and I asked Dr. Arrington about it since my surgery is scheduled for December 3rd. I'm going to post the response I got below. I hope it helps! He is Dr. Arrington’s response to your question. They are talking about Orlissa. There is no proven benefit of those medications over a simple, less risky birth control pill. Also, no evidence that any of the medicines prevent endo from "coming back". Studies have only shown hormones to increase the interval to a next surgery. Those studies were all done with techniques that incompletely treat the endo. I think it is easy to assume that the post operative hormones in those studies served the same purpose that they do before surgery...They mask the symptoms of untreated disease. Hormone do not kill off or prevent progression or development of endometriosis. There isn't a single study to support that. That being said, many pati

My last surgeon was Dr. Arrington who partnered with Sinervo. I’ve heard great things about Ken but they didn’t take insurance and my surgery total out of pocket was over 10k. I don’t want to be buried in medical debt if I don’t have to be. I’ve heard Nancy’s Nook also accepts payments for doctors to be on her list, so I figured I’d ask here to see if anyone had recommendations that weren’t bought and paid for…

I think including somewhere (and I may have overlooked a feature like this) the average wait times to see that doctor, and the average wait time for surgery with that doctor. I'm seeing Dr. Arrington in Ogden, and my consultation appointment was scheduled 4 months out (he's very booked and popular), and my lap was scheduled another full 2 months out. While I understand that this is pretty standard, it was hard when I called to schedule my first appointment and they started giving me dates 4 months later. It was difficult because I have been dealing with doctor crap for 5 years and I thought getting referred to him would solve everything immediately, so I think I cried when the receptionist said "Does November 27th work?" and it was July...

This experience sounds horrifying. I'm sorry you had such a terrible situation inflicted on you. About the exam: I was a patient of Arrington (who is now at CEC) before he joined them. In my consultation exam, he didn't even touch me. He listened, he looked at my file, and he listened to my concerns. When we had set up a surgery, I did have an exam by him, but he never used tools or more than one digit in the exam. I'm not telling you this to say that they're "not all bad" or anything because this was 5 years ago, but I'm hoping to convey that I don't think his exam was appropriate or correct, and if you feel like it should be reported, I think that's a valid path you should pursue. Lots of hugs! 🤗

Also using MMJ. Edibles don’t work for her tho and im starting to worry a bit about her lungs because she’s been smoking for over a year now. She had two surgeries the second being Arrington. However, more recently she had an ovarian cyst burst causing major internal blood loss so she needed emergency surgery for that. Just kinda one thing after the next :(. I feel so bad, but she’s such a good sport about it, she’s back full time at her job that she loves, but she will have days of pain and vomiting still. 🤷🏼‍♂️ seems like the chronic pain is kinda here to stay and she is just re adjusting what her level of “normal” is as shitty as reality is.

Dr Arrington at CEC did my endometriosis surgery. He's now at EndoWest in Utah, but I'm certain the other doctors at CEC are great. For me, the hospital was in network but the Dr wasn't. So, the cost will likely end up being your health insurance max out of pocket for the hospital. Then the Dr from CEC is about 8-15k depending on the extent of the operation. I believe mine was $12k and I had Stage 3 which included a partial vaginectomy.

If you can get images from your surgery you can consult with the Center for Endometriosis Care for free. [Here is the link where you can submit your case for a free review.](https://centerforendo.com/registrationforms-patientmaterial) I made a telemedicine appointment with them first (not the free consult) and will be going in to their office for my surgery consult later this month after my first telehealth appointment. Dr Arrington diagnosed me with endometriosis after looking at my images from surgeries that took place over 10 years ago. I’ve heard they are the best of the best, and I believe it. There was a problem with the email and the images didn’t come through on their end so during the appointment, I held up the pictures from my surgery and Dr. Arrington was able to see the endo that way.

Ooh, are you doing your surgery in Atlanta with the Center for Endometriosis Care? That’s where I saw Dr Arrington who diagnosed me with endo. Their office is amazing and everyone I interacted with was so kind and caring! Also, Canolli sounds like an angel, I’m so happy you found her. Sounds like you have an excellent plan for phasing in the babies that need a bit more attention from you, way to go knowing your limits.

I’m so sorry this is happening to you. I hate to say it, but your best bet is to see one of a handful private and out-of-network surgeons who are extremely skilled. I recently saw Dr. Mosbrucker (near Seattle) and she was able to get a really good sense of my condition via ultrasound - she did it herself - and then an extensive excision and presacral neurectomy. There are a few others that I know of that are cream of the crop. Dr. Vidali in New York, Dr. Arrington in Utah (brand new practice), and the Center for Endo in Atlanta. If you can’t afford an out of network surgery (it can be like $6K-$10K), the next best option is to seek out a MIGS trained OB-GYN who has extensive experience with endometriosis. Most of the Nancy’s Nook vetted surgeons fall under this category.

Hi! I know you posted like a month ago but I hope you see this. A few recommendations: (1) check icarebetter.com to see if there are any surgeons in your area. They are all video vetted excision specialists. (2) if you haven’t already, check Nancy’s Nook Facebook Group. She has a list of doctors (though I would highly recommend someone on icarebetter over a random Nook doctor) and you can read patient reviews by searching the name of the doctor. (3) You can get a free records review with lots of the best Endo excision specialists (on icarebetter). I had a free consult with Dr. Jeff Arrington who is in Utah and Dr. Andrea Vidali in NYC. They will review your medical history and give you recommendations on how to proceed. It’s SUPER important to find the best possible excision doctor the first time. Feel free to DM me if I can help you any more!

I traveled to the CEC for treatment. It made the most sense for me financially because I had already spent around $8000 on failed surgeries with in-network providers. I also have thoracic endo so that influenced my decision to go to the CEC as well. Ultimately, my endo was much more extensive than I thought (it was on my cervix, bowels, bladder, ureters, diaphragm, right lung, uterosacral ligaments and my pouch of Douglas was obliterated) but Dr. Sinervo and Dr. Arrington were able to remove all my endo in a single surgery. They said the recurrence rate is 5-10%. It was worth every penny and I acknowledge that I am extremely fortunate that I had the savings to go. My coworker also had a good experience at the CEC. You can always submit your records for a free review and see what they have to say!

I did not have any issues with the catheter being painful. It may burn a bit after it is taken out but nothing major. I was actually glad to have one after surgery since my bladder has a difficult time waking up from anesthesia and it can get uncomfortable not being able to pee. You’re in great hands with Dr. Arrington! He is by far one of the most compassionate doctors I have ever met. He was one of my surgeons in 2019 but not in 2020 and he still came to check on me every day I was in the hospital last year. I hope you get some answers! Also, if you’re not having bowel resection or VATS then you will likely stay at Northside for only 24 hours after surgery. I believe your caregiver is allowed to stay with you overnight as long as you are not admitted to the hospital

I saw an Endo specialist and he did ultrasound while moving me around to see if any evidence of adhesions. Definite adhesions on the right side and my uterus and bladder appear to be fused together entirely. I described my symptoms and based on all of that, he predicts I have Endo all over right side and it’s probably not on my liver or kidneys, which I feared, but more likely running along a nerve that goes along my right side. He thinks this because Endo on that nerve causes nausea, pain from my shoulder/neck all the way down the from of the right leg and the right upper quadrant pain. He will still scope everything including my liver/diaphragm when I get surgery. He was wonderful, I just need to save up for the down payment as he is out of network for me. I am in Utah btw, his name is Dr. Arrington at Endo West. If you are young enough, go to med school and help our next generation so they don’t have to suffer as long without answers! I just paid off my law school loans 5 years ago